Skip to content

What are the strange behaviors of dementia patients? A guide for compassionate care

4 min read

According to studies, as many as 90% of individuals with dementia will exhibit some form of behavioral or psychological symptom over the course of their illness. This guide explains what are the strange behaviors of dementia patients and offers proven, compassionate strategies for managing them effectively.

Quick Summary

Dementia can cause a variety of challenging behaviors, including repetition, wandering, hoarding, sundowning, and paranoia, which are often driven by confusion, fear, and unmet needs. Understanding the root causes of these actions, rather than focusing on the behavior itself, is key to providing effective and empathetic care.

Key Points

  • Behavior is Communication: Strange behaviors in dementia are often the person's way of communicating a need, fear, or frustration they can't express verbally.

  • Look for the Root Cause: Instead of reacting to the behavior itself, identify the underlying trigger, which could be confusion, pain, or environmental factors.

  • Validation Over Confrontation: Never argue or try to reason with a person with dementia. Instead, validate their feelings and gently redirect them.

  • Establish Routine and Safety: A consistent daily routine provides comfort and reduces anxiety, while safety measures are critical for behaviors like wandering and hoarding.

  • The Caregiver Needs Support: Caregiving is challenging; seeking support through groups, resources like the Alzheimer's Association, and prioritizing self-care is essential to avoid burnout.

  • Medical Consultation is Key: Sudden behavioral changes can signal a treatable medical issue, so it's important to consult a doctor to rule out other causes.

In This Article

Understanding the Root Causes of Challenging Behaviors

For family members and caregivers, witnessing personality shifts and unusual actions can be distressing and confusing. It is crucial to remember that these behaviors are not intentional attempts to be difficult; they are symptomatic of the progressive brain damage caused by the disease. The patient’s ability to communicate, reason, and process information is compromised, leaving them to express distress through their actions.

Common Manifestations of Dementia-Related Behavior

Strange behaviors in dementia can appear in many forms and often change as the disease progresses. What may start as simple forgetfulness can evolve into more complex and challenging patterns. Recognizing these patterns is the first step toward finding effective coping strategies.

Repetitive Actions and Statements

One of the most common behaviors is repetition, where a person asks the same question or performs the same action over and over again. This can be caused by short-term memory loss, anxiety, or an unmet need.

  • Repeatedly asking, “When are we going home?”
  • Tidying or shuffling objects constantly.
  • Fidgeting with clothing or objects.

Wandering and Restlessness

Wandering is a significant safety concern for many caregivers. This behavior can be driven by boredom, confusion about time or place, a need for exercise, or even a desire to find something from their past.

  • Pacing back and forth within the home.
  • Attempting to leave the house, sometimes during the night.
  • Feeling a strong urge to get to a specific, often imagined, place.

Hoarding and Hiding Objects

People with dementia may hide or collect objects, sometimes seemingly worthless items like mail or trash. This can be rooted in a fear of loss, a desire to secure prized possessions, or a distorted memory of a past event, such as living through a period of scarcity.

Sundowning

Sundowning is the term for increased confusion, agitation, and anxiety that occurs in the late afternoon or early evening. This behavior is believed to be linked to a disruption in the person’s internal “body clock” and can be one of the most challenging aspects of caregiving.

Inappropriate or Impulsive Behavior

Damage to the brain's frontal lobe can lead to a loss of social inhibition, resulting in socially inappropriate behavior. This can include making inappropriate sexual advances, using profanity, or showing a lack of sensitivity to others' feelings.

Practical Strategies for Caregivers

Managing these behaviors requires a shift in perspective, moving from correction to compassion. Instead of trying to reason with the patient, which can increase frustration, focus on understanding the underlying emotion or need.

  • Stay Calm and Reassuring: Your tone of voice and body language can be more powerful than your words. A calm demeanor can help de-escalate a tense situation.
  • Use Distraction: When a behavior arises, redirect the person's attention to a pleasant activity. For example, if they are pacing, offer to go for a short walk or play their favorite music.
  • Establish a Consistent Routine: A predictable daily schedule can reduce anxiety and confusion, especially during the challenging "sundowning" hours. Consistency in wake-up times, meals, and activities provides comfort and structure.
  • Modify the Environment: Remove potential triggers for anxiety and agitation. This includes reducing noise and clutter, providing adequate lighting to minimize confusing shadows, and securing hazardous items.

Behavioral Comparison and Response Table

Behavior Potential Cause Compassionate Response
Repetitive Questioning Short-term memory loss, anxiety, feeling of insecurity. Reassure calmly and answer simply. If it continues, redirect the conversation to a different topic or activity.
Wandering Disorientation, unmet need for exercise, searching for something familiar. Join them for a walk in a safe, controlled area. Ensure doors are secured with high-mounted locks or alarms.
Hoarding Fear of loss, desire for security, misremembering an event. Provide a 'rummage box' of safe, personal items. Avoid confrontation and search for hidden items discreetly.
Paranoia Confusion, memory gaps, misinterpretation of events. Acknowledge their feelings without arguing. Offer reassurance and help them look for the "missing" item.

How to Seek Medical Guidance

While these strategies can provide immediate relief, it is essential to involve a healthcare professional. Sudden, significant changes in behavior could indicate a treatable medical issue, such as a urinary tract infection, medication side effects, or pain that the person cannot articulate. Keeping a log of the behavior—including what, when, and where it happened—can be incredibly helpful for the doctor.

Supporting the Caregiver

Caring for a person with dementia is physically and emotionally demanding. It's vital for caregivers to manage their own stress and seek support. Joining a support group, connecting with other caregivers, or utilizing respite care services can prevent burnout. The Alzheimer's Association offers a wealth of resources, including support forums and a helpline.

For more detailed information and assistance, visit the Alzheimer's Association website.

Conclusion: Finding Empathy in the Face of Confusion

Understanding what are the strange behaviors of dementia patients ultimately means recognizing that a person’s actions are a form of communication. They express fear, frustration, or a need that they can no longer verbalize. By adopting a compassionate, patient-centered approach, caregivers can transform a difficult situation into an opportunity for connection and empathy, creating a safer and more comforting environment for their loved one.

Frequently Asked Questions

Repetitive questioning is typically a symptom of short-term memory loss and anxiety. The person simply forgets they have already asked and received an answer, and may be seeking reassurance.

To prevent wandering, establish a structured routine, ensure the person gets enough exercise, use high-mounted locks or door alarms, and consider tracking devices. Forcing them to stay put can cause more agitation.

Sundowning is an increase in confusion and agitation during the late afternoon and evening. To manage it, maintain a consistent routine, provide daytime activity, reduce noise and chaos during evening hours, and use adequate lighting.

During an aggressive outburst, remain calm and speak in a soothing voice. Do not argue. Give the person space and remove any potential hazards. Try to distract them with a pleasant activity once they have calmed down. Contact a doctor to rule out pain or infection.

Hoarding often stems from a fear of loss or a need for security. It can also be a way of controlling a small part of their increasingly confusing world. Providing a 'rummage box' with safe, personal items can often satisfy this impulse.

Inappropriate social behavior is often caused by damage to the frontal lobe of the brain, which affects impulse control and social awareness. The person is not being deliberately rude but has lost the ability to censor their words or actions.

A sudden or rapid change in behavior, such as increased agitation or confusion, can signal a treatable medical condition like a urinary tract infection, dehydration, or pain. It is important to consult a doctor immediately to investigate.

References

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5

Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.