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What's the act that guarantees certain rights to residents in long-term facilities?

5 min read

In 1987, the Institute of Medicine released a damning report revealing widespread abuse and neglect in U.S. nursing homes, leading to significant federal intervention. This landmark response, the Nursing Home Reform Act (NHRA), defines what's the act that guarantees certain rights to residents in long-term facilities, establishing a crucial framework of protections.

Quick Summary

The federal Nursing Home Reform Act of 1987 is the landmark legislation that guarantees a comprehensive set of rights to residents in long-term care facilities, emphasizing dignity, self-determination, and quality of life.

Key Points

  • Federal Mandate: The Nursing Home Reform Act of 1987 (NHRA) guarantees resident rights in long-term care facilities that receive Medicare or Medicaid funding.

  • Core Rights: Key protections include the right to dignity, privacy, self-determination, and freedom from abuse, neglect, and physical or chemical restraints.

  • Care Planning: Facilities must conduct comprehensive resident assessments and create individualized care plans with resident and family input.

  • Enforcement: The NHRA is enforced through regular, unannounced state inspections, and non-compliant facilities risk penalties and loss of federal funding.

  • Advocacy Support: The Long-Term Care Ombudsman Program provides trained advocates to help residents and families understand and exercise their rights.

  • Grievance Process: Residents have the right to voice grievances about their care or facility operations without fear of reprisal.

In This Article

The Landmark Legislation: A Federal Mandate

The Nursing Home Reform Act of 1987 (NHRA) is the federal law that transformed the quality of care and set minimum standards for nursing homes across the United States. A key component of the Omnibus Budget Reconciliation Act of 1987, this law was a direct response to a 1986 study that exposed alarming levels of neglect, abuse, and substandard conditions within the industry. The legislation created a Residents' Bill of Rights, ensuring that all residents are treated with respect and dignity and receive the necessary services to attain or maintain their highest practicable physical, mental, and psychosocial well-being. For any nursing home to receive funding through Medicare or Medicaid, it must comply with these stringent federal requirements, which are enforced through regular, unannounced state inspections.

Core Protections Under the NHRA's Bill of Rights

The NHRA outlines specific, enforceable rights for every resident. These rights fundamentally change the power dynamic between the facility and the individual, prioritizing the resident's personal preferences and needs.

Freedom and Self-Determination

  • Right to Independent Choices: Residents have the right to make their own decisions regarding their daily schedule, activities, and medical care. This includes choosing their own physician and participating in the development of their care plan.
  • Freedom from Restraints: Both physical and chemical restraints can only be used under specific, medically necessary conditions and never for staff convenience or discipline.
  • Privacy and Confidentiality: Residents are guaranteed privacy in their living quarters, medical care, and correspondence. Their personal health information is protected under federal HIPAA regulations, and their records must be kept confidential.

Respect, Dignity, and Security

  • Freedom from Abuse and Neglect: The act explicitly protects residents from any form of abuse, mistreatment, or neglect. It defines abuse broadly to include physical, sexual, and mental harm, as well as financial exploitation.
  • Right to Grievances: Residents have the right to voice their complaints and concerns about their care or the facility's policies without fear of retaliation. Facilities must have a clear process for handling and resolving grievances.
  • Personal Possessions and Property: Residents have the right to retain and use their personal belongings and to be notified before a room or roommate change. The facility is responsible for protecting their property from theft.

Communication and Access

  • Access to Information: Residents must be fully informed of their medical condition, proposed treatments, and any changes in care or status. This information must be provided in a language and manner they can understand.
  • Communication and Visits: Residents have the right to communicate freely with others, including receiving visitors at any reasonable hour and refusing visits if desired. They also have access to advocacy groups and the Long-Term Care Ombudsman.

The Role of Care Planning and Facility Standards

The NHRA requires facilities to go beyond simply providing care; they must deliver services designed to promote each resident's highest level of well-being. This is achieved through detailed assessments and care plans.

Comprehensive Care Plans

Upon admission, and regularly thereafter, a comprehensive assessment of each resident's functional capacity and needs must be conducted. Based on this assessment, the facility must develop a personalized, written care plan with the resident's input, or that of their family or legal representative. This plan details the services required, from dietary needs to rehabilitation, and is regularly reviewed and updated.

