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How do I track my elderly parent with dementia? A guide to safe and ethical monitoring

5 min read

According to the Alzheimer's Association, up to 60% of people with dementia will wander at some point, a behavior that can lead to dangerous situations and significant caregiver stress. If you're wondering "How do I track my elderly parent with dementia?" you are seeking to balance safety with independence, and modern technology offers a range of potential solutions from GPS devices to smartphone applications. This guide explores the options, legal considerations, and best practices for safe and ethical tracking.

Quick Summary

This guide provides an overview of technological and non-technological methods for tracking an elderly parent with dementia, including GPS trackers, smartphone apps, and home monitoring systems. It discusses the critical ethical and legal aspects of monitoring and offers practical tips for implementation.

Key Points

  • Start the conversation early: Discuss tracking solutions with your parent and family members in the early stages of dementia, while the parent can still give informed consent.

  • Choose the right technology: Options range from GPS watches and discreet shoe inserts to smartphone apps and radio frequency (RF) devices, depending on your parent's mobility and willingness to wear a tracker.

  • Prioritize safety and dignity: Balance the need for security with your parent's right to privacy and autonomy, avoiding tracking without clear consent where possible.

  • Combine tech with non-tech strategies: Use tracking devices alongside other safety measures like medical ID bracelets, home modifications, and informing neighbors and local police.

  • Address legal considerations: If your parent cannot consent, seek legal authority through a guardianship or power of attorney, consulting with an elder law attorney.

  • Develop a comprehensive care plan: Integrate tracking into a broader strategy that includes maintaining daily routines, engaging in activities, and ensuring continuous supervision, rather than relying solely on technology.

In This Article

Understanding the need for tracking solutions

For many families, the compulsion of a loved one with dementia to wander is a significant and terrifying concern. Wandering can occur at any time, leading to the person becoming disoriented and lost, even in familiar surroundings. The goal of tracking is not to limit freedom, but to enhance safety and provide peace of mind for both the person with dementia and their caregivers. A well-considered tracking strategy can reduce the risk of harm and even delay the need for more restrictive care settings.

Technological solutions for tracking

There are numerous devices and services available to help track a person with dementia. Choosing the right one depends on factors like the person's stage of dementia, their lifestyle, and where they live.

  • Wearable GPS Trackers: These are some of the most common options and come in various forms, including watches, pendants, and clip-on devices. Many feature a geofencing function, which sends an alert to caregivers' phones when the wearer exits a predefined 'safe zone'. Some models also include an SOS button and two-way communication.
  • GPS-Enabled Shoes: For individuals who may remove a watch or pendant, GPS SmartSoles are discreet devices that fit into a shoe. This ensures the tracker remains with the person whenever they are wearing their shoes, an important consideration for those with more advanced memory loss.
  • Smartphone Applications: For parents who still carry a smartphone, built-in features like Apple's 'Find My' or Google's 'Find My Device' are free and simple to use. For more advanced options, apps can provide real-time location tracking and geofencing alerts, but this relies on the person remembering to carry their phone and keep it charged.
  • Radio Frequency (RF) Tracking: This technology is often used in partnership with local law enforcement or community programs, such as Project Lifesaver. A person wears a small, battery-operated transmitter, and if they go missing, a special receiver is used to pick up the radio signal. This is particularly useful for areas with limited cellular coverage.
  • Home Monitoring Systems: For at-home tracking, movement sensors can be placed under mattresses or on floor mats to alert caregivers if the person leaves their bed or enters a restricted area during the night. Smart doorbells can also chime when a door is opened.

Non-technological and preventative strategies

Technology is only one part of a comprehensive safety plan. Other non-tech measures are equally important for preventing wandering and ensuring a safe return.

  • Personal Identification: A medical ID bracelet with a name, address, and emergency contact number is a simple yet effective tool. For those who might remove bracelets, clothing labels with similar information can be discreetly sewn in. Organizations like the Alzheimer's Association offer identification systems with a 24/7 emergency response service.
  • Home Safety Modifications: Adding locks that are difficult to operate or placed high up on doors can deter a person from leaving without supervision. Camouflaging exits by painting doors to blend with the wall or placing a dark mat in front of an exit can sometimes confuse individuals with dementia.
  • Community Awareness: Informing trusted neighbors and local police about your parent's condition and tendency to wander is a crucial step. Providing police with a recent photograph and a physical description can significantly speed up a search and rescue operation.

Ethical and legal considerations

Before implementing any tracking solution, it is vital to consider the ethical and legal implications, particularly regarding consent and privacy.

