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When communicating with a person with dementia, what should you avoid?

5 min read

It is estimated that over 6 million Americans are living with Alzheimer's, the most common form of dementia, which profoundly affects communication abilities. Understanding when communicating with a person with dementia, what should you avoid? is critical for maintaining a positive and respectful relationship.

Quick Summary

Caregivers and family members should avoid arguing, correcting facts, using complex language, and talking down to a person with dementia; instead, they should focus on calm, simple, and patient interactions that validate the person's feelings and reality.

Key Points

  • Avoid Correcting Memories: Let go of the need for factual accuracy and instead, validate the emotions behind their words to prevent frustration.

  • Use Simple Language: Stick to short, simple sentences and one-step instructions to prevent overwhelming a person with dementia during conversation.

  • Don't Argue: Logic is ineffective with dementia. Instead of arguing, redirect the conversation or use a calming apology to de-escalate tension.

  • Respect Their Dignity: Avoid elderspeak, condescending tones, and talking about them as if they aren't present. Treat them as the adult they are.

  • Focus on Feelings, Not Facts: When memories are wrong, respond to the underlying feelings of confusion, sadness, or joy. The feelings are real, even if the facts are not.

  • Limit Distractions: Create a quiet environment for conversation by turning off the TV or radio to help them focus and reduce confusion.

In This Article

The Dangers of Contradiction and Correction

One of the most common pitfalls caregivers face is the impulse to correct a person with dementia when they misremember a fact. This often leads to unnecessary conflict and distress for everyone involved. For someone with dementia, their version of events is their reality, and challenging it serves no positive purpose. The logical centers of the brain responsible for understanding and processing facts are compromised, making rational debate impossible. Instead of correcting a mistaken memory, it is more compassionate and effective to focus on the emotions being expressed.

Why correcting can backfire

Correcting someone with dementia can be humiliating and upsetting for them. It reminds them of their cognitive struggles, which can trigger feelings of inadequacy, sadness, or anger. A simple reminder like, “Your mother passed away years ago,” can cause them to relive the grief of that loss as if it were the first time, only to forget again moments later. This creates a cycle of confusion and pain that can be avoided entirely by validating their feelings rather than their facts. For instance, if they ask where their deceased spouse is, you can respond with, “I know you miss her so much. What do you remember most about her?”

Avoiding Confrontation and Arguments

Arguments are a losing battle with a person who has dementia, as their ability to follow logical reasoning is impaired. Trying to prove a point or win a dispute will only escalate the person's anxiety and agitation. In these situations, your goal should not be to 'win' the argument, but to maintain a peaceful and secure environment for the person in your care.

Effective de-escalation techniques

Instead of engaging in a conflict, try these techniques:

  • Change the subject. Redirect the conversation to a pleasant or neutral topic. If they are distressed about a fantasy, shift their focus to something calming, like listening to music or looking at old photos.
  • Accept the blame. Sometimes, the simplest way to end a disagreement is to apologize, even if you are not at fault. Saying, “I'm sorry, I must have forgotten,” can de-escalate the situation and provide reassurance.
  • Take a short break. If your frustration is building, it is wise to briefly remove yourself from the situation. Say something simple like, “I'll be right back,” and step into another room for a minute to compose yourself. Often, the person with dementia will have forgotten the issue by the time you return.

The Pitfalls of Complex Language and Questions

Dementia often impairs a person's ability to process and understand complex information. Long, multi-part sentences and open-ended questions can be overwhelming and confusing. The individual may become flustered, embarrassed, or withdraw from the conversation altogether.

Speaking clearly and simply

To ensure your message is understood, it is best to use simple words and short, concise sentences. Break down instructions into single, manageable steps. For example, instead of, “First we need to find your shoes, then your jacket, and then we can leave,” try saying, “Let’s put on your shoes,” and then, “Now, let’s get your jacket.”

Limiting choices

Open-ended questions like, “What would you like for lunch?” can be paralyzing. A person with dementia may not have the cognitive resources to consider all the possibilities. A better approach is to offer a simple choice with visual cues. For example, “Would you like the soup or the sandwich?” while showing them the options.

