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What to do if you suspect a family member has dementia?

4 min read

According to the World Health Organization, around 55 million people worldwide have dementia, and while it is common among older people, it is not a normal part of aging. So, what to do if you suspect a family member has dementia? The process begins with observation, compassionate communication, and seeking a professional medical evaluation to rule out other conditions and confirm a diagnosis.

Quick Summary

Guide to action steps when concerned about a family member's potential dementia. It covers recognizing symptoms, initiating difficult conversations, seeking a proper medical diagnosis, and beginning vital care planning for the future.

Key Points

  • Document Behavior Changes: Keep a journal of observed symptoms and behavioral changes to share with a doctor for a more accurate evaluation.

  • Initiate Compassionate Conversations: Approach your family member in a gentle, non-judgmental way to express your concerns and listen to their feelings.

  • Seek a Professional Medical Evaluation: A doctor can rule out other treatable conditions that mimic dementia symptoms, such as thyroid problems or vitamin deficiencies.

  • Understand the Diagnostic Process: Know that a dementia diagnosis is not based on a single test but includes medical history, cognitive exams, lab tests, and potentially brain scans.

  • Prioritize Legal and Financial Planning: Establish a durable power of attorney and other directives early to protect your loved one's wishes and finances before cognitive decline progresses.

  • Connect with Support Resources: Utilize caregiver support groups, educational programs, and professional resources like those offered by the Alzheimer's Association to manage stress and get expert guidance.

  • Create a Comprehensive Care Plan: Outline routines, safety measures, medication schedules, and long-term care options to ensure consistent and personalized support.

In This Article

Recognizing the early warning signs

Early signs of dementia can be subtle and may be mistaken for normal aging. However, when these changes significantly disrupt daily life, they warrant closer attention. Observing and documenting specific examples of unusual behavior can be helpful for later medical consultations.

Common signs to look for include:

  • Memory loss: Forgetting recently learned information, important dates, or asking the same questions repeatedly.
  • Challenges with familiar tasks: Struggling to complete routine activities, like driving to a familiar location or following a favorite recipe.
  • Language problems: Having trouble finding the right word, stopping mid-conversation, or repeating oneself.
  • Disorientation: Losing track of dates, seasons, and place, such as forgetting how they got somewhere.
  • Poor judgment: Exhibiting uncharacteristic decision-making, like using poor judgment with money or paying less attention to personal grooming.
  • Personality and mood changes: Becoming confused, suspicious, anxious, or withdrawing from social activities.

Approaching your family member with concern

This can be one of the most challenging steps, but approaching the conversation with care and compassion is essential. The goal is not to accuse, but to express concern and work together toward finding answers.

Here are some tips for a constructive conversation:

  • Plan and choose the right time: Find a quiet, comfortable, and private setting with few distractions. Avoid holding the conversation when either of you is rushed or stressed.
  • Express concern, not judgment: Frame the conversation from a place of love and worry. Instead of saying, "You've been so forgetful," try, "I've noticed a few things recently that have me a little concerned, and I want to make sure you're okay."
  • Provide specific examples: Use gentle but specific examples of behavior you've noticed to illustrate your concerns. This makes the issue concrete rather than just a general accusation.
  • Listen actively: Give your family member a chance to share their perspective without interruption. They may be relieved to talk about it or may respond with fear or denial. Be prepared for either reaction and remain patient.
  • Offer help, and don't push too hard: Suggest that you go with them to the doctor for an evaluation. If they resist, don't force the issue immediately. You may need to have several conversations over time.

The importance of a medical evaluation

An official diagnosis of dementia requires a thorough medical evaluation because many other health conditions can cause similar symptoms. A primary care physician is a good starting point and can rule out reversible causes like vitamin deficiencies, thyroid problems, depression, or side effects from medication.

The diagnostic process can involve several steps:

  1. Medical history and physical exam: The doctor will ask about symptoms, medical background, and family history. It is often helpful to have a family member present to provide additional observations.
  2. Cognitive and neurological tests: These assess memory, problem-solving, language, and other thinking abilities through simple written or verbal tests.
  3. Laboratory tests: Blood tests can help rule out underlying medical conditions that mimic dementia.
  4. Brain scans: Imaging tests like CT, MRI, or PET scans can help rule out other problems such as tumors, strokes, or fluid buildup.
  5. Specialist referral: Your loved one may be referred to a specialist, such as a neurologist or geriatrician, for a more extensive examination.

The next steps after a diagnosis

Once a dementia diagnosis is made, it is time to start planning for the future. An early diagnosis allows the person to participate in key decisions about their care, finances, and legal matters while they are still capable.

Area of Planning Action Steps Importance for Dementia Planning
Legal Documents Update or create a will, set up a durable power of attorney for finances, and establish an advance directive or healthcare proxy. Ensures the individual's wishes are respected for medical care and estate distribution, avoiding potential court proceedings later.
Financial Management Create a budget for potential care costs, organize assets and income, and assign a trusted person to manage finances. Protects against financial scams and ensures funds are available to cover expensive long-term care needs as the disease progresses.
Long-Term Care Research future care options, including in-home care, adult daycare centers, assisted living, or memory care facilities. Allows for gradual transitions and ensures the person receives appropriate care as their needs evolve, maintaining dignity and safety.
Support Network Form a care team, including family, friends, and professional caregivers. Explore community resources like the Alzheimer's Association. Prevents caregiver burnout and provides emotional and practical support for everyone involved in the person's care.

Conclusion

Discovering that a family member may have dementia is a difficult and emotional experience for everyone involved. Taking proactive steps, from recognizing the early signs to pursuing a professional medical diagnosis, is the most crucial action you can take. The sooner a diagnosis is made, the better equipped you and your family will be to make informed decisions about care, finances, and legal matters. By focusing on compassionate communication, comprehensive planning, and utilizing available support systems, you can ensure your loved one receives the best possible care while navigating the challenges ahead. Remember, you do not have to go through this alone; resources like the Alzheimer's Association are available to help guide you and your family.

Frequently Asked Questions

If you notice potential signs of dementia, the first steps are to document the specific behaviors you've observed, talk to other family members to see if they've noticed similar changes, and then compassionately approach your loved one about seeing a doctor for an evaluation.

Choose a quiet, comfortable setting for a private conversation. Express your concerns from a place of love, using specific, gentle examples of the behavior you've noticed. Avoid accusations and focus on working together to seek medical advice.

Yes, symptoms that look like dementia can be caused by other conditions, including vitamin deficiencies, thyroid issues, depression, or medication side effects. A medical evaluation is necessary to rule these out, as some are reversible.

You should start by seeing your family member's primary care physician. If necessary, they can provide a referral to a specialist, such as a neurologist or geriatrician, for more extensive testing and diagnosis.

Early planning is crucial because it allows the individual with dementia to be involved in important decisions about their care, finances, and legal matters while they are still capable. This ensures their wishes are clearly communicated and respected for the future.

Essential legal documents to prepare include a durable power of attorney for finances, a healthcare proxy or advance directive, and a will. These documents protect the individual's assets and outline their preferences for future care.

Caregivers can find extensive support through organizations like the Alzheimer's Association, which offers a 24/7 helpline, support groups, and educational programs. Online caregiver forums and local community groups are also valuable resources.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.