Skip to content

What does a person with dementia do all day? A Guide for Caregivers

4 min read

According to the World Health Organization, over 55 million people worldwide live with dementia, each day presenting unique challenges and opportunities. Understanding what a person with dementia does all day is key to providing compassionate, effective care that promotes dignity and well-being.

Quick Summary

The daily life of a person with dementia is not defined by their diagnosis but by a structured routine of familiar activities adapted to their abilities. This includes regular hygiene, mealtimes, personalized cognitive exercises, physical movement, and sensory engagement, all aimed at reducing anxiety and fostering a sense of purpose.

Key Points

  • Routine Reduces Anxiety: A predictable daily schedule of familiar activities provides security and minimizes confusion for a person with dementia, reducing agitation and 'sundowning' behaviors.

  • Activities Are Stage-Dependent: Adapt daily tasks based on the stage of dementia, from maintaining independence in the early stage to focusing on sensory comfort and connection in the late stage.

  • Focus on Reminiscing and Sensory Input: Music, photos, and tactile activities can evoke positive memories and emotions, as these parts of the brain are often preserved longer than other memories.

  • Prioritize Meaningful Engagement over Achievement: The goal of activities is enjoyment and fostering a sense of purpose, not perfection. Participation, no matter how small, is what matters.

  • Break Down Complex Tasks: For those in mid-stage dementia, simplifying activities into single, manageable steps helps prevent frustration and allows for continued participation.

  • Consider the 'Best' Time of Day: Schedule more demanding activities, like bathing or appointments, during times when the person with dementia is typically most alert and cooperative.

In This Article

The Importance of Structure and Routine

For someone living with dementia, a predictable daily routine provides a sense of security and stability in a world that can feel increasingly confusing. Regular, consistent timing for meals, waking, and sleeping helps regulate the body’s internal clock and can significantly reduce agitation and the common issue of 'sundowning,' which is increased confusion in the late afternoon and evening. This structure minimizes the number of new decisions needed each day, decreasing stress and allowing the individual to engage more successfully with their environment.

Early-Stage Dementia: Fostering Independence

In the early stages, daily life often centers on maintaining independence and engaging in activities that are familiar and enjoyable.

  • Morning: A predictable morning routine might include getting dressed and ready for the day with minimal assistance. This is the ideal time for more complex tasks when energy levels are higher.
  • Midday: Cognitive stimulation activities, like puzzles, reading, or playing cards, can be engaging and rewarding. A former office worker, for example, might find satisfaction in organizing items or simple paperwork.
  • Afternoon: Light physical activity, such as a walk outdoors or gardening, helps reduce restlessness and promotes better sleep. Social outings, like visiting a memory café, offer interaction with peers.
  • Evening: A calming routine should be established, including listening to soothing music or looking at old photo albums to wind down before bed.

Mid-Stage Dementia: Adapting Activities for Success

As dementia progresses, caregivers must adapt activities to prevent frustration while continuing to provide meaningful engagement.

  • Simplified Tasks: Break down complex tasks into smaller, single-step instructions. For instance, during cooking, the person might only need to stir an ingredient rather than measure it.
  • Hands-On Activities: Focus on sensory and tactile activities. Folding laundry, sorting socks, or dusting can give a sense of purpose, especially for those who previously enjoyed domestic tasks.
  • Art and Music Therapy: Creative outlets like painting, coloring books, or listening to favorite playlists can tap into parts of the brain that remain strong long after other memories fade.
  • Structured Engagement: Group activities offered in memory care settings, such as music therapy or gentle exercise classes, can provide social interaction in a controlled, supportive environment.

Late-Stage Dementia: Focusing on Comfort and Connection

In the final stages, the focus of the day shifts entirely to comfort, emotional connection, and sensory engagement.

  • Sensory Stimulation: This includes gentle massage, listening to music from their past, or feeling different textures. Familiar smells, like a favorite soap or perfume, can be comforting.
  • Physical Comfort: The daily focus is on providing comfort through positioning, gentle touch, and routine personal care tasks, always ensuring dignity is maintained.
  • Reminiscence: Looking at photo albums, even without verbal communication, can still elicit emotional responses and spark moments of connection. The goal is enjoyment, not factual accuracy.

Comparing Activities for Dementia by Stage

Activity Type Early Stage Mid-Stage Late Stage
Cognitive Crossword puzzles, reading newspapers, board games Simplified jigsaw puzzles, sorting cards, memory boxes Looking at photo albums, listening to familiar stories
Physical Walking, gardening, dancing Gentle stretches, chair exercises, assisted walking Rocking, gentle range-of-motion exercises
Creative Painting classes, learning new hobbies Coloring books, singing along to music, baking simplified recipes Listening to music playlists, hand massage with lotion
Social Visiting friends, community center activities Memory cafés, supervised group activities, small family visits One-on-one time with loved ones, gentle conversation

Creating and Maintaining an Effective Daily Routine

For caregivers, managing a daily routine requires patience, observation, and flexibility. Start by observing what times of day your loved one is most alert and cooperative. Plan more demanding tasks, like bathing or appointments, during these 'best' times.

It is crucial to build upon existing habits. If the person has always enjoyed a cup of tea in the morning, incorporate that into the routine. Use visual cues, such as large clocks, picture schedules, or memory boards, to help them orient themselves.

Remember to remain flexible. Some days, your loved one may resist an activity. Rather than forcing the issue, offer a simple alternative or try again later. The goal is to reduce stress and promote a sense of peace, not to adhere to a rigid schedule. Caregiver well-being is also vital, so utilizing respite care and support systems is essential to prevent burnout. For additional resources and support, visit the National Institute on Aging's website at https://www.nia.nih.gov/.

Conclusion: The Purposeful Day

The daily life of a person with dementia is not a state of emptiness, but a life defined by their remaining abilities and personal history. Through person-centered care, consistent routines, and adapted activities, caregivers can help fill each day with purpose and comfort. Whether it’s folding laundry, listening to a favorite song, or simply holding hands during a walk, these moments create connections that enhance well-being and honor the individual. By focusing on what is possible rather than what has been lost, a meaningful, purposeful life can continue for both the person with dementia and their loved ones.

Frequently Asked Questions

Start by identifying their lifetime habits and preferences. Incorporate activities they enjoy and establish consistent times for waking, meals, and bedtime. Use visual aids like large clocks or picture schedules to help reinforce the routine.

Do not force the activity. Resistance may signal frustration or fatigue. Instead, try offering a different, simpler activity or postpone it for a short time. Flexibility and patience are key.

Calming evening activities are essential, especially for those who experience 'sundowning.' Consider listening to familiar, soothing music, looking through photo albums, or engaging in simple, repetitive tasks like folding towels.

Incorporate light, gentle exercise into the daily routine, such as a short walk after a meal or seated stretches while listening to music. Ensure the activity is safe and enjoyable.

Reminiscence therapy uses life stories, photos, and music to engage the person with dementia. It can evoke positive memories, foster emotional connection, and validate their life story, which is particularly effective in later stages.

A consistent routine can help reduce these behaviors. When they occur, try to identify the underlying need (e.g., hunger, boredom, or confusion). Use distraction with a calming activity and ensure a safe, clutter-free environment.

It is normal for interests to change as dementia progresses. Continually observe and adapt to their evolving preferences. An activity that was once enjoyed might become frustrating, so be open to trying new, simpler options.

References

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. 7
  8. 8

Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.