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What happens if you don't have money for long-term care?

5 min read

According to the National Council on Aging, a growing number of older Americans are worried about outliving their savings due to the high cost of healthcare. If you or a loved one asks, "What happens if you don't have money for long-term care?", know that while the situation is serious, there are multiple avenues for financial assistance and support to explore.

Quick Summary

This guide outlines the critical steps to take when faced with long-term care costs without sufficient funds. It covers applying for Medicaid, understanding the 'spend-down' process, leveraging veterans' benefits, and exploring alternative community-based services to find affordable care options.

Key Points

  • Medicaid is the primary solution for low-income seniors: This federal and state program is the largest payer for long-term care and can cover nursing home costs after private funds are exhausted.

  • Nursing homes can discharge residents for non-payment: While legal procedures, including written notice and a discharge plan, must be followed, a facility can evict a resident who runs out of private funds.

  • Medicare does not cover long-term custodial care: It is a common misconception that Medicare will pay for ongoing long-term care, but its coverage is limited to short-term, skilled care.

  • Veterans have specific benefits available: Eligible veterans and their surviving spouses may access programs like Aid and Attendance or Housebound benefits, which provide financial assistance for long-term care.

  • Strategic asset management is necessary for Medicaid: Individuals with too many assets may need to go through a 'spend-down' process or use special trusts to qualify, but must be aware of the 60-month look-back period for asset transfers.

  • Alternative financial tools exist for homeowners: Reverse mortgages can convert home equity into cash for care, but they can impact inheritance and Medicaid eligibility.

  • Community-based services offer less expensive options: For those who can stay at home, Medicaid waivers, Area Agencies on Aging, and adult day care can provide crucial support.

  • Filial responsibility laws are a potential risk in some states: Over half of U.S. states have laws that could make adult children financially responsible for their parents' care, although enforcement is rare.

  • Expert legal and financial guidance is vital: Navigating eligibility for programs like Medicaid and VA benefits can be complex and working with an elder law attorney or financial advisor is highly recommended.

  • It is possible to get quality care with little to no funds: With proper planning and the utilization of government programs, community resources, and legal assistance, seniors without private funds can still receive the care they need.

In This Article

Immediate Consequences and Common Misconceptions

When you or a loved one runs out of money while in a long-term care facility, such as a nursing home, you may face discharge for nonpayment. A nursing home must, however, follow legal procedures, including providing sufficient written notice, usually 30 days, before eviction. During this time, the facility is also required to provide a discharge plan. However, this is not an ideal solution, and many seniors who lack funds often misunderstand what resources are available to them. Many mistakenly believe Medicare will cover all their costs, but Medicare only pays for limited, short-term skilled nursing care for up to 100 days under specific conditions. It does not cover custodial long-term care.

Medicaid: The Primary Lifeline for Low-Income Seniors

For those with limited income and assets, Medicaid is the largest payer for long-term care services in the U.S. and is the most common option when private funds are depleted. Medicaid is a joint federal and state program, so eligibility and coverage vary by state.

The Medicaid 'Spend-Down' Process

If your assets or income are slightly above your state's Medicaid limits, you may still be able to qualify by spending down your excess resources on medical and care-related expenses. This strategy involves:

  • Paying for care costs: Using your excess income or assets to pay for medical bills, prescription drugs, and long-term care services until your resources fall below the eligibility threshold.
  • Qualified Income Trusts (QITs): In some states, if your income exceeds the Medicaid limit, you can deposit the excess income into a special trust to become financially eligible. An elder law attorney can assist with setting this up.
  • Medicaid Look-Back Period: Be aware that Medicaid has a look-back period (typically 60 months) to review financial transactions and asset transfers. Gifting or selling assets for less than fair market value during this time can result in a penalty period of ineligibility.

The Application Process

Applying for Medicaid for long-term care is complex and requires significant documentation, including proof of income, assets, and medical records. In some urgent cases, known as a "Medicaid crisis," an elder law attorney can help expedite the process to prevent or resolve a care disruption.

Veterans' Benefits: A Valuable Resource

Veterans and their surviving spouses may be eligible for financial assistance through the U.S. Department of Veterans Affairs (VA). These benefits can help cover long-term care costs through several programs:

  • Aid and Attendance: This program provides a monthly pension supplement for eligible wartime veterans and surviving spouses who require the aid of another person for daily tasks.
  • Housebound Allowance: A pension benefit for veterans who are largely confined to their home due to a permanent disability.
  • VA Health Care: Enrolled veterans may receive long-term care services at VA Community Living Centers, State Veterans Homes, or through home and community-based services.

It is crucial to work with a Veterans Service Officer or elder law attorney to determine eligibility and apply correctly.

Exploring Other Financial and Care Alternatives

Beyond major government programs, several other options can help bridge the gap in funding long-term care, especially when private resources are low or exhausted.

Other Financial Strategies

  • Reverse Mortgages: For homeowners aged 62 or older with significant equity, a Home Equity Conversion Mortgage (HECM) can provide a line of credit or monthly payments to help cover care expenses. This does not require monthly payments while the borrower lives in the home, but the loan is repaid when the home is sold or the borrower passes away.
  • Life Settlements: Selling an existing life insurance policy to a third-party investor can provide a lump-sum cash payment. The investor then becomes the beneficiary and pays the future premiums. This is often a last resort for individuals with a shorter life expectancy.
  • Benevolent Care Funds: Some faith-based or non-profit care facilities offer benevolent care, covering the difference for residents who run out of funds. These funds are not widely available but can be a lifeline in specific circumstances.

Community and Home-Based Care

  • Home and Community-Based Services (HCBS) Waivers: In addition to institutional care, Medicaid offers waivers in some states that pay for services to help seniors stay in their homes or a community setting. This can include personal care assistance, meal delivery, and transportation.
  • Aging and Disability Resource Centers (ADRCs): These centers assist individuals in finding and applying for local resources, including transportation services, meal delivery programs, and other support.
  • Adult Day Care: These programs provide supervised care, social engagement, and support during the day for seniors who still live at home. It is a less expensive option than full-time residential care.

Long-Term Care Options Comparison

Feature Personal Savings / Private Pay Medicaid Veterans' Benefits (Aid & Attendance)
Funding Source Your own assets (savings, investments, home equity) Federal and state government program U.S. Department of Veterans Affairs
Eligibility No eligibility criteria other than having sufficient funds Strict income and asset limits, medical necessity criteria vary by state Specific service, income, and medical criteria for eligible veterans and spouses
Care Covered Any type and setting of care, as long as you can afford it Nursing home care, with some states offering Home and Community-Based Services (HCBS) waivers Home care, assisted living, and nursing home care for eligible recipients
Flexibility Highest flexibility in choosing providers and facilities Limited to Medicaid-certified facilities, which may have waitlists Can often be used for care at home or in the senior living community of choice
Financial Impact Depletes private savings and assets, leaving less for heirs Requires "spend-down" of assets, potentially impacting what is left for heirs; Medicaid estate recovery may apply Consumes available income but can be a vital financial resource

Conclusion

Not having money for long-term care is a challenging situation, but it is not hopeless. The key is to act proactively and understand the various government programs and alternative funding sources available. For most with limited resources, Medicaid is the most comprehensive option, covering long-term nursing home care and often home- and community-based services. Veterans' benefits offer another critical layer of support for eligible individuals and their families. While the process can be overwhelming, resources like Area Agencies on Aging, elder law attorneys, and financial planners can provide essential guidance. By carefully exploring and combining these options, it is possible to secure the necessary care without a substantial financial safety net. Timely planning and expert consultation are crucial to navigating this complex landscape and ensuring dignified, continuous care.

Frequently Asked Questions

The immediate first step is to apply for Medicaid. The facility social worker should be able to help with this application. Medicaid is the most common option for low-income individuals needing nursing home care and can cover costs once private funds are depleted.

Yes, a nursing home can discharge a resident for non-payment. However, they must follow legal procedures, including providing adequate written notice (usually 30 days) and creating a discharge plan outlining the resident's transfer to an alternative location.

No, Medicare does not cover long-term custodial care. Its coverage for nursing home stays is limited to a maximum of 100 days for short-term, skilled nursing or rehabilitation services following a qualifying hospital stay.

A Medicaid 'spend-down' is a process that allows individuals with an income slightly above the Medicaid limit to still qualify. They do this by spending their excess income on medical and care-related expenses until their resources fall below the required threshold.

Veterans and their surviving spouses may qualify for Aid and Attendance benefits, which provide a monthly pension supplement for those needing help with daily living activities. Other VA health benefits may also cover care at VA or state veterans' homes.

The Medicaid look-back period is a review of financial transactions, typically over the 60 months before applying for benefits. Any assets that were gifted or sold for less than fair market value during this time can result in a penalty period of Medicaid ineligibility.

In these situations, Adult Protective Services (APS) or other public health agencies may intervene to ensure safety. A court may appoint a guardian or conservator to make decisions about the person's care, and community resources or state-funded programs will be utilized to provide necessary support.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.