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What is another name for long-term care? Exploring alternative terminology

6 min read

According to the Centers for Medicare & Medicaid Services, long-term care is often known as "custodial care" or "long-term services and supports". Understanding these alternative names and the distinctions between them is crucial for anyone navigating care options for themselves or a loved one, from home-based assistance to residential facilities.

Quick Summary

Long-term care is also referred to by various terms, including custodial care, aging care, eldercare, and long-term services and supports. The specific term used depends on the type of care, services provided, and the setting, such as assisted living or skilled nursing facilities.

Key Points

  • Custodial Care: A common alternative name focusing on non-medical, personal assistance with daily tasks.

  • Long-Term Services and Supports (LTSS): A modern, inclusive term covering a wide range of medical and non-medical services and supports.

  • Aging Care / Eldercare: Terms used to describe the continuum of support needed by older adults as they age.

  • Continuing Care: Often refers to communities (CCRCs) offering multiple levels of care in one location.

  • Residential vs. In-Home Care: Options range from living in an assisted living facility or nursing home to receiving care at home.

  • Palliative vs. Hospice Care: Palliative care manages symptoms at any stage, while hospice is for end-of-life comfort care.

  • Advance Planning: Early discussion and planning are crucial for navigating long-term care options effectively.

In This Article

Common Synonyms and Related Terms

Long-term care (LTC) encompasses a wide range of services designed for individuals who need help with daily tasks for an extended period due to chronic illness, disability, or age. Because of its broad nature, several other names are used, often referring to a specific type or setting of care. Understanding the subtle differences between these terms is key to choosing the right option.

Custodial Care

One of the most direct and common synonyms is "custodial care". This term specifically refers to the non-medical assistance that helps an individual with daily activities. Unlike skilled medical care, which is provided by licensed professionals, custodial care can be administered by non-licensed caregivers. This can include help with bathing, dressing, eating, and other personal care tasks.

Long-Term Services and Supports (LTSS)

This is a broader, modern term often used by government agencies like Medicare and Medicaid. LTSS includes not only personal care but also community-based programs, housing support, and other services that help individuals maintain independence in various settings. It is a more inclusive and comprehensive name for the collective range of services.

Aging Care / Eldercare

For older adults, long-term care is frequently referred to as "aging care" or "eldercare". These terms highlight the demographic that most commonly receives such services and encompass the wide spectrum of support needed as individuals age, from health management to social engagement.

Continuing Care

This term is often associated with Continuing Care Retirement Communities (CCRCs), which provide a multi-level campus where residents can transition between independent living, assisted living, and skilled nursing as their needs change. The name reflects the goal of providing a continuum of care within a single community.

Long-Term Care Options: A Comparison

To better understand the different facets of what is another name for long-term care, here is a comparison of some of the most common settings and service types. Each offers a different level of care, independence, and cost structure.

Feature Home Health Care Assisted Living Facility (ALF) Skilled Nursing Facility (SNF)
Services Provided Part-time skilled nursing, therapy (physical, occupational), and medical social services. Assistance with daily activities (bathing, dressing), meals, housekeeping, and social activities. 24-hour skilled nursing care, medical supervision, and rehabilitation services.
Level of Care Best for those who are homebound but need intermittent medical or therapy services. Ideal for individuals who need help with daily tasks but do not require round-the-clock medical care. For individuals with complex medical conditions or recuperating from a serious illness or injury.
Living Environment Patient's own home, maximizing independence and familiarity. Private or shared apartments within a communal residence. Often a more institutional, hospital-like setting with shared or private rooms.
Common Cost Model Often covered by Medicare for eligible services; otherwise, out-of-pocket or private insurance. Typically paid for privately, though some Medicaid waivers or long-term care insurance may provide coverage. May be covered for a limited time by Medicare following a hospital stay; longer stays usually require private funds or Medicaid.

Finding the Right Care

Determining the most suitable type of long-term care requires a comprehensive assessment of an individual's medical needs, desired level of independence, and financial resources. Starting with an honest conversation with family and medical professionals is a crucial first step. Websites like the Eldercare Locator, a service of the U.S. Administration on Aging, can provide resources based on your location.

Key steps include:

  • Assess Needs: Evaluate the individual's ability to perform Activities of Daily Living (ADLs) and Instrumental Activities of Daily Living (IADLs), such as managing finances or preparing meals.
  • Consider Settings: Decide whether a home-based, community-based, or residential facility setting is most appropriate.
  • Review Financials: Investigate coverage options through Medicare, Medicaid, long-term care insurance, and personal savings, as these vary significantly for different types of care.
  • Visit and Compare: If a facility is the preferred route, conduct visits and ask questions about staffing levels, services, and resident satisfaction.

