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How do you stop people with dementia from wandering? A caregiver's guide.

4 min read

Approximately 60% of people with dementia will wander at least once, a behavior that is both common and dangerous. Understanding how do you stop people with dementia from wandering is essential for any caregiver to prevent serious incidents and ensure their loved one's security and well-being.

Quick Summary

Preventing wandering in dementia involves a multi-layered approach of securing the home environment, establishing consistent routines, engaging the individual in meaningful activities, and leveraging identification and tracking technology. Understanding the motivation behind the behavior is key to effective management.

Key Points

  • Understand the Triggers: Address the underlying reasons for wandering, such as fear, boredom, or unmet needs, rather than just the behavior.

  • Secure Exits Strategically: Install locks out of sight, camouflage doors, and use visual barriers like dark mats to deter a person from leaving.

  • Use High-Tech Aids: Employ GPS tracking devices and door/window alarms to provide quick alerts and assist in locating a person if they wander.

  • Maintain a Strict Routine: A predictable daily schedule for meals, activities, and sleep can reduce agitation and the likelihood of wandering, especially during 'sundowning'.

  • Engage with Purpose: Redirect restless energy with meaningful activities or safe, supervised walks to keep the person occupied and reduce the urge to roam.

  • Prepare for Emergencies: Create a 'wandering kit' with a recent photo, critical information, and an unwashed item of clothing for scent, in case of an incident.

  • Build a Community Network: Inform neighbors and local law enforcement about the person's risk of wandering to broaden the safety net.

In This Article

Understanding the Root Causes of Wandering

Wandering is not aimless; it is a purposeful behavior driven by confusion, fear, and unmet needs. For many people with dementia, wandering is a way of communicating something they can no longer express with words. Common triggers include:

  • Stress and Fear: An unfamiliar or overstimulating environment can cause anxiety, prompting the person to seek an escape.
  • Searching: The individual may be looking for a specific person or object, or attempting to fulfill a past routine, such as going to a job they held decades ago.
  • Unmet Needs: Simple needs like hunger, thirst, or the need to use the bathroom can trigger restlessness and pacing.
  • Disorientation: A person may simply become lost or confused, even within their own home, and attempt to find a familiar place.

By identifying and addressing the underlying cause, caregivers can often prevent the wandering impulse from taking hold.

Practical Strategies for Securing the Home

Creating a safe and secure environment is the first line of defense against wandering. A layered approach combining low-tech and high-tech solutions is often most effective.

Low-Tech Home Modifications

  • Install deadbolts and sliding chain locks on exterior doors, placing them either very high or very low, out of the person's typical line of sight.
  • Disguise exit doors by painting them the same color as the surrounding walls or covering them with removable curtains or large posters.
  • Use a black or dark-colored mat in front of doorways. For some with dementia, this can appear as a hole or obstacle they will avoid stepping over.
  • Keep car keys, coats, shoes, and other items that signal departure out of sight and away from the door to prevent triggering the desire to leave.

High-Tech Safety Solutions

  • Wearable GPS Trackers: Devices disguised as watches or pendants can provide peace of mind by allowing caregivers to track a person's location via a smartphone app. Some trackers offer geofencing, which sends an alert if the wearer moves beyond a set boundary.
  • Door and Window Alarms: Simple chimes or more advanced pressure-sensitive mats can alert caregivers whenever an exit is opened or crossed.
  • Bed Exit Alarms: These mats placed beside the bed can alert you if the person gets up during the night, a common time for wandering.

Establishing Calming Routines and Engagement

Predictability and purpose can greatly reduce the anxiety and restlessness that lead to wandering.

The Importance of Routine

  • Structured Days: Create a consistent daily schedule for waking, eating, and sleeping. This helps anchor the person and reduce confusion, especially during "sundowning" periods in the late afternoon and evening.
  • Planned Activities: Identify the times when wandering is most likely to occur and schedule engaging activities to occupy that time. A short walk, a puzzle, or listening to music can serve as a positive distraction.

Channeling Restless Energy

  • Safe Physical Activity: Supervised walks in a secure, fenced yard can provide an outlet for pacing and restlessness. For those who can no longer walk long distances, a rocking chair or repetitive, simple tasks can help.
  • Meaningful Tasks: Involve the person in simple, everyday chores. Folding laundry, dusting, or preparing food can provide a sense of purpose and structure.

Emergency Planning and Community Awareness

Even with the best precautions, a wandering incident can still occur. Being prepared is critical for a fast and safe resolution.

The Wandering Kit

  • Keep a recent, high-quality photograph of the person in an easily accessible place. This can be given to police and search volunteers.
  • Compile a list of places the person may try to go, such as former residences, workplaces, or favorite parks.
  • Keep an unwashed item of the person's clothing in a sealed plastic bag. The scent can be used by search dogs if necessary.

Building a Support Network

  • Inform your neighbors and local police that you are caring for a person with dementia who is at risk of wandering. Give them your contact information and a recent photo.
  • Consider enrolling the person in a local wandering response service like Project Lifesaver or a state's Silver Alert program. These programs provide a system for quickly locating lost vulnerable adults.

Comparison Table: Wandering Prevention Tools

Strategy Pros Cons Best for...
High/Low Locks Inexpensive, simple to install Can be forgotten by caregiver, may be bypassed Low-tech, initial home security
GPS Tracker Fast location tracking, geofencing alerts Can be expensive, dependent on batteries Quick response to a wandering event
Door Alarms Immediate alert when door is opened Can be ignored, can cause anxiety if constant Immediate caregiver awareness
Engaging Activities Addresses root causes (boredom, restlessness) Requires consistent effort, not always effective Proactive, behavioral management
Community Awareness Builds a local support network Dependent on others' attentiveness Broadening the safety net

Conclusion

Managing the risk of wandering in dementia requires a vigilant, proactive, and compassionate approach. By combining home safety modifications, technology, consistent routines, and community preparedness, caregivers can create a safer environment and reduce the chance of a loved one becoming lost. Prioritizing engagement and understanding the underlying triggers of wandering helps create a more peaceful and secure life for everyone involved. For more in-depth information, the Alzheimer's Association is a valuable resource on this topic, with a section dedicated to managing wandering on their website.

Frequently Asked Questions

Wandering is often a purposeful behavior triggered by confusion, stress, or unmet needs like hunger or thirst. It can also be an attempt to follow a deeply ingrained past routine or to find a familiar person or place from their memories.

Yes, placing deadbolts high or low on doors, outside of the person's usual line of sight, can be very effective. This makes the lock less obvious and harder to access, preventing a confused person from easily opening the door.

Sundowning is a state of confusion and agitation that occurs in the late afternoon and evening for people with dementia. It is a common trigger for wandering, as the person may become disoriented or anxious and attempt to leave to find comfort or security.

Yes, GPS trackers are a great safety tool for individuals at risk of wandering. Available in devices like watches, pendants, or shoe inserts, they allow caregivers to monitor the person's location and receive alerts if they leave a designated safe area.

To camouflage a door, you can paint it the same color as the wall, hang a curtain over it, or place a large poster or artwork over the surface. Making the door less noticeable can reduce the visual cue to exit for someone with cognitive impairment.

If you cannot find your loved one within 15 minutes, you should call 911 immediately and inform them that a vulnerable adult with dementia is missing. Provide them with a recent photo and details from your emergency 'wandering kit'.

No, physical restraint is not recommended and can be dangerous, causing injury and increasing agitation and distress. The focus should be on prevention and redirection, using calming techniques and a secure environment to manage wandering behavior safely.

Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.