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What are the signs that someone with dementia is likely to wander?

4 min read

An estimated six in ten people with dementia will wander at least once, a behavior that can be frightening and dangerous for caregivers and families. Knowing what are the signs that someone with dementia is likely to wander is crucial for implementing preventative measures and ensuring their safety.

Quick Summary

Restlessness, pacing, or repeatedly expressing a desire to "go home" are key indicators that a person with dementia may be at risk of wandering. Other signs include confusion in familiar places, experiencing sundowning syndrome, and attempting to follow old routines.

Key Points

  • Restlessness and Pacing: Unexplained agitation, fidgeting, and pacing are often early warning signs of an urge to wander.

  • The "Go Home" Phrase: Repeatedly asking or expressing a need to return home, even when already there, is a strong indicator of disorientation and potential wandering.

  • Following Old Routines: A person may attempt to leave to fulfill a past obligation, such as a job or school pickup, triggering a wandering episode.

  • Sundowning: Heightened confusion and anxiety in the late afternoon and evening, known as sundowning, significantly increase the risk of wandering.

  • Environmental Disruption: Changes to routine or an overstimulating environment can cause distress, leading to an attempt to escape.

  • Unmet Needs: Wandering can be a symptom of an underlying unmet need, such as hunger, thirst, pain, or the need to use the bathroom.

  • Forgetting Familiar Places: Inability to recognize familiar locations inside or outside the house, or asking about deceased relatives, suggests a worsening sense of direction and orientation.

In This Article

Recognizing Early Behavioral Indicators

Restlessness and agitation are often the earliest and most telling signs that a person with dementia is at risk of wandering. This can manifest as an inability to sit still, fidgeting, or pacing a specific area of the house. For many, this agitated state is a direct result of cognitive and emotional distress, feeling disoriented or overwhelmed by their environment.

The Urge to "Go Home"

A common and often heartbreaking sign is the person's repeated requests or attempts to "go home," even when they are already in their own residence. This stems from a deep-seated feeling of unfamiliarity and disorientation, believing they are lost or in the wrong place. They may pack belongings, put on a coat, and display an intense desire to leave. It's important to remember this is not an intentional defiance but a symptom of their disease, where their mental state is disconnected from their physical surroundings.

The Impact of Routine and Environmental Changes

Changes in routine or the environment can be powerful triggers for wandering. A person with dementia thrives on predictability, and any disruption can cause confusion and anxiety, driving them to seek comfort in a familiar, albeit often imagined, setting. Overstimulation from loud noises, crowded places, or even too much activity at home can also trigger distress and a need to escape.

Sundowning: The Late-Day Agitation

Sundowning is a well-known phenomenon in which confusion and agitation worsen in the late afternoon or evening. This can cause increased restlessness, pacing, and a heightened desire to leave. The fading light and changes in ambient noise can be disorienting and frightening, leading the person to search for a place of safety. Establishing a calming evening routine is vital for managing this period.

Reliving Past Routines

Sometimes, wandering is triggered by a person's desire to follow a long-established routine from their past. For example, a retired individual might express a need to "go to work," believing they are late for a job they had decades ago. They may also try to search for deceased loved ones or complete tasks they once did regularly. Recognizing these past routines can help caregivers understand the motivation behind the behavior and address the underlying need.

Meeting Basic Needs

Unmet basic needs, such as hunger, thirst, or needing to use the bathroom, can be significant drivers of restlessness and wandering. People with dementia may struggle to communicate these needs, and the resulting discomfort can cause them to wander in search of relief. Ensuring regular meals, drinks, and bathroom breaks can help mitigate these triggers.

Proactive Safety vs. Immediate Intervention

Strategy Proactive Safety Measures Immediate Intervention
Locks & Barriers Install childproof locks, high-mounted deadbolts, or alarms on doors and windows. Consider pressure-sensitive floor mats near exits. If the person is trying to leave, calmly approach and engage them in conversation. Never block an exit aggressively.
Identification Ensure the person wears an ID bracelet or pendant with their name, address, and condition. Consider a GPS-enabled wearable device. When the person is missing, provide a recent photo to first responders. Have a list of potential destination locations.
Distraction Plan engaging activities during peak wandering times (e.g., late afternoon or evening) to redirect focus. Offer a simple task or activity that they enjoy, such as folding laundry, looking at a photo album, or having a snack.
Environmental Cues Hide items that signal departure, like coats, car keys, or shoes. Use black doormats or strips of tape in front of doors as visual deterrents. Avoid correcting or arguing with them. Use a calm, reassuring tone and redirect their attention.
Neighborhood Alert Inform trusted neighbors about the situation and ask them to call you if they see your loved one alone. If the person is missing for more than 15 minutes, call 911 and inform them the person has dementia.

How to Reduce the Risk of Wandering

Caregivers can take several steps to minimize the risk of wandering. In addition to securing the home, it's vital to create a stable, predictable daily routine. Incorporate plenty of physical activity during the day to help them sleep better at night. Keeping the environment calm and free from excessive clutter or noise can also reduce anxiety.

For more comprehensive strategies on prevention and response, the Alzheimer's Association provides excellent resources for families and caregivers Wandering.

Conclusion: Recognizing the Red Flags

Understanding and recognizing the signs that a person with dementia is likely to wander is a critical aspect of effective caregiving. By paying attention to behavioral changes, emotional cues, and environmental triggers, caregivers can move from a reactive position to a proactive one. Implementing a combination of safety measures, distraction techniques, and consistent routines can significantly reduce the risk of wandering and ensure a safer, more predictable environment for your loved one.

Frequently Asked Questions

Wandering is very common; it is estimated that about 60% of people with dementia will wander at least once during the course of their disease. The risk can occur at any stage of dementia but often increases as symptoms progress.

Wandering is not caused by a single factor but is often a combination of confusion, disorientation, agitation, and a loss of short-term memory. It can also be triggered by a desire to fulfill past routines or an inability to communicate an unmet need.

No, people with dementia may wander for many reasons, not just because they are lost. They may be seeking something specific, such as a snack, or trying to find a person or place from their past. The goal is often perceived as logical to them, even if it appears aimless to others.

Instead of arguing, validate their feelings and then redirect their attention to another activity. You can say, 'It's late now, let's have some tea first.' It's important to provide reassurance without correcting them, as correction can increase their agitation.

Yes, there are several technological aids. These include GPS trackers that can be worn as a bracelet or placed in a pocket, pressure-sensitive floor mats that sound an alarm when a person gets out of bed, and various smart home sensors and cameras.

Practical tips include installing alarms on all doors and windows, using high-mounted deadbolts out of their line of sight, and hiding items like car keys, coats, and purses that might trigger the impulse to leave. Consider painting exit doors the same color as the walls to help camouflage them.

Act immediately. Search the immediate vicinity and check familiar places they have gone to in the past. If you cannot find them within 15 minutes, call 911 and inform the authorities that the person has dementia. Having a recent photo on hand is crucial.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.