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What to do when a parent wants to leave assisted living?

4 min read

According to senior care experts, listening with empathy is the first critical step when a parent wants to leave assisted living. This guide provides empathetic strategies and actionable steps to navigate this challenging transition respectfully and effectively, prioritizing your loved one's well-being.

Quick Summary

Address your parent's wish to leave assisted living by first actively listening to their concerns, then working with them and staff to address issues or explore alternative living arrangements that respect their autonomy while ensuring their safety and needs are met.

Key Points

  • Listen with Empathy: Understand the 'why' behind your parent's request by having an open, honest conversation without judgment to uncover their true motivations.

  • Address Underlying Issues: Identify if the problem is loneliness, a desire for more independence, or dissatisfaction with care and explore solutions with community staff before a move.

  • Evaluate All Alternatives: Consider options like enhanced in-home care, a different assisted living facility, or multigenerational living, involving your parent in the research process.

  • Balance Safety and Autonomy: Have realistic discussions with your parent about the practical challenges and risks associated with leaving, such as medication management and emergency response.

  • Seek Professional Help: Involving a geriatric care manager, social worker, or elder law attorney can provide objective guidance and mediation for complex situations.

  • Be Patient and Supportive: The transition is emotionally taxing for both parties. Offer consistent emotional support, personalize their space, and set realistic expectations for adjustment.

In This Article

Understanding the 'Why' Behind the Request

When a parent expresses a desire to leave assisted living, the first and most crucial step is to understand the root cause of their unhappiness. Feelings of frustration, loneliness, or a longing for independence are common and valid. Approaching this conversation with empathy, patience, and genuine curiosity can uncover the underlying issues and transform a difficult moment into an opportunity for better solutions.

Common reasons for wanting to leave

  • Loss of Independence: Many seniors equate moving to assisted living with a loss of control and freedom. This can lead to frustration and a desire to reclaim their autonomy.
  • Relocation Stress Syndrome: The move itself is a major life change that can cause stress, anxiety, and even depression, especially in the first few months.
  • Loneliness or Social Isolation: Despite being in a community, some individuals may feel a lack of genuine connection. A mismatch in lifestyle or personality can lead to feeling more isolated than before.
  • Nostalgia for Home: The comfort and familiarity of their long-time residence, filled with cherished memories, can be a powerful motivator for wanting to return.
  • Concerns with Care or Community: Sometimes, the issue is with the quality of care, staff, or specific living conditions, which might cause dissatisfaction and a desire for a change.

Collaborative Problem-Solving

Once you understand the reasons, you can work collaboratively to find a solution. This approach empowers your parent and shows that their feelings are respected.

Address concerns within the current community

Before considering a move, explore whether issues can be resolved in the current facility. It's often easier to make adjustments than to manage a full relocation.

  1. Engage the Community Staff: Schedule a meeting with the facility's management or care coordinator. Discuss your parent's concerns openly and ask what accommodations can be made. This could involve changing rooms, adjusting care plans, or increasing engagement opportunities.
  2. Encourage Social Engagement: If loneliness is the issue, work with staff to find clubs, activities, or classes that match your parent's interests. Joining them for an activity can help them feel more comfortable and engaged.
  3. Personalize Their Space: Help your parent make their living space feel more like home. Bringing in familiar furniture, family photos, and cherished mementos can help create a sense of comfort and belonging.

Explore alternative living arrangements

If issues cannot be resolved, or if your parent's health and happiness would be better served elsewhere, it's time to explore alternatives. Include your parent in this process to maintain their sense of control.

  • In-Home Care Services: For some, returning home is a safe option with the right support. In-home care can provide assistance with daily living activities, medication management, and companionship. This allows them to stay in a familiar environment while ensuring their needs are met.
  • Another Assisted Living Community: The current facility might simply not be the right fit. Researching and touring other communities together can help find one that better aligns with their personality, lifestyle, or spiritual needs.
  • Multigenerational Living: A parent moving in with a family member can provide a loving, supportive environment, provided the family can offer the necessary level of care.

