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Do I have to pay care home fees if I have dementia? Expert answers

4 min read

According to the Alzheimer's Society, more than 900,000 people in the UK are living with dementia, and many families are asking: Do I have to pay care home fees if I have dementia? This authoritative guide will provide the clarity you need on a complex and emotional issue.

Quick Summary

Your responsibility for care home fees with a dementia diagnosis is determined through a financial assessment of your income and capital, not by the diagnosis alone. The outcome depends heavily on your specific financial situation, asset ownership, and the assessed level of your health needs.

Key Points

  • Financial Assessment is Key: Your obligation to pay is determined by a financial assessment of your assets and income, not the dementia diagnosis itself.

  • Home Value Included: The value of your property is usually counted as a capital asset unless a spouse or dependent relative continues to live there.

  • NHS Continuing Healthcare is Not Means-Tested: If your primary need for care is complex and health-related, the NHS may cover costs, irrespective of your finances.

  • Beware of Asset Deprivation: Intentionally reducing your assets to avoid care fees can lead to the local authority counting those assets anyway, as if they were never given away.

  • Plan Ahead with an LPA: Establishing a Lasting Power of Attorney for financial affairs is a crucial step for managing your finances if you lose mental capacity.

In This Article

How financial assessments work with a dementia diagnosis

When a person with dementia requires residential care, the first step is usually a needs assessment conducted by the local authority. This determines the type of care required. Following this, a financial assessment (or means test) is performed to evaluate how much the person must contribute towards their care.

The means test and its thresholds

The local authority reviews the individual's income and capital to see if they fall above or below a specific threshold. These thresholds determine whether the local authority will contribute to the cost of care. For example, if your capital is above the upper limit, you are expected to self-fund your care entirely until your capital falls below this amount. If your capital is below the lower limit, the local authority will cover all your care costs (though a contribution from income may be required). For those in between, a sliding scale contribution is calculated.

Capital typically includes:

  • Savings and investments
  • Property (including your home)
  • Pensions and other assets

Income includes:

  • State pensions
  • Other pension payments
  • Benefits

It's important to remember that having a dementia diagnosis does not automatically exempt you from this process. It is your financial situation, as assessed through this test, that is the deciding factor.

When the local authority will pay for your care

If the financial assessment reveals that a person with dementia has capital and income below the set thresholds, the local authority will arrange and fund their care. They are obligated to provide a care home placement that meets the person's assessed needs. However, the local authority will only pay their standard rate, which might not be enough for a preferred care home. In such cases, a 'top-up' fee, paid by a third party (like a family member), may be required.

What happens if you own your home?

The home is one of the most significant assets considered during the financial assessment. Its value is included unless certain conditions are met, such as if a spouse or dependent relative still lives there. If the person is in long-term residential care and no one else lives in the property, its value will be counted after a 12-week grace period. This often leads to a situation where the family must sell the home to pay for care. Alternatively, a deferred payment agreement can be set up, allowing the local authority to cover the costs, with the debt repaid from the property sale later.

Can you get help from the NHS?

Yes, in certain circumstances, the NHS may cover care costs. This is known as NHS Continuing Healthcare (CHC) and is not means-tested. To be eligible, a person's primary need for care must be due to a complex medical condition, not social care. A person with dementia might be eligible if their needs are extensive, complex, or unpredictable. A full assessment by the NHS is required. Even if a person with dementia does not qualify for full CHC, they may still be eligible for NHS-funded Nursing Care (FNC), a weekly payment made by the NHS towards the cost of registered nursing care in a care home.

NHS Continuing Healthcare vs. Local Authority Funding

Feature NHS Continuing Healthcare (CHC) Local Authority Funding
Funding Source National Health Service (NHS) Local Authority (means-tested)
Basis for Funding Primary health needs Social care needs
Means-Tested? No Yes
Coverage All care, including accommodation, if eligible Care up to their standard rate, if eligible
Who Arranges Care NHS Local Authority
Review Process Regular reassessments Regular financial and needs reviews

Understanding asset deprivation and its implications

Asset deprivation occurs when a person intentionally reduces their assets to avoid paying for care home fees. A local authority will investigate if they suspect assets were deliberately given away. The authority can then act as if the person still owns the asset. Actions that might be considered deprivation include giving away property, transferring large sums of money to family, or spending money recklessly. With a dementia diagnosis, the timing of these actions is crucial, as the person's mental capacity at the time of transfer will be a key consideration.

Planning ahead for future care costs

Financial planning can significantly ease the burden of care home fees. Key steps include:

  1. Setting up a Lasting Power of Attorney (LPA): An LPA for property and financial affairs allows a trusted person to make decisions on your behalf if you lose mental capacity. This is critical for managing finances related to care.
  2. Long-Term Care Insurance: Purchasing long-term care insurance can help cover future costs. Policies vary, so it's essential to research and understand the coverage.
  3. Reviewing Savings and Investments: A financial advisor can help structure assets to provide for future care while protecting as much as possible for inheritance.
  4. Equity Release: If appropriate, releasing equity from your home can be an option, though this has significant implications and should be considered carefully.

Navigating the financial maze of dementia care is challenging, but understanding your rights and options is the first step towards a manageable solution.

To learn more about your rights and options, consult the official guidance provided by the UK Government on paying for residential care.

Frequently Asked Questions

No, a dementia diagnosis does not automatically grant you free care. Your financial situation, including your income and capital, will still be subject to a means test to determine your contribution.

A financial assessment (or means test) is a review conducted by your local authority to determine how much you can afford to contribute to your care. If you have dementia and need residential care, this test will determine if the local authority pays for part or all of your fees.

The value of your home is typically included in the financial assessment, potentially requiring its sale to fund care. However, exceptions exist if a spouse or other dependent relative lives there. You may also be able to arrange a deferred payment agreement.

Yes, if the person with dementia has a 'primary health need', they may be eligible for NHS Continuing Healthcare (CHC), which is fully funded by the NHS and is not means-tested. A formal assessment is required to determine eligibility.

Asset deprivation is the deliberate act of giving away assets to avoid care home fees. A local authority can investigate and can still count the value of those assets in its financial assessment if it believes the action was intentional. With dementia, the person's mental capacity at the time of the action is a key consideration.

Yes, it is highly recommended to set up an LPA. A dementia diagnosis can lead to loss of mental capacity. An LPA allows a trusted person to manage your financial affairs and ensure your assets are handled according to your wishes.

Residential care homes offer personal care and support, while nursing homes provide 24/7 care from a qualified registered nurse. The cost of a nursing home is generally higher, but depending on health needs, some costs may be covered by the NHS through Funded Nursing Care (FNC).

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.