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Can You Get Out of Assisted Living? Understanding Your Rights and Options

5 min read

According to the National Center for Assisted Living, there were over 28,900 assisted living communities in the United States as of 2021. For those considering a move or already residing in one, the question, "Can you get out of assisted living?" is critically important. The answer is yes, but the process involves understanding your rights, your contract, and the practicalities of a transition.

Quick Summary

Yes, residents can typically move out of assisted living voluntarily, and facilities can't prevent you from leaving unless there's a guardianship order in place. The process involves giving proper written notice, adhering to contract terms, and having a new care plan in place. For involuntary discharges, residents have legal rights and appeal options.

Key Points

  • Voluntary Departure is Your Right: In most cases, you can leave an assisted living facility of your own free will, provided you are not under a guardianship order.

  • Review Your Contract: Your residency agreement specifies the notice period (often 30 days) and any financial penalties for terminating the contract early.

  • Involuntary Discharge Protections: Facilities must provide a written notice for involuntary discharge, and you have the right to appeal the decision.

  • Use the Ombudsman: A Long-Term Care Ombudsman can advocate for your rights and help resolve disputes with the facility.

  • Explore Alternatives: Options like aging in place with home care, residential care homes, or continuing care retirement communities offer varying levels of support.

  • Communicate and Plan Ahead: Whether voluntary or not, a smooth transition requires open communication with staff and a new care plan in place before you move.

In This Article

Understanding the Basics: Voluntary vs. Involuntary Departure

The ability to leave an assisted living facility is a fundamental resident right, though the path you take depends on whether the departure is voluntary or involuntary. A voluntary departure is your choice, perhaps to move closer to family, find a different community, or explore alternative care settings. An involuntary discharge, however, is initiated by the facility due to specific circumstances outlined in your residency agreement.

Your Right to Choose: Voluntary Departure

For most residents not under a guardianship order, leaving is a matter of giving proper notice. Your residency contract will specify the required notification period, which is typically 30 days. It's crucial to review this document carefully to understand any obligations, such as potential fees for breaking the contract or moving out before the term ends.

The most common reasons for a voluntary move include:

  • Changing Needs: A resident's health needs may change, making the current facility no longer the best fit. For example, some individuals may transition to a nursing home for more intensive medical care, while others may recover enough to return home with in-home support.
  • Financial Considerations: Assisted living costs can be substantial, and financial circumstances can change. Residents may seek more affordable living arrangements or explore state-funded programs.
  • Dissatisfaction with the Facility: Issues with the quality of care, staff, food, or community environment can lead a resident to seek a better-suited community.

Navigating an Involuntary Discharge

While less common, an assisted living facility can involuntarily discharge a resident. This is a regulated process with specific rules designed to protect residents' rights. Legal reasons for involuntary discharge often include:

  • Exceeding Care Capabilities: The resident's medical or behavioral needs have progressed beyond what the facility is licensed or equipped to handle. For instance, a resident needing intensive, round-the-clock medical care may need to transition to a skilled nursing facility.
  • Non-Payment of Fees: Consistent failure to pay for services is grounds for discharge.
  • Behavioral Issues: Disruptive, aggressive, or unsafe behavior that endangers the resident or others can lead to discharge.

In these cases, the facility must provide a written notice stating the reason and proposed date for the transfer or discharge. Residents and their families have the right to appeal this decision, and contacting a local Long-Term Care Ombudsman is highly recommended for assistance and advocacy.

Practical Steps for Leaving Assisted Living

Whether voluntary or involuntary, a move requires careful planning and coordination to ensure a smooth and safe transition.

If you are planning to move out voluntarily:

  1. Review your contract. Understand the notice period and any financial obligations. Some facilities may waive fees depending on the circumstances, so it's always worth a conversation.
  2. Plan the transition. Before you leave, have your next steps confirmed. This includes securing alternative housing and arranging for any necessary care services at your new location.
  3. Provide written notice. Submit a formal, written notice to the facility administrator, adhering to the contract's requirements.
  4. Communicate with staff. Maintain open and respectful communication with staff to ensure a smooth discharge process, including the transfer of medical records and a final walkthrough.

If you are facing an involuntary discharge:

  1. Request a written notice. Ensure the facility provides a detailed, written notice outlining the specific reasons for the discharge, the effective date, and information on appeal rights and advocacy resources.
  2. Contact the Ombudsman. Reach out to your local Long-Term Care Ombudsman program immediately. These advocates can help mediate with the facility and protect your rights during the appeals process.
  3. Explore alternative care. Work with social services or a care manager to assess your health needs and identify alternative facilities or in-home care services that can meet them.

