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What are the symptoms of Sundowners disease? An essential guide

4 min read

Approximately 20% of people with Alzheimer's disease experience Sundowners syndrome, a pattern of worsening confusion and agitation in the late afternoon and evening. Understanding what are the symptoms of Sundowners disease is the first step toward effective management and support.

Quick Summary

Sundowners disease symptoms involve increased confusion, anxiety, agitation, and restlessness occurring late in the day, often with mood swings, pacing, wandering, and disrupted sleep patterns. Recognising these patterns helps caregivers provide better support and manage episodes.

Key Points

  • Agitation and Confusion: Sundowners syndrome is a pattern of increased confusion, anxiety, and agitation that worsens in the late afternoon and evening.

  • Emotional Changes: Common emotional symptoms include irritability, mood swings, sadness, and an increase in anxiety or fear.

  • Behavioural Issues: Individuals may exhibit restlessness, pacing, wandering, or a tendency to follow their caregiver closely (shadowing).

  • Disturbed Sleep: The syndrome disrupts the body's internal clock, leading to daytime sleepiness and difficulty sleeping at night.

  • Root Causes: While the exact cause is unknown, it is linked to dementia-related brain changes, disrupted circadian rhythms, and environmental triggers like low light.

  • Management is Key: Caregivers can manage symptoms by maintaining routine, adjusting lighting, and using calm reassurance and distraction.

In This Article

Understanding Sundowners Syndrome

What is Sundowners Syndrome?

Sundowners syndrome, also known as sundowning or late-day confusion, is not a distinct medical diagnosis but a group of symptoms experienced by some individuals with dementia, most commonly Alzheimer's disease. It is characterised by an increase in behavioural and psychological symptoms as daylight fades and continues into the night. While the exact cause is not fully understood, it is believed to be linked to disruptions in the body's internal biological clock (circadian rhythm) caused by brain changes related to dementia. Fatigue, reduced lighting, and changes in routine are also known triggers.

Early vs. Advanced Symptoms

The progression of sundowners syndrome often mirrors the progression of dementia itself. In the early stages, symptoms may be subtle and inconsistent, such as mild restlessness or confusion. As the dementia advances to its middle and late stages, sundowning symptoms typically become more pronounced and frequent, impacting both the individual and their caregivers significantly. Recognition of these escalating patterns is key to effective intervention.

The Key Symptoms of Sundowners Disease

The symptoms of Sundowners disease can be broadly categorised into behavioural, emotional, and physical manifestations. They can vary in severity and presentation from person to person.

Behavioural Symptoms

  • Increased agitation and restlessness: A person may become visibly anxious, fidgety, or unable to sit still. This restlessness often manifests as pacing, which can become constant and exhausting for the individual.
  • Wandering: A particularly dangerous symptom is the urge to wander, especially during late hours. The individual may become disoriented and attempt to leave the house, putting them at risk of getting lost.
  • Shadowing: Some individuals may follow their caregiver around constantly, mimicking their movements. This behaviour stems from increased anxiety and a need for reassurance during a time of heightened confusion.
  • Repetitive actions: Repetitive behaviours, such as repeating the same question or motion, can be a sign of increased confusion.
  • Communication difficulties: The ability to communicate clearly may decline, leading to incoherent speech or increased frustration when trying to express thoughts.

Emotional Symptoms

  • Anxiety and fear: As daylight fades, the person may experience a growing sense of fear, anxiety, and general unease. This can be caused by shadows making familiar objects appear strange and threatening.
  • Mood swings and irritability: Sudden, unexplained mood changes are common. The person might shift from being cooperative to irritable or aggressive with little provocation.
  • Depression and sadness: Feelings of sadness, weepy episodes, or withdrawn behaviour can intensify during sundowning episodes.
  • Paranoia: Unfounded suspicions about caregivers or family members can emerge, making the individual believe they are being harmed or that objects are being hidden.

Physical Symptoms and Sleep Disturbances

  • Sleep-wake cycle disruption: One of the most significant impacts of sundowners is the disruption of the sleep-wake cycle. Increased daytime sleepiness and difficulty sleeping at night exacerbate fatigue and confusion.
  • Insomnia: The increased agitation and restlessness often make it difficult for the person to fall asleep and stay asleep, creating a vicious cycle of fatigue and intensified symptoms.

Comparing Sundowning with Other Conditions

It is important to differentiate between sundowning and other conditions that may cause similar symptoms, such as delirium. Delirium is a medical condition causing severe, sudden confusion, and it is not tied to a specific time of day. A comparison helps clarify the distinction.

Feature Sundowners Syndrome Delirium
Timing Symptoms predictably worsen in the late afternoon and evening. Symptoms can fluctuate throughout the day but are not tied to a specific time.
Onset Gradual, linked to dementia progression. Rapid, often within hours or days.
Duration Episodes are temporary, lasting a few hours. Can last for days or weeks.
Associated Condition Associated with dementia, especially mid-to-late stages. Can be caused by infections, dehydration, medication side effects, etc..

Management Strategies for Sundowners

Managing sundowning involves a combination of environmental adjustments and behavioural techniques to reduce stress and promote comfort. Caregivers can often minimise the severity of symptoms by being proactive.

  • Maintain a consistent routine: A predictable daily schedule for meals, bathing, and activities can provide comfort and a sense of security.
  • Adjust lighting: Maximise natural light exposure during the day to help regulate the body's circadian rhythm. As dusk approaches, increase indoor lighting and close blinds to minimise shadows that can be confusing or frightening.
  • Reduce evening stimulation: Create a calm, quiet environment in the evening. Avoid loud TV programs, limit visitors, and engage in soothing activities like listening to calming music or reading.
  • Physical activity: Incorporate regular, gentle exercise during the day, such as a walk, to help promote better sleep at night. Avoid vigorous activity in the evening.
  • Calm reassurance: During an episode, use a gentle, reassuring tone of voice. Avoid arguing or correcting the individual's confusion. Instead, validate their feelings and try to redirect their attention to a favourite activity.

Conclusion

Recognising what are the symptoms of Sundowners disease is essential for providing effective, compassionate care for someone with dementia. By understanding the behavioural, emotional, and physical signs, caregivers can better prepare for and manage these challenging episodes. Implementing simple strategies, such as maintaining a consistent routine and adjusting the environment, can significantly reduce the impact of sundowning, leading to improved quality of life for both the individual and their support network. Remember, patience and a calm approach are key to navigating these difficult moments. For more information on navigating the challenges of caregiving for someone with dementia, resources are available from authoritative sources like the Alzheimer's Association.

Frequently Asked Questions

Symptoms typically begin in the late afternoon or early evening as the sun begins to set. They can continue throughout the night.

No, Sundowners syndrome is not a distinct medical diagnosis but rather a collection of symptoms associated with dementia, like Alzheimer's disease.

The exact cause is not fully understood, but it is believed to be linked to disruptions in the body's circadian rhythm due to dementia-related changes in the brain.

Caregivers can use strategies like maintaining a consistent daily routine, ensuring adequate lighting in the evening, and using calming techniques such as gentle reassurance and distraction.

While most common in individuals with dementia, some seniors without a formal dementia diagnosis may experience sundowning due to age-related changes, sleep disturbances, or other medical conditions.

The duration can vary, but episodes often last for a few hours. In some cases, the agitation and confusion can continue well into the night, impacting sleep.

Non-drug measures are typically recommended as the first line of defence. However, if lifestyle adjustments are ineffective, a doctor may consider medication, but side effects should be carefully evaluated.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.