Respect and Dignity: What Not to Say

Speaking to a person with dementia in a demeaning or childish manner, often referred to as “elderspeak,” strips them of their dignity. Using pet names like “sweetie” or “honey” or a high-pitched, sing-song voice can be condescending and frustrating for them. They are adults, and they deserve to be treated with respect, even if their cognitive abilities have declined. Similarly, talking about them as if they are not present is insensitive and can be distressing if they overhear.

The importance of non-verbal cues

Since verbal communication can be challenging, a person with dementia often relies on non-verbal cues. They will pick up on your tone of voice, facial expressions, and body language. It is crucial to remain calm and positive. Approaching them at eye-level, maintaining gentle eye contact, and using a warm, reassuring tone can make all the difference in a conversation.

Comparison of Communication Styles

Ineffective Approach (What to Avoid) Effective Approach (What to Do)
Arguing or correcting a mistaken fact. Validating feelings rather than facts.
Using long, complex sentences or instructions. Using short, simple sentences and one-step instructions.
Asking open-ended questions with too many choices. Offering simple choices or yes/no questions.
Employing elderspeak or a condescending tone. Maintaining a respectful, adult tone and body language.
Testing their memory by asking, “Do you remember?” Reminiscing together by sharing your own memories.
Talking about them as if they are not there. Including them in the conversation and addressing them directly.

The Emotional Toll on the Caregiver

It is easy for a caregiver to become frustrated and take a person’s confused or repetitive behavior personally. However, it is vital to remember that these actions are symptoms of a disease, not a reflection of the person's character or a deliberate attempt to be difficult. The inability to communicate effectively can be as distressing for them as it is for you. Acknowledging your own feelings and taking short breaks can prevent burnout and maintain a healthy perspective.

Building Connection Beyond Words

Communication isn't solely about words. As verbal skills decline, non-verbal communication becomes even more powerful. Gentle touch, such as holding their hand or a reassuring pat on the back, can convey comfort and affection. Familiar activities like listening to favorite music, singing old songs, or looking at family photos can bypass the cognitive barriers and connect on an emotional level, bringing a sense of peace and joy. Humor can also be an effective tool, allowing you to laugh with them over small misunderstandings, which can help alleviate tension.

Conclusion

Effective communication with a person with dementia requires patience, empathy, and a willingness to adapt your approach. By understanding what to avoid—arguing, correcting, using complex language, and showing frustration—you can minimize stress and frustration for both yourself and your loved one. Instead, embrace simple, reassuring, and respectful interactions. Focusing on validating their feelings, redirecting conversations gently, and using non-verbal cues can help preserve a meaningful connection and ensure their dignity throughout the journey of dementia. This compassionate approach fosters a more peaceful and loving environment, allowing you to focus on the person, not the illness.

For more comprehensive resources on supporting individuals with dementia, a wealth of information can be found on authoritative websites like the National Institute on Aging: Communicating With a Person Who Has Alzheimer's.

Frequently Asked Questions

Asking 'Do you remember?' can feel like a test and causes anxiety and embarrassment if they can't recall the memory. It's more compassionate to say, 'I remember when...' or 'Tell me about...' to reminisce together.

Experts often advise 'therapeutic fibbing' or joining their reality to prevent distress. For instance, if they want to go to work but have been retired for years, you can say, 'Let's have some coffee first,' to redirect them rather than correcting the memory.

Repetitive questions are a common symptom. The best approach is to answer patiently and gently each time, without showing frustration. Reminding them that they've already asked will not stop the behavior and can cause more anxiety.

Stay calm and do not argue. Try to identify the trigger for their anger. Validate their feelings by saying, 'I can see you're upset,' and then attempt to redirect their attention to a calming activity or different topic.

No, raising your voice can be perceived as anger or shouting and may cause more distress. Instead, speak in a clear, low-pitched, and reassuring tone. Get their attention first and ensure there are minimal distractions.

Correcting an inaccurate story can make a person with dementia feel embarrassed or humiliated. Their brain no longer processes information logically, so insisting on the correct sequence of events is futile and damaging to your relationship.

Avoid reminding them of the death, as this can cause fresh grief and confusion. Instead, focus on the positive memories they have of that person. Saying something like, 'Tell me about your time with them,' can be a comforting and safe way to engage.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.