Facility and Staffing Standards

The Act also mandates standards for facilities themselves, including proper staffing levels, particularly for larger facilities. It requires that facilities with more than 120 beds employ a full-time social worker. These staffing requirements are intended to ensure residents receive proper nutrition, medication, and social and rehabilitation services.

Comparing Protections: NHRA vs. State Regulations

While the NHRA sets a foundational federal standard for nursing home rights, state regulations can often supplement and expand upon these protections. The table below outlines some key differences and overlaps.

Feature Federal NHRA State Regulations (varies by state)
Application Applies to all nursing homes receiving Medicare or Medicaid funding. Can apply to a wider range of long-term care facilities, including assisted living and residential care homes.
Protection Scope Comprehensive rights for dignity, privacy, self-determination, and freedom from abuse. Often mirrors federal protections but may add facility-specific rules or stronger enforcement measures.
Enforcement Oversight by state survey agencies through unannounced inspections. State-level licensing bodies and ombudsman programs investigate and enforce compliance.
Coverage Primarily focused on nursing homes due to funding requirements. May include specific mandates for staffing ratios, medication administration, and grievance procedures in non-nursing-home settings.

The Role of the Long-Term Care Ombudsman Program

For residents and families, navigating facility issues and understanding their rights can be challenging. This is where the Long-Term Care Ombudsman Program plays a crucial role. This federal program, established under the Older Americans Act, is present in every state.

An ombudsman is a trained and certified advocate who works directly with residents to investigate and resolve complaints and concerns. They serve as a confidential resource, assisting residents in exercising their rights without fear of retaliation. Families can contact their local ombudsman for guidance on everything from understanding care plans to filing formal complaints with state agencies.

For more information on the program and to find your local ombudsman, visit the Administration for Community Living website.

Conclusion

The Nursing Home Reform Act of 1987 remains the bedrock of resident rights in long-term care. By codifying protections for dignity, privacy, and self-determination, it holds facilities receiving federal funds accountable for providing quality, person-centered care. For residents and their families, understanding these rights and leveraging resources like the Long-Term Care Ombudsman Program are essential steps in ensuring that the guarantees of this landmark act are upheld, fostering an environment of respect and well-being for all.

How to Report a Violation

If you suspect a violation of a resident's rights, several steps can be taken to ensure the issue is addressed effectively:

  1. Directly address the facility: For minor issues, speaking with the charge nurse or administrator may resolve the problem quickly.
  2. Contact the Long-Term Care Ombudsman: For unresolved issues or serious complaints, the ombudsman is a confidential advocate who can intervene.
  3. File a state complaint: The state agency responsible for health care licensing and certification investigates serious complaints and may issue citations and fines.
  4. Consider legal assistance: In cases involving severe abuse, neglect, or harm, an attorney specializing in elder law can provide guidance on legal options.

Frequently Asked Questions

The primary purpose of the NHRA is to protect the health, safety, and well-being of nursing home residents by establishing minimum standards of care and guaranteeing specific rights to residents in facilities that receive federal Medicare or Medicaid funding.

The NHRA's federal provisions specifically apply to nursing homes that participate in Medicare and Medicaid. While some states have extended similar resident protections to assisted living facilities through their own laws, the federal act does not directly apply to them.

Residents have the right to be fully informed about their medical condition and treatment in a language they understand. They also have the right to participate in developing and implementing their care plan, choose their own physician, and refuse treatment.

The NHRA ensures residents are free from physical, sexual, and mental abuse, as well as neglect and financial exploitation. It also prohibits the use of physical or chemical restraints for staff convenience or disciplinary reasons.

No, a facility can only transfer or discharge a resident for specific, protected reasons. These include for medical needs, the resident's or others' welfare, nonpayment, or when the transfer is mandated by law. Residents must also receive proper notice.

The Long-Term Care Ombudsman Program is a federal initiative that provides advocates, known as ombudsmen, to protect the rights of residents in long-term care facilities. Ombudsmen investigate complaints, provide information, and mediate between residents, families, and facilities.

Families can ensure rights are upheld by staying informed, maintaining open communication with staff, participating in care planning meetings, and utilizing resources like the Long-Term Care Ombudsman Program to address concerns and advocate on the resident's behalf.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.