Awareness Lanyards: What is the Hidden Disabilities Sunflower Scheme?
For many with dementia, visible signs of a disability may not be apparent. This is where awareness lanyards, particularly the Hidden Disabilities Sunflower Lanyard, come into play. The scheme originated in the UK and has expanded globally, with the sunflower acting as a discreet visual cue to indicate to staff and the public that the wearer has a non-visible disability and may require additional time, patience, or assistance. These are not tracking devices, but they serve as a form of non-verbal communication.
Benefits and Considerations of the Sunflower Lanyard
For the person with dementia, wearing a sunflower lanyard can be empowering, giving them confidence while navigating busy spaces like airports, supermarkets, or public transport. For the public, it raises awareness and encourages a more understanding response to potentially confused or anxious behavior. However, it is essential to consider both the pros and cons:
- Benefits:
- Promotes patience and understanding from staff and the public.
- Empowers the individual with a sense of control.
- Acts as a discreet identifier without requiring verbal explanation.
- Considerations and Risks:
- The scheme's awareness is not universal, especially in less structured public environments.
- It does not provide location tracking in the event of a wandering episode.
- Some experts express concern that wearing such an identifier could make a vulnerable adult more identifiable to those who might exploit them.
GPS-Enabled Lanyards and Pendants
While awareness lanyards are for communication, GPS-enabled lanyards and pendants are designed specifically for location tracking. These devices are often small, lightweight gadgets worn around the neck, and they contain GPS and cellular technology. The location can be monitored by caregivers through a smartphone app, providing real-time updates and alerts.
Key features of these devices often include:
- Real-Time Tracking: Allows caregivers to see the wearer's location on a map at any time.
- Geofencing: Enables the creation of virtual 'safe zones.' Caregivers receive an instant alert if the wearer leaves or enters these designated areas.
- SOS Button: A one-touch button on the device that the wearer can press to send an alert to emergency contacts.
- Two-Way Communication: Some models allow caregivers to speak directly with the wearer through the device, which can be comforting in a moment of confusion.
- Discreet Design: Many pendants are styled to look like everyday jewelry to reduce stigma and the likelihood of the person removing it.
Alternatives to Traditional Lanyards and Pendants
Not every person with dementia will be comfortable wearing a lanyard or pendant. For these situations, many effective alternatives offer varying levels of discretion and security:
- GPS Smartwatches: Devices like the Tranquil GPS Watch or Theora Connect resemble regular watches but include robust GPS tracking, geofencing, and SOS features. Some feature tamper-proof locking straps to prevent removal.
- Clip-On GPS Tags: The Jiobit Smart Tag is a tiny, discreet tag that can be clipped onto clothing, a belt loop, or a keychain. Its small size makes it less noticeable to the wearer.
- GPS Shoe Inserts: For individuals who might resist or forget to wear a visible device, shoe inserts with embedded GPS trackers offer an extremely discreet option. The device is hidden and is almost always with them when they are mobile.
- Medical Alert Bracelets and Cards: Non-electronic medical IDs, such as bracelets or wallet cards, can contain essential information and emergency contacts. These are passive forms of identification and do not provide location tracking but can assist first responders.
Choosing the Right Tracking Device: Key Factors to Consider
Selecting the best device is a deeply personal decision that depends on the individual's specific needs, daily habits, and stage of dementia. Families should consider these important factors:
- Ease of Use for the Wearer: Is the device simple and comfortable to wear? Is the watch face clear and uncluttered? Some people may be agitated by new technology.
- Caregiver Accessibility: How easy is the companion app to use? Does it support multiple caregivers? How quickly does it send alerts?
- Battery Life: Longer battery life is crucial, as remembering to charge a device can be a challenge for someone with dementia. Some devices offer extended battery life of up to a week or more.
- Removability: For those prone to removing objects, devices with non-removable fasteners (like locking watch clasps or pins for clothing) or discreet placement (like shoe inserts) may be best.
- Two-Way Communication: The ability to talk with a loved one directly through the device can be invaluable for de-escalating a confusing situation.
Comparison of Dementia Safety and Tracking Devices
| Feature | Awareness Lanyard | GPS Pendant/Lanyard | GPS Smartwatch | GPS Clip-On Tag | Medical ID Bracelet |
|---|---|---|---|---|---|
| Tracking Ability | None | Real-time GPS/Cellular | Real-time GPS/Cellular | Real-time GPS/Cellular | None |
| Discretion | High | Medium | Medium to High | High | Low to Medium |
| Comfort | High | High | Medium | High | High |
| Wandering Prevention | No (raises awareness) | Yes (tracking, alerts) | Yes (tracking, alerts) | Yes (tracking, alerts) | No (identification) |
| Two-Way Communication | No | Optional | Optional | Optional | No |
| Battery Life | N/A | Typically short (1-3 days) | Varies (1-7 days) | Long (up to 30 days) | N/A |
The Ethical Considerations of Tracking a Loved One
Using any tracking technology for a person with dementia involves balancing their safety with their privacy, autonomy, and dignity. Discussions about tracking should ideally occur in the earlier stages of dementia when the individual can participate in the decision-making process and give consent.
When consent is not possible due to cognitive decline, decisions should be made in the person's best interests, with family and professional caregivers involved. The goal is to use the technology as a tool to support independence and safety, not as a restrictive measure. Regular reviews of the care plan and the device's usage are important as the person's needs and condition change. Organizations like the Alzheimer's Association provide resources on navigating these complex issues, emphasizing person-centered care.
Conclusion: Finding the Right Balance for Safety and Dignity
While a basic awareness lanyard is a valuable tool for public understanding, it is not a substitute for a tracking device in managing the risks associated with dementia-related wandering. For many, combining a discreet medical ID with a reliable GPS tracking solution offers the best protection. The market provides numerous options, from smartwatches and pendants to almost invisible shoe inserts, each with unique features for different stages of dementia. Ultimately, the best solution respects the individual's dignity, promotes their independence, and gives caregivers the peace of mind they need to provide the best possible care. For comprehensive resources on dementia care and safety, visit the Alzheimer's Association website: https://www.alz.org/.