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What are the rights of patients residents in long-term care facilities?

3 min read

According to the Administration for Community Living (ACL), in 2023, the Long-Term Care Ombudsman Program resolved or partially resolved 71% of complaints filed by or on behalf of residents in long-term care facilities. This highlights the importance of understanding what are the rights of patients residents in long-term care facilities and the systems in place to protect them. Federal law, especially for facilities that accept Medicare and Medicaid, mandates numerous protections for residents to ensure their quality of life and care.

Quick Summary

Long-term care residents have fundamental rights guaranteed by federal and state law, including dignity, self-determination, informed consent, and freedom from abuse. These rights cover medical treatment, personal finances, privacy, and access to visitors and advocacy services. Legal protections exist to prevent involuntary transfers and discharges, and residents can seek assistance from a Long-Term Care Ombudsman.

Key Points

  • Dignity and Respect: Residents are entitled to be treated with consideration, respect, and dignity, and to be free from abuse, neglect, and exploitation.

  • Self-Determination and Independence: Residents have the right to make independent choices about their schedules, activities, and medical care, including refusing treatment.

  • Informed Consent: Residents must be fully informed about their medical condition and care plan in a language they understand, and they have the right to participate in care decisions.

  • Privacy and Visitors: Residents have the right to privacy regarding personal, financial, and medical affairs and to have unrestricted and private communication with visitors.

  • Protection from Unjust Transfer: Residents can only be transferred or discharged for specific, legally defined reasons and have the right to a 30-day notice and an appeal process.

  • Financial and Personal Property Protection: Residents can manage their own finances and retain personal possessions, with federal regulations protecting against financial exploitation.

  • Access to Advocacy: The Long-Term Care Ombudsman Program provides free, confidential advocacy services to help residents resolve complaints and protect their rights.

In This Article

Understanding Residents' Rights Under Federal Law

Federal law establishes a framework of rights for residents in long-term care facilities, particularly those receiving Medicare and Medicaid. The Nursing Home Reform Act of 1987 is a key piece of legislation, requiring facilities to uphold resident rights. Individuals in long-term care facilities retain the same basic rights as other members of the community.

These rights cover various aspects of a resident's life, including:

  • Dignity and Respect: Residents have the right to be treated with consideration, respect, and dignity, free from abuse, neglect, and exploitation.
  • Self-Determination: Residents can make their own choices about daily activities, schedules, and healthcare providers. They also have the right to form and participate in resident councils.
  • Information: Residents must be informed about facility services, costs, rules, and contact information for advocacy groups like the state ombudsman. They also have the right to be fully informed about their medical condition and participate in developing their care plan.
  • Privacy: Residents are entitled to privacy regarding their personal, financial, and medical information. They also have the right to private communication with visitors.
  • Right to Refuse: Residents can refuse medical treatment. Physical or chemical restraints can only be used when medically necessary and authorized, not for convenience.

Financial and Personal Belongings Rights

Residents maintain control over their personal finances and possessions. Facilities cannot mandate managing a resident's money. If a resident permits facility management of their funds, regulations apply to prevent financial abuse.

Financial rights include managing one's own finances and, if the facility manages funds, receiving quarterly statements. Residents can refuse to deposit personal funds with the facility.

Regarding personal property, residents can keep and use their belongings, as long as it does not compromise the safety of others. Labeling items and creating an inventory is advisable. Facilities are responsible for investigating missing items and can be liable for loss or theft.

Transfer and Discharge Protections

Federal law limits the reasons a resident can be transferred or discharged from a facility. Valid reasons include the resident's or others' welfare, nonpayment, or a change in the resident's medical needs.

Protections include receiving at least 30 days' written notice of a transfer or discharge plan, except in emergencies. Residents have the right to appeal these decisions and remain in the facility during the appeal process. Facilities must ensure safe transfers. Residents must also be informed of their right to return after hospitalization.

Nursing Homes vs. Assisted Living Facilities: A Comparison of Rights

The rights of residents vary depending on whether they reside in a nursing home or an assisted living facility (ALF). Nursing homes that receive federal funding are subject to federal and state regulations, while ALFs are primarily regulated at the state level.

Feature Nursing Home (Skilled Nursing Facility) Assisted Living Facility (ALF)
Primary Regulation Federal and state laws. State laws only.
Federal Oversight Yes, subject to CMS regulations. No federal oversight.
Inspection/Survey Mandated unannounced inspections and complaint investigations. Varies by state, often less frequent than nursing homes.
Care Plans Required written plan involving resident. Varies by state.
Enforcement Stronger federal and state mechanisms. Varies by state.
Rights to Transfer/Discharge Federally defined conditions and appeal rights. Defined by state law.

The Role of the Long-Term Care Ombudsman Program

The Long-Term Care Ombudsman Program (LTCOP) is authorized to advocate for residents' rights. Ombudsmen are independent individuals who address complaints on behalf of residents in various long-term care settings.

Ombudsmen assist by investigating and resolving complaints, educating residents and families about their rights, and advocating for residents' interests. Their services are free, confidential, and prioritize the resident's wishes. To contact an ombudsman, individuals can reach out to their state or local office.

Conclusion

Residents in long-term care facilities possess fundamental rights that protect their well-being. Federal law provides a baseline for nursing home residents, while state laws govern rights in assisted living facilities. The Long-Term Care Ombudsman Program serves as a vital resource for residents and families to address concerns and ensure rights are upheld. Understanding these rights is crucial for residents to receive appropriate care and maintain their autonomy.

Know Your Rights... As a Long-Term Care Resident offers further information on resident rights.

Frequently Asked Questions

The primary law is the federal Nursing Home Reform Act of 1987, which requires facilities accepting Medicare or Medicaid to promote and protect resident rights. Many states also have their own regulations.

No, a competent resident has the right to refuse medication and treatment. If there is a question of competency, a formal assessment is required, and decisions must be made in the resident's best interest, typically by a designated surrogate.

Federal rules state that residents have the right to receive visitors of their choosing at any time, as long as it doesn't infringe on another resident's rights. Facilities can place clinically necessary or reasonable limitations but cannot ban family members.

It is recommended to label all items, create an up-to-date inventory, and request a personal, locked storage space from the facility. If items go missing, report it immediately in writing to the facility and contact the local police if a theft is suspected.

Nursing home residents are protected by federal and state law due to Medicare and Medicaid funding, providing more uniform rights. Assisted living residents' rights are based on state-specific regulations, which can vary significantly and may be less stringent.

No, residents have the right to present grievances without fear of reprisal, coercion, or discrimination. A facility cannot discharge a resident for exercising their right to complain or advocate for better care.

A Long-Term Care Ombudsman is an independent advocate for residents' rights. They investigate complaints, educate residents and families on their rights, and work to resolve issues confidentially and without charge.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.