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Do people with dementia live in nursing homes? An overview of care options

4 min read

According to one recent study, among adults aged 70 and older living in nursing homes, 70% had dementia in 2019. While this statistic confirms that many people with dementia live in nursing homes, it is crucial to understand that it is far from the only available option. The decision of where a person with dementia lives depends on several factors, including the stage of the disease, their specific care needs, and financial considerations.

Quick Summary

This article explores the different living arrangements available for individuals with dementia, from in-home and assisted living to specialized memory care and nursing homes. It outlines the benefits and considerations for each option.

Key Points

  • Nursing homes are for advanced stages: People with advanced dementia, especially those with significant medical needs or safety issues like wandering, often require the 24/7 skilled care provided by nursing homes.

  • Not all people with dementia are in nursing homes: A vast number of individuals with dementia, particularly in the earlier stages, live at home or in other residential care settings like assisted living.

  • Specialized memory care is a key option: Memory care units offer a safe, structured environment with staff specifically trained to address the unique challenges of dementia, including managing wandering and behavioral changes.

  • Care depends on disease stage and needs: The most suitable care setting depends heavily on the progression of the disease, the level of assistance required for daily tasks, and the person's safety.

  • Consider all options with professional guidance: Families should conduct a thorough needs assessment and compare options like in-home care, assisted living, and memory care, often with the help of a geriatric care manager, to find the best fit.

  • Transitioning from home is difficult but sometimes necessary: Moving a loved one to a residential facility is a major life change, but it can provide greater peace of mind that they are safe and receiving proper care.

In This Article

Who with dementia lives in nursing homes?

While many people with dementia do reside in nursing homes, it is often in the later, more advanced stages of the disease when round-the-clock medical supervision and total care are required. Nursing homes are facilities for individuals who cannot be cared for at home and require 24/7 skilled medical care. For those with dementia, this move is often prompted by significant behavioral issues, safety concerns like wandering, or the need for constant assistance with daily activities.

Statistics show that dementia care is widespread across U.S. nursing homes, with nearly half of long-stay residents being affected. In fact, facilities with a higher concentration of residents with dementia sometimes offer more specialized care units for those with memory impairments, indicating a growing focus on meeting these specific needs.

Residential care options beyond nursing homes

For families exploring living arrangements for a loved one with dementia, several alternatives to traditional nursing homes exist. These options cater to different stages of the disease and varying levels of required care.

In-home care

For individuals in the early or even moderate stages of dementia, remaining at home in a familiar environment is often possible and preferable.

  • Companion services: Provide social interaction and supervision to combat isolation.
  • Personal care services: Offer direct help with activities like bathing, dressing, and grooming.
  • Skilled care services: Provide medical assistance from licensed professionals, such as wound care or medication management, when ordered by a doctor.

Assisted living facilities

Assisted living is a residential option for those who need some help with daily tasks but can still maintain a degree of independence.

  • Assistance with daily tasks: Includes help with meals, housekeeping, and medication management.
  • Social programs: Provide opportunities for residents to engage with others and participate in activities.
  • Not a long-term solution for advanced dementia: Many standard assisted living facilities are not equipped to handle advanced-stage dementia and may require a resident to move if their needs increase significantly.

Memory care units

Specialized memory care units are designed specifically for individuals with dementia and can be either standalone facilities or separate units within assisted living or nursing homes.

  • Secure environment: Features alarmed doors and enclosed outdoor spaces to prevent wandering.
  • Specially trained staff: Employees receive specific training on dementia care, including managing difficult behaviors and enhancing communication.
  • Structured routines and activities: Daily schedules and cognitive-enhancing activities, like music or art therapy, help reduce anxiety and confusion.

Comparison of dementia care options

When considering the best care environment, comparing the different options based on key factors can be helpful. The table below outlines the primary distinctions between three main types of residential care.

Feature Assisted Living (Standard) Memory Care Unit Skilled Nursing Home
Best for Early-stage dementia or those needing minimal support with daily tasks. Moderate to advanced dementia, including behavioral symptoms and wandering. Advanced dementia and significant medical needs requiring 24/7 skilled nursing.
Environment Apartment-style living with a focus on independence. Secure, structured environment designed to minimize confusion and wandering. Hospital-like setting focused on medical and custodial care.
Staffing General care staff, with specialized training not guaranteed for dementia. Staff receive specialized, ongoing training specifically for dementia care. Highly trained medical staff, including nurses and therapists, are available 24/7.
Security Standard security measures, not designed to prevent wandering. Enhanced security, including alarmed doors and secured outdoor spaces. Secure environment to ensure resident safety.
Cost Typically less expensive than memory care or nursing homes, but varies widely. Higher cost due to specialized care and staffing. Often the most expensive option, but may be covered by Medicaid for eligible individuals.

Making the decision: A personalized approach

The best path for a person with dementia is a highly personal decision that depends on their unique needs, the progression of the disease, and available resources. A needs assessment from a knowledgeable professional, such as a geriatric care manager or a dementia care advisor, is often the first step in determining the most appropriate senior living option.

Conversations with family members should focus on creating a plan that prioritizes the individual's safety, dignity, and quality of life. When touring facilities, it is advisable to visit multiple times, including during different times of the day, to observe the staff's interactions and the overall environment. The goal is to ensure the chosen location can adapt to the person's changing needs, providing stability and specialized support as their condition evolves.

Ultimately, whether a person with dementia lives at home, in assisted living, or in a nursing home, the focus is on creating a supportive environment. The decision to move to a facility is often a painful but necessary step to ensure safety and provide the specialized care that can no longer be managed at home. Consulting organizations like the Alzheimer's Association can provide additional resources and support during this challenging transition.

Conclusion

While many people with advanced dementia do live in nursing homes, it is just one of many options for long-term care. In-home care, assisted living, and dedicated memory care facilities offer different levels of support tailored to the specific needs of individuals with dementia at various stages of the disease. The right choice depends on a careful evaluation of the person's symptoms, safety needs, and financial resources. Consulting with professionals and involving family members in the decision-making process are critical steps toward ensuring a loved one receives the most appropriate and compassionate care.

Frequently Asked Questions

A nursing home provides 24/7 skilled medical care and is best for those with advanced dementia who have significant medical needs. A memory care unit, which may be part of an assisted living facility or standalone, offers a secure environment and specializes in cognitive support for people with memory loss but does not provide the same level of medical care as a nursing home.

Yes, many people with early-stage dementia can remain at home with the right support system. In-home care services can provide assistance with daily tasks, companionship, and medical needs, allowing individuals to stay in a familiar environment.

Signs that it may be time for a move include increased safety concerns, such as wandering or frequent falls, a caregiver experiencing physical or emotional burnout, and the person with dementia requiring more intensive care than can be safely provided at home.

Assisted living can be an option for a person with early to moderate dementia who needs help with some daily activities but not extensive medical care. However, as the disease progresses, a move to a specialized memory care unit may be necessary, as many standard assisted living facilities are not equipped for advanced dementia.

Yes, memory care facilities typically cost more than standard assisted living due to the specialized nature of the care provided. The higher cost covers enhanced security, specialized staff training, and tailored programming for individuals with memory loss.

Affording dementia care often involves a combination of personal savings, long-term care insurance, and potentially government programs. Medicaid may cover some or all nursing home expenses for eligible individuals, while organizations like the Alzheimer's Association offer resources for finding financial assistance.

The main benefit of a specialized memory care unit is the combination of a secure environment and staff with specific training to handle the challenges of dementia. This creates a predictable, low-stress setting with activities tailored to engage residents, which can improve their quality of life.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.