Balancing Autonomy and Safety

One of the most challenging aspects is balancing your parent's desire for independence with the need for their safety. Have an open discussion about the practical realities of leaving assisted living.

Discuss the realities together

  • Medication Management: Who will ensure medications are taken correctly and on time?
  • Meal Preparation: Is your parent capable of preparing nutritious meals for themselves, or would they need a service like Meals on Wheels?
  • Emergency Response: In case of an emergency, who will be there to help?
  • Social Interaction: How will leaving the community affect their social life and opportunities for connection?

Create a practical comparison table

Comparison of Living Options

Feature Assisted Living Home with In-Home Care Living with Family Potential Issues Potential Benefits
Care Level 24/7 supervision and assistance Scheduled, intermittent care Varies, depending on family availability Gaps in care, especially at night or during emergencies Customizable care plans, continuity of care
Social Life Communal activities, dining, and events Depends on family and outside connections Integrated family life, social activities Isolation if homebound or not actively engaged Strong family bonds, integration into family life
Safety Designed with safety features, trained staff Requires home modifications, emergency response system Requires family training, supervision, and planning Fall risks, unattended emergencies, medication errors Familiar environment, personalized safety measures
Cost Fixed monthly fee covering most services Hourly rates for caregivers, supplies, and potential home mods Shared household expenses, potential renovations High costs for intensive care, burden on family finances Can be cost-effective for lower-level care needs
Independence Retains independence within a structured setting High degree of independence and control Depends on family dynamics Perceived loss of autonomy, potential for conflict Maximum independence and control over daily life

Seeking Professional Guidance

If the situation is particularly complex or emotions are running high, involving a third-party professional can be beneficial.

  • Geriatric Care Manager: A professional who can assess your parent's needs and recommend appropriate resources or alternative solutions.
  • Social Worker: A social worker specializing in older adult care can mediate family discussions and offer guidance based on your parent's unique needs.
  • Elder Law Attorney: If a parent lacks capacity and the move poses a significant safety risk, consulting an elder law attorney about legal options, such as guardianship, may be necessary.

For additional support and resources in elder care, consider visiting the National Institute on Aging website.

Conclusion

When a parent wants to leave assisted living, the most effective response is a compassionate, empathetic, and collaborative one. By actively listening, addressing the underlying concerns, and thoroughly exploring all options with your parent, you can find a solution that respects their wishes while prioritizing their safety and well-being. Whether this leads to adjusting their current living situation or transitioning to a new one, the process strengthens trust and affirms your commitment to their happiness.

Frequently Asked Questions

If a parent with dementia wants to leave, reasoning with them may not be effective. Focus on reassuring them and redirecting their attention. If they are in danger, you may need to consult a physician or elder law attorney regarding guardianship to ensure their safety.

Adjustment to assisted living can vary, but it often takes 3 to 6 months. Personalizing their space, encouraging social interaction, and visiting regularly can help ease the transition.

If returning home is unsafe, focus on improving their current situation. Work with staff to address concerns, personalize their living area, and increase their social engagement. Exploring other assisted living facilities that might be a better fit is also an option.

Start by asking open-ended, empathetic questions like, 'What would you change about your situation?' or 'What do you miss most about living at home?' This approach encourages them to share their feelings without feeling defensive.

Relocation stress syndrome is the anxiety, depression, and confusion that can accompany a major move for an older adult. Help by providing emotional support, being patient, and actively personalizing their new environment to make it feel more familiar and comforting.

Generally, if a resident is of sound mind and not a danger to themselves or others, they have the right to leave. However, facilities have policies and may require notice. An elder law attorney can clarify specific rights.

Schedule a family meeting to discuss everyone's concerns and align on a course of action. Involving an objective third party, such as a social worker, can help facilitate a respectful and productive conversation.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.