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Should you agree with a person with dementia? A guide to compassionate communication

4 min read

According to the Alzheimer's Association, more than 6 million Americans are living with Alzheimer's, the most common cause of dementia, and many experience confusion or altered perceptions of reality. This often leads caregivers to ask: should you agree with a person with dementia? While it may seem counterintuitive, therapeutic agreement, often called validation therapy, is a primary communication technique for managing challenging behaviors and emotional distress.

Quick Summary

Validation therapy can be an effective and compassionate strategy when communicating with someone with dementia. Instead of correcting their altered reality, accepting their feelings and perception can reduce their anxiety and maintain their dignity. Learning to distinguish between validation and confrontation is crucial for caregivers to navigate difficult conversations successfully.

Key Points

  • Agree to Reduce Distress: In most cases, agreeing with a person with dementia, especially in mid-to-late stages, reduces anxiety and frustration, as arguing over facts is often futile.

  • Validate Their Feelings: Validation therapy focuses on accepting the person's emotions and reality to build rapport and address their underlying needs, such as fear or loneliness.

  • Consider Therapeutic Lying: For issues that cause repeated grief (like a deceased loved one), a compassionate or 'therapeutic' lie can protect the person from unnecessary pain.

  • Use Distraction and Redirection: When a conversation becomes difficult, gently changing the subject or distracting the person with a pleasant activity can help defuse the situation.

  • Focus on Emotion Over Fact: Remember that the person’s emotional reality is what matters most; challenging their facts will not bring them back to your reality.

  • Prioritize Caregiver Well-being: Employing these techniques is emotionally challenging, so caregivers should seek support groups and prioritize their own mental health.

  • Use Simple, Clear Communication: No matter the approach, always use simple words, short sentences, and a calm, reassuring tone to avoid overwhelming the person.

In This Article

Understanding Validation Therapy vs. Reality Orientation

When a person with dementia experiences a changed perception of reality, it is common for caregivers to try and 'correct' them. This approach is known as reality orientation and aims to bring the person back to the objective truth. However, in mid-to-late-stage dementia, this often leads to heightened frustration, agitation, and emotional distress because the person no longer has the cognitive ability to process factual information in the same way.

An alternative, and often more effective, strategy is validation therapy. Developed by Naomi Feil, this approach focuses on acknowledging and accepting the person's feelings and personal truth, regardless of how distorted it may be. The core principle is that emotional reality is more important than factual accuracy. By stepping into their world, you can connect with them on a deeper, more meaningful level and address the underlying emotion driving their behavior.

How to Practice Validation Therapy

Validation therapy is not about lying to manipulate someone but rather about connecting with their emotional state. Here are some techniques to help you practice it effectively:

  • Listen actively: Pay close attention to what they are saying and their body language. What feeling are they expressing? Fear, loneliness, or frustration?
  • Acknowledge and reflect: Repeat what they have said to show you are listening. For example, if they say, “I need to go home,” respond with, “You want to go home?”
  • Match their emotions: Match your tone and pace to theirs to show empathy. If they seem agitated, speak in a calm, soothing voice to help de-escalate the situation.
  • Use reminiscence: Many people with dementia have better long-term memory. Gently steer the conversation toward a positive memory from their past that relates to the emotion they are expressing.
  • Look for unmet needs: Often, an expressed fear or concern is rooted in an unmet need. For example, asking for a deceased parent might indicate a need for comfort and security. You can meet this need with a reassuring hug or by offering a cup of tea.

The Role of Therapeutic Lying in Dementia Care

Another strategy sometimes used in dementia care is therapeutic or compassionate lying. This involves bending the truth for the person's comfort and emotional well-being, rather than for personal convenience. It is distinct from validation in that it involves deliberately creating a more peaceful version of reality when the factual one would be unnecessarily painful. A good rule of thumb is to ask yourself, "Will this truth cause distress with no lasting benefit?"

