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What happens if wandering is not handled properly?

5 min read

According to the Alzheimer's Association, up to 60% of people with dementia will wander at some point during their illness. A failure to properly manage this behavior can result in serious, often catastrophic, consequences for the individual and immense stress for caregivers, underscoring the urgent need for effective intervention. What happens if wandering is not handled properly?

Quick Summary

If not managed properly, wandering behavior in individuals with cognitive impairment can lead to serious risks, including injury, environmental exposure, dehydration, and potentially life-threatening accidents. It also places a significant emotional and financial burden on caregivers, increasing the need for higher levels of care and supervision.

Key Points

  • Life-Threatening Risks: Unmanaged wandering can lead to serious accidents like traffic collisions, severe falls, and exposure to dangerous weather conditions.

  • Emotional and Psychological Distress: Both the wandering individual and their caregivers experience immense emotional distress, anxiety, and confusion due to the unpredictable and unsafe nature of the behavior.

  • Increased Caregiver Burden: The constant vigilance required to prevent wandering and deal with its consequences leads to significant caregiver burnout and stress, potentially affecting their own health.

  • Higher Level of Care Required: The escalation of risks often forces families to seek more restrictive and expensive institutional care sooner than planned.

  • Essential Prevention Strategies: Proactive management, including securing the home, establishing routines, providing engaging activities, and using modern tracking technology, is crucial for mitigating risks.

  • Severe Health Consequences: Uncontrolled wandering can result in dehydration, exhaustion, malnutrition, and other health issues, especially if the person becomes lost for an extended period.

  • Societal Impact: Wandering incidents can place a strain on community resources, requiring emergency services to locate missing individuals and posing a broader public safety concern.

In This Article

Immediate Dangers and Risks to the Individual

Unmanaged wandering poses immediate and significant physical risks. For individuals with dementia or other cognitive impairments, the instinct to wander can be strong, but their judgment is often compromised, leading to dangerous situations they are ill-equipped to handle. The environment, both indoors and outdoors, can become a minefield of potential hazards. These dangers are especially pronounced when a senior elopes, or leaves a supervised area undetected.

Life-Threatening Accidents

When a person wanders outside, they face numerous potentially fatal dangers. Traffic accidents are a top concern, as an individual may not recognize the danger of a busy street. Falls are also a major risk, particularly in unfamiliar or treacherous terrain like uneven pavement, stairs, or wooded areas. A study cited by WebMD found that the chances of survival for a person with dementia who wanders and gets lost decrease significantly after just 24 hours. This statistic alone highlights the dire consequences of inaction.

Environmental Exposure

Without proper supervision, a wanderer can be exposed to severe weather conditions. Hypothermia or frostbite can occur in cold climates, while dehydration and heatstroke are real threats in hot weather. They may not have the judgment to seek shelter or remove themselves from the elements, compounding the risk. Furthermore, they may forget to bring necessary items like glasses, hearing aids, or medications, which can lead to further health complications.

Physical Injuries and Malnutrition

Extended wandering, particularly if the person becomes lost, can lead to exhaustion, abrasions, and other soft tissue injuries. Malnutrition and dehydration become critical concerns if they cannot find food or water. For those with compromised balance, the physical exertion and unfamiliar surroundings significantly increase the risk of falls, leading to fractures or other serious injuries.

Psychological and Emotional Impact

The consequences of unmanaged wandering are not limited to physical harm. The psychological and emotional toll on both the individual and their caregivers is profound and long-lasting.

Emotional Distress for the Individual

For the wanderer, the experience is often terrifying. They may feel lost, confused, and disoriented, leading to high levels of anxiety and agitation. This distress can escalate into what is known as a “catastrophic reaction,” an extreme emotional outburst caused by feelings of being overwhelmed or threatened. The experience can deepen their feelings of fear and insecurity, potentially worsening their cognitive state over time.

Increased Caregiver Burden

Family caregivers often bear the brunt of the emotional stress. The constant fear and anxiety that their loved one might wander off is exhausting and can lead to significant burnout. This fear can consume their lives, leading to a constant state of hyper-vigilance. The physical and emotional strain can negatively impact the caregiver's own mental and physical health, sometimes leading to depression or other stress-related conditions. The situation may even lead to civil tort claims and legal ramifications for a care facility or family if neglect is proven.

Comparison of Properly vs. Improperly Handled Wandering

Aspect Properly Handled Wandering Improperly Handled Wandering
Safety Minimized risk of injury and elopement through secured environments and supervision. High risk of serious injury, accidents, falls, and exposure to the elements.
Individual's Well-being Reduced anxiety and confusion, maintaining a sense of routine and security. Heightened distress, confusion, and anxiety, potentially leading to catastrophic reactions.
Caregiver Stress Reduced fear and anxiety due to proactive safety measures and support. Significant emotional and physical burnout, constant hyper-vigilance, and immense stress.
Cost of Care Potential to delay or avoid higher-level institutional care by managing risks effectively at home. Increased likelihood of requiring expensive, specialized institutional care due to escalated risks and caregiver burnout.
Intervention Focus on non-pharmacological methods, such as engaging activities, secure environments, and routine. Reactive responses, often involving emergency services, and potential overuse of restraints.

Long-Term Consequences

The long-term effects of improperly managed wandering can be severe for both the individual and the caregiving system.

Accelerated Institutionalization

The escalating risks and increased caregiver burden associated with unmanaged wandering can force a family to seek institutionalized care sooner than might have been necessary. This move can be a traumatic experience for the individual, disrupting their routine and familiar surroundings, and for the family, who may feel guilt and grief over the decision. The cost of this level of care is also significantly higher, creating a financial burden.

Community Impact and Public Safety

Wandering individuals can become a public safety concern. Emergency services, including police and search-and-ray crews, are frequently called to find missing persons, which diverts valuable resources from other needs. Increased community awareness and preventative measures are crucial to mitigate this broader societal impact. Community-wide programs, such as Silver Alerts, are essential in mobilizing public assistance to find missing seniors with cognitive impairments.

Increased Healthcare Costs

The physical and emotional consequences of unmanaged wandering often lead to increased healthcare costs. Injuries from falls, exposure, and accidents require emergency medical attention and hospitalization. The mental health strain on caregivers may also require professional intervention. These costs place a significant financial strain on families and the healthcare system as a whole.

Prevention and Management Strategies

Effective management of wandering begins with a comprehensive strategy that addresses the underlying causes and creates a safe environment. The approach should be proactive, not reactive.

Non-Pharmacological Interventions

The cornerