Skip to content

Are people with dementia incontinent, and why does it happen?

5 min read

According to the Alzheimer's Association, incontinence is a common symptom in the middle to late stages of Alzheimer's disease and other forms of dementia. This issue is a source of stress and embarrassment for both the person affected and their caregivers, leading many to question, 'Are people with dementia incontinent?'

Quick Summary

Incontinence is not an inevitable outcome of dementia but is a common symptom in later stages, stemming from the cognitive and physical changes caused by the disease. It can be caused by the brain's inability to process bladder or bowel signals, disorientation, mobility issues, or medication side effects.

Key Points

  • Not Universal, But Common: While not all people with dementia experience incontinence, it is a very common issue, especially in the later stages of the disease, and is not a normal part of aging.

  • Multiple Causes: Incontinence can be caused by direct neurological damage, cognitive decline leading to forgetfulness, confusion, mobility problems, or side effects from medications.

  • Functional Incontinence: This is a key factor, where the person physically cannot get to the toilet in time due to issues like disorientation or poor mobility, rather than a problem with the urinary tract itself.

  • Behavioral Changes are Clues: A sudden increase in confusion, agitation, or restlessness can signal a urinary tract infection (UTI), a common and treatable cause of incontinence in older adults.

  • Management is Key: Strategies like timed toileting, adapting clothing, using protective products, and maintaining a clear path to the bathroom can help manage and reduce incidents.

  • Compassion is Essential: Reacting with patience and compassion is crucial to maintaining the dignity and self-esteem of the person with dementia, who is not causing accidents on purpose.

In This Article

Understanding the Link Between Dementia and Incontinence

While incontinence is often associated with aging, it is not a normal part of the process and becomes significantly more prevalent and complex in individuals with dementia. The cognitive decline affects a person's ability to control their bladder and bowels through several pathways. Understanding the specific causes is the first step toward effective management and maintaining dignity for the person with dementia.

The Neurological Connection

Dementia, particularly Alzheimer's disease, causes progressive damage to specific regions of the brain. The frontal cortex, basal ganglia, and pontine micturition center are all crucial for regulating urination and are often affected by the plaques and tangles characteristic of Alzheimer's.

What this means for continence:

  • Loss of Inhibitory Signals: The brain's control centers normally send inhibitory signals to the bladder, preventing it from contracting involuntarily. As damage occurs, this control is lost, leading to an overactive bladder and urge incontinence.
  • Sensory Perception Issues: The ability to perceive and interpret signals from a full bladder diminishes. A person with dementia may no longer recognize the sensation of needing to urinate until it is too late.
  • Misinterpretation: The brain's ability to process sensory information is compromised, which can lead to confusion. An individual might feel a bodily sensation but not understand what it means or how to respond appropriately.

Behavioral and Functional Factors

In addition to the direct neurological damage, the behavioral and functional changes caused by dementia are significant contributors to incontinence, often resulting in what is known as functional incontinence.

Causes related to dementia progression:

  • Memory Impairment: Forgetfulness is a hallmark of dementia. A person may simply forget to go to the bathroom, forget where the bathroom is located, or forget the steps involved in using it.
  • Disorientation and Confusion: In unfamiliar or low-light environments, confusion can prevent a person from finding the bathroom in time. This is especially common at night.
  • Communication Difficulties: In later stages, the ability to communicate needs can be severely limited. The individual may feel the urge but be unable to express it to a caregiver.
  • Mobility Challenges: Physical limitations and gait abnormalities can make getting to the bathroom in time a significant challenge. This is particularly true for those who already have arthritis or other age-related mobility issues.

The Role of Medication and Comorbidities

Continence problems are not always solely a result of dementia. Other health issues and the medications used to treat them can play a crucial role.

Factors complicating incontinence:

  • Medication Side Effects: Some medications, including acetylcholinesterase inhibitors used to treat dementia symptoms, can have side effects that increase the likelihood of incontinence. Caregivers and doctors must carefully weigh the benefits and risks of these drugs.
  • Urinary Tract Infections (UTIs): UTIs are a common and treatable cause of sudden-onset incontinence in older adults. For a person with dementia, recognizing and communicating the symptoms of a UTI, such as pain or burning, is often not possible. An increase in confusion or behavior changes can be the only sign.
  • Constipation: Chronic constipation can press on the bladder, leading to urinary incontinence. In severe cases, it can also lead to fecal incontinence. A proper diet and fluid intake are essential to managing this.
  • Other Conditions: Conditions like benign prostatic hyperplasia (BPH) in men or pelvic floor weakness in women can also contribute to urinary incontinence and may worsen with dementia.