Scenarios where therapeutic lying is considered

  • Reassuring a person about a deceased loved one: If a parent with dementia asks when their deceased spouse is visiting, telling them the truth repeatedly can force them to relive the trauma of that loss. A therapeutic lie, such as “He’s running late, let’s have some tea while we wait,” can prevent unnecessary grief.
  • Managing agitation or paranoia: If your loved one is convinced someone is stealing from them, trying to reason with them is often futile and distressing. You could say, “I put your valuables in a safe place for now,” and then distract them with a preferred activity.
  • Encouraging participation in care: If a person is agitated about a doctor's appointment, you might reframe it as a pleasant outing, like a walk or a drive. You can then stop at the appointment on the way.
Strategy Primary Goal Best For Example
Validation Therapy Acknowledging and accepting the person's feelings and perceptions to build trust and rapport. Dealing with emotional distress or confusion, especially when there is no safety risk. A person says, "I want to go home." You respond, "You feel like you want to go home right now."
Reality Orientation Reorienting the person to factual reality. Early-stage dementia when the person is still able to reason and recall recent information. "You're at your daughter's house. It's Tuesday."
Therapeutic Lying Gently bending the truth to protect the person's emotional and physical well-being. Situations where the truth would cause significant distress, such as discussing a deceased loved one. A person asks for a deceased parent. You say, "She's resting right now, let's talk about something else."

Ethical Considerations and Caregiver Well-being

While validation and compassionate deception can be highly effective, they are not without ethical considerations. Caregivers may grapple with feelings of guilt or discomfort, as these strategies contrast with a lifetime of valuing honesty. It is crucial to remember that these approaches are used out of compassion for someone who is no longer able to process reality in the same way, and the intention is always to prioritize their well-being and dignity. Seeking support from dementia support groups or therapists can help caregivers navigate these complex emotions.

Ultimately, there is no one-size-fits-all approach. The most effective strategy depends on the individual, the situation, and the stage of their condition. It's a continuous learning process that requires immense patience, creativity, and empathy. For the caregiver, it also requires a strong commitment to self-care, as managing these interactions can be emotionally draining. Understanding and applying these techniques helps create a more peaceful, respectful, and dignified environment for everyone involved.

Conclusion

In most cases, agreeing with a person with dementia is a powerful tool for compassionate care. Moving away from a strict adherence to factual reality in favor of validating a person's emotional experience can prevent frustration, reduce agitation, and build a sense of trust and security. Techniques like active listening, redirection, and therapeutic lying offer caregivers a toolkit to navigate challenging interactions with empathy and respect. By focusing on emotional well-being over factual correctness, you can honor the person's reality and ensure a greater sense of dignity and peace.

Frequently Asked Questions

Yes, in certain situations, a compassionate or 'therapeutic' lie is considered acceptable. When telling the truth would cause significant distress or fear with no lasting benefit, a gentle lie can be used to protect the person's emotional well-being.

Validation therapy is a communication technique developed by Naomi Feil. It involves acknowledging and accepting the reality and emotions of a person with dementia, rather than trying to correct them. The goal is to build trust and reduce agitation by focusing on the feelings behind their words.

If a person with dementia insists on doing something dangerous, it is critical to prioritize their safety. Instead of arguing, use distraction and redirection techniques to move their attention away from the unsafe activity. You can also temporarily hide the dangerous object and reassure them that they are safe.

Reality orientation is an older approach that attempts to bring the person back to objective reality, which often causes distress in mid-to-late-stage dementia. Validation therapy, on the other hand, accepts the person's subjective reality to foster connection and reduce anxiety.

If a loved one with dementia repeatedly asks for a deceased family member, telling them the truth can cause them to relive the grief. It's often more compassionate to offer a gentle, therapeutic lie, such as "She's out right now," and then distract them with a positive memory or activity.

Do not argue or confront their belief, as this will likely increase their agitation. Instead, validate their feeling of fear and help them 'look' for the item. Then, distract them by moving on to another activity. Never take their accusations personally, as they are a symptom of the disease.

In most cases, no. Correcting someone with dementia over factual inaccuracies can cause embarrassment or distress. The factual details are often less important than the emotional content of their story. Focus on the feelings they are expressing rather than the details.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.