Consent and autonomy

Ideally, discussions about tracking devices should happen in the early stages of dementia, while your parent can still participate in the decision-making process. If the person is no longer able to give informed consent, the decision falls to a legal guardian or someone with power of attorney for health and social care. It is critical to balance the need for safety with the individual's right to privacy and independence.

Legal authority

If a parent is incapacitated and has not appointed a power of attorney, family members may need to petition the court for a guardianship or conservatorship to legally authorize decisions on their behalf. Elder law attorneys can provide guidance on these legal processes. In some cases, surveillance laws differ between states, particularly concerning audio recordings, so it is important to research local regulations.

Comparison of tracking technologies

Feature Wearable GPS Trackers GPS-Enabled Shoes Smartphone Apps RF Tracking (e.g., Project Lifesaver)
Discreetness Depends on style (e.g., watch vs. pendant) Highly discreet; built into footwear Not discreet; relies on person carrying a phone Fairly discreet (bracelet or anklet)
Accuracy Generally high outdoors; can be affected by urban environments Generally high outdoors; less accurate indoors Varies based on phone signal; can offer A-GPS for indoor tracking Very effective in locating a person within a few miles
Battery Life Requires frequent charging; varies by device Typically long-lasting; can last for weeks Drains phone battery; depends on phone usage Can last for an extended period; requires regular maintenance checks
Dependability Can be removed or lost by the wearer Difficult for the wearer to remove Can be forgotten or left behind Less prone to being removed than a watch or pendant
Cost Activation fees and monthly subscriptions common High initial cost; can have service fees Often free with existing phone service; additional app costs vary Often low-cost or free through community programs; relies on local agencies

Creating a balanced care plan

The decision to implement tracking technology should be part of a broader, well-rounded care strategy. Relying solely on technology can lead to a decrease in physical engagement and supervision. It's crucial to combine technological tools with other safety measures and ongoing supervision to provide the best possible care. For instance, a tracker is a valuable supplement to a predictable daily routine and engaging activities that help reduce restlessness.

How to introduce tracking to a parent

Approaching the topic of tracking requires sensitivity and transparency. Begin the conversation early, while your parent can still understand and participate. Explain that the device is for their safety, not to control them. Reassure them that it can allow them to maintain their independence longer. Discussing various options, such as watches, jewelry, or shoe inserts, can give them a sense of control over the decision.

Conclusion

Navigating the challenge of how to track my elderly parent with dementia involves a careful balance of safety, independence, and ethical considerations. Modern technologies like GPS wearables, discreet shoe inserts, and smartphone apps offer robust solutions for monitoring a loved one's whereabouts and responding quickly in an emergency. However, no single device is a foolproof replacement for vigilant supervision and a holistic safety plan that includes low-tech strategies, home modifications, and community involvement. Ultimately, a transparent and respectful approach that prioritizes your parent's dignity and involves them in the decision-making process is the best path forward. For legal advice regarding consent and guardianship, consulting an experienced elder law attorney is highly recommended.

Visit the Alzheimer's Association website for additional resources on dementia safety and technology.

Related Resources

Frequently Asked Questions

The 'best' way to track a parent with dementia depends on their specific needs, but popular and effective methods include wearable GPS trackers (watches or pendants), discreet GPS shoe inserts, and community-based RF tracking programs like Project Lifesaver.

The legality of tracking without consent is complex and depends on state laws. If your parent lacks the capacity to provide informed consent, a legal guardian or person with power of attorney may be able to authorize tracking. It is highly recommended to consult an elder law attorney for legal guidance.

If your parent refuses a wearable device, consider alternatives such as GPS-enabled shoe inserts or sensors placed on beds and doors that can alert you to movement. For those who carry a smartphone, you may be able to use built-in location services, provided they remember to keep it with them.

Yes, if your parent uses a smartphone, you can use built-in, free location services like Apple's 'Find My' or Google's 'Find My Device'. However, these rely on the parent having their phone and keeping it charged, which may not be reliable for those with dementia.

Pros include enhanced safety, reduced caregiver stress, and potentially greater independence for the person with dementia. Cons include concerns about privacy, potential loss of autonomy, technical limitations like battery life, and the risk of over-reliance on the technology.

Start early, explain that the device is for their safety and allows them more independence, not less. Be transparent, discuss different options, and listen to their concerns to involve them in the decision-making process.

For nocturnal wandering, consider a combination of strategies including wearable trackers with reliable battery life and home monitoring systems like bed or floor sensors. You can also implement geofencing to receive alerts if they leave a safe zone at night.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.