A Comparative Look at Types of Incontinence

Understanding the different types of incontinence can help caregivers and healthcare providers tailor effective management strategies. Here is a comparison of types often seen in people with dementia.

Type of Incontinence Primary Cause in Dementia Common Symptoms Management Strategies
Urge Neurological damage to brain's control centers, resulting in an overactive bladder. A sudden, intense urge to urinate followed by involuntary leakage. Medications (carefully selected), timed voiding schedule, and avoiding bladder irritants like caffeine.
Functional Impaired mobility, cognitive decline preventing recognition or response to toilet needs. Inability to reach the toilet in time or find the correct place to urinate. Environmental modifications, regular toileting schedules, easy-to-remove clothing, and commodes.
Overflow An overfilled bladder due to poor bladder muscle contraction, often seen with BPH or other blockages. Constant dribbling of urine. Addressing the underlying cause (e.g., BPH) and specific medication adjustments.

Practical Strategies for Caregivers

Effective management of incontinence is a collaborative effort between caregivers and healthcare professionals. Here are several practical strategies.

  1. Maintain a Routine: Creating a regular toileting schedule, such as every two hours, can prevent many accidents. Observe the individual's patterns to find the best times.
  2. Make the Environment Accessible: Clearly label the bathroom door, use contrasting colors for the toilet seat, and ensure a clear, well-lit path to the bathroom, especially at night. A commode can be a lifesaver for nighttime use.
  3. Choose Appropriate Clothing: Easy-to-remove clothing with Velcro closures or elastic waistbands can significantly reduce the time and effort required for toileting, minimizing accidents.
  4. Use Incontinence Products: High-quality pads, briefs, and mattress protectors can provide peace of mind and simplify cleanup. Explain their use with respect and dignity.
  5. Address Diet and Fluid Intake: Encourage adequate fluid intake throughout the day but reduce it in the evening to prevent nocturia. Ensure a high-fiber diet to prevent constipation.
  6. Monitor for Signs of Infection: Watch for nonverbal cues that may indicate a UTI, such as increased confusion, agitation, or restlessness. Get a medical evaluation if these symptoms appear.
  7. Practice Patience and Compassion: Accidents are not intentional and can be embarrassing for the individual. A calm and reassuring approach helps preserve their dignity and reduces anxiety.

Conclusion

While incontinence is a frequent challenge associated with dementia, it is not an insurmountable one. It results from a complex interplay of neurological, behavioral, and physical changes. Through a compassionate and proactive approach, caregivers can effectively manage symptoms and support the individual's comfort and dignity. Open communication with healthcare providers is vital to rule out treatable causes and find the most appropriate care plan. Caregivers seeking further guidance and support should consult reputable resources like the Alzheimer's Association.

By staying informed and adapting strategies as the disease progresses, it is possible to maintain a high quality of life for individuals with dementia and their caregivers. This involves understanding the root causes and approaching each incident with empathy and a problem-solving mindset rather than frustration.

Frequently Asked Questions

No, incontinence is not an inevitable outcome of dementia, but it becomes more common as the disease progresses into the middle and later stages. While some individuals may never experience it, many will, and for a variety of reasons related to their cognitive and physical decline.

Functional incontinence is when a person with normal bladder function has an accident because of physical or cognitive impairments. For someone with dementia, this could mean they can't find the bathroom, can't get there in time due to mobility issues, or don't recognize the urge to go.

Yes, some medications used to treat dementia, such as certain acetylcholinesterase inhibitors, can have side effects that affect bladder control. It is important to discuss any incontinence concerns with a doctor to determine if medication is a contributing factor and explore alternatives.

In people with dementia, a urinary tract infection (UTI) may not present with typical symptoms. Instead, look for behavioral changes like increased confusion, agitation, or restlessness. A sudden increase in incontinence is a key indicator that a UTI might be present, and a doctor should be consulted immediately.

Easy-to-remove clothing is best. This includes items with elastic waistbands, zippers, and Velcro closures, which can be managed more quickly than buttons and snaps. This reduces the time needed for toileting and helps preserve the individual's independence.

Managing nighttime incontinence can be achieved through several strategies. Ensure a clear, well-lit path to the bathroom, use a bedside commode, and adjust fluid intake to be lower in the evening. Protective bedding, such as waterproof mattress covers and pads, can also be very helpful.

Yes, communication difficulties significantly impact incontinence. A person with dementia may lose the ability to verbalize their need to use the bathroom. Caregivers should be vigilant for nonverbal cues like restlessness, pacing, or unusual facial expressions that might signal a need for toileting assistance.

References

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. 7

Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.