Comparison of Assisted Living and Alternative Care Options

Before deciding to leave, it’s beneficial to compare assisted living to other senior care options to ensure the best fit for your needs and lifestyle.

Feature Assisted Living In-Home Care Residential Care Home Skilled Nursing Facility
Setting Apartment-style living in a larger community. Private residence. Smaller, residential home setting. Institutional, hospital-like setting.
Services Help with daily living, meals, activities, transportation. Caregivers provide personal care and household support in your home. Similar services to assisted living, but in a smaller, more intimate setting. 24/7 skilled nursing care, rehabilitation, and medical services.
Cost Generally mid-range, varies significantly by location and services. Highly variable, depends on hours needed. Can be more or less expensive than assisted living. Often less expensive than larger assisted living facilities. Typically the most expensive, often covered by Medicare short-term.
Independence Retain significant independence with support nearby. Age in place in a familiar environment. Community-focused, but with less privacy than independent living. Lower level of independence due to higher medical needs.
Socialization Group activities and a built-in community. Limited unless coupled with adult day care programs. Close-knit, smaller group environment. Varies by facility, but often less socially focused than assisted living.

Exploring Alternative Options for Future Care

If you decide to get out of assisted living, knowing your options is paramount. The right choice depends on your specific needs, financial situation, and personal preferences.

  • Aging in Place with Home Care: For those who prefer to remain in their own homes, home care services can provide assistance with everything from daily chores and meal preparation to more skilled medical care. This offers the greatest sense of independence and familiarity.
  • Adult Day Care: These centers provide a safe environment with social activities, meals, and supervision during the daytime. They are an excellent option for individuals living with family who need care while their relatives are at work or taking a break.
  • Residential Care Homes (Group Homes): These are smaller, private facilities, often with fewer than 20 residents, offering a more intimate, family-like environment. They provide personal care and meals with 24/7 staffing.
  • Continuing Care Retirement Communities (CCRCs): A long-term option, CCRCs offer multiple levels of care on a single campus, from independent living to assisted living and skilled nursing. This allows for a seamless transition as needs change over time.
  • Family Living Arrangements: Moving in with a family member can be a familiar and comforting option, though it requires careful consideration of family dynamics and the level of care needed.

Conclusion: Making an Informed Decision

Ultimately, the ability to get out of assisted living is a right protected by law and contract. The process is not without its challenges, requiring careful attention to legal agreements, financial implications, and the emotional well-being of the resident. However, by understanding your rights, exploring all your alternative options, and planning meticulously, you can ensure the next transition is a positive step toward finding the right fit for your ongoing needs. Remember to leverage resources like the Long-Term Care Ombudsman program if you encounter resistance or feel your rights are being violated. Your autonomy and well-being are the top priority in this process.

For more information on resident rights and advocacy, consider exploring the resources provided by The Consumer Voice for Quality Long-Term Care.

Frequently Asked Questions

Most assisted living contracts require a 30-day written notice from the resident or their representative before moving out voluntarily. However, it's essential to review your specific contract for the exact terms, as some facilities may have different requirements or policies regarding waiving fees in certain situations.

Yes, most assisted living facilities allow for temporary leaves, such as for holidays or family events. You should inform the staff of your plans and check your contract or with the administration regarding any potential impact on insurance or billing for extended absences.

Facilities can ask a resident to leave for a few legal reasons, including if the resident's care needs exceed the facility's licensed capacity, non-payment of fees, or disruptive or dangerous behavior. The facility must follow proper procedures and provide written notice.

A Long-Term Care Ombudsman is an advocate for residents in long-term care facilities. They can investigate complaints, help resolve conflicts, and educate residents on their rights. If you are facing an involuntary discharge, an ombudsman can be an invaluable resource.

A resident can leave against medical advice, especially if they are of sound mind and not under a guardianship. While facilities will often document this and may require a signed waiver, they cannot physically prevent a resident from leaving. Having a new care plan is crucial to ensure safety.

Long-term care insurance policies vary widely. You will need to contact your insurance provider to understand their specific coverage and payout policies regarding leaving a facility. Some policies are paid out as reimbursements, while others may be more flexible.

If you believe the discharge is unfair, you should immediately contact your local Long-Term Care Ombudsman program. You have the right to appeal the decision, and an ombudsman can help you navigate the appeals process and advocate on your behalf.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.