Conclusion

In summary, "long-term care" is a broad term with many synonyms, each emphasizing a different aspect or setting. Names like "custodial care," "aging care," and "long-term services and supports" all refer to the umbrella of assistance that helps individuals with chronic conditions or disabilities. By understanding these distinctions, families can make more informed decisions about the best path forward, ensuring their loved ones receive the right type of support for their needs and preferences. Ultimately, the best option for long-term care is a deeply personal choice, and knowing the terminology is the first step toward finding a solution that prioritizes dignity, comfort, and well-being. The Administration for Community Living offers resources to aid in the planning process and find necessary information.

The Role of Palliative and Hospice Care

For those with terminal illnesses, two related, yet distinct, services fall under the long-term care umbrella: palliative care and hospice care. While hospice is end-of-life care focusing on comfort, palliative care can begin at any stage of a serious illness and focuses on improving quality of life by managing symptoms. Both are team-oriented approaches, providing medical, physical, emotional, and spiritual support to both the patient and their family.

  • Palliative Care: Can be provided alongside curative treatments and aims to relieve symptoms and stress.
  • Hospice Care: For those with a life expectancy of six months or less, hospice focuses on comfort and quality of life rather than curing the illness.

Understanding In-Home and Residential Care

For those not requiring palliative or hospice support, the distinction between in-home care and residential facilities is a primary consideration. In-home care is ideal for those who wish to remain in their residence and can be managed by family, hired aides, or a combination. Residential care, such as assisted living or a nursing home, offers a structured environment with built-in social opportunities and staff available around the clock. The choice often comes down to balancing a desire for independence with the need for constant medical oversight or assistance with daily tasks.

The Future of Long-Term Care

As the population ages, the landscape of long-term care continues to evolve. An increasing focus on home- and community-based services is a notable trend, reflecting many individuals' preference for "aging in place". Additionally, innovations in assistive technology and an expansion of Medicare and Medicaid coverage for certain non-medical services are helping more people access care in their preferred setting. Staying informed about these developments can help families plan more effectively for their future care needs.

Choosing a Continuing Care Retirement Community (CCRC)

For those who want a long-term plan that adapts to their changing health, CCRCs provide a comprehensive solution. However, prospective residents should carefully evaluate the contract, financial stability, and services offered by the community. Questions about fees, healthcare transitions, and resident input are important to ensure the CCRC aligns with one's long-term goals and preferences.

  • Entrance and Monthly Fees: Understand the financial commitment, including the typically large one-time entry fee and monthly service fees.
  • Levels of Care: Verify that the community offers a seamless transition between independent living, assisted living, and skilled nursing care.
  • Resident Contracts: Review the residency agreement with a legal and financial professional to understand your rights and the community's obligations.

Ultimately, navigating the world of long-term care requires a thoughtful approach, starting with understanding the various terms and options available. Knowledge is the first step toward making a sound decision that ensures peace of mind for both the individual and their loved ones.

Finding Local Resources

When seeking information about care options, local and state agencies can be invaluable resources. Organizations such as the Area Agency on Aging or the Eldercare Locator can help individuals find suitable long-term care facilities, home-based services, and other community support options available in their area. These resources often provide free counseling and guidance to help navigate the complex system of long-term care.

The Importance of Advance Planning

One of the most important aspects of long-term care is planning in advance. Waiting until a crisis occurs can limit options and increase stress for everyone involved. By having conversations about future care needs early and investigating financial solutions like long-term care insurance or Medicaid eligibility, individuals and their families can be better prepared for whatever the future holds. This proactive approach ensures that decisions are made thoughtfully, with the individual's best interests at heart.

Frequently Asked Questions

Custodial care provides non-medical assistance with daily activities like bathing and dressing, while skilled care is medically necessary treatment and rehabilitation administered by licensed professionals, such as nurses and physical therapists.

Medicare and most health insurance plans do not pay for long-term care. Medicare does, however, cover short-term stays in a skilled nursing facility for rehabilitation after a hospital stay and eligible home health services.

A CCRC, also known as a life plan community, is a residential option that offers a continuum of care on one campus, allowing residents to transition from independent living to assisted living or skilled nursing as their needs change.

HCBS are a range of services provided in a person's home or community rather than in an institution. They can include personal care, adult day care, and homemaker services to help people with disabilities or chronic illnesses.

Assisted living provides assistance with daily activities in a residential setting for those who don't need 24/7 medical care, whereas a nursing home offers a higher level of medical care and skilled nursing services around the clock.

Hospice care is a specialized form of care for terminally ill patients, focusing on comfort and quality of life rather than cure. While it can be provided long-term, it is distinct from other long-term care services because it does not aim to cure the illness.

You can find local resources through the Eldercare Locator, a public service of the U.S. Administration on Aging. This website helps connect you with local Area Agencies on Aging and other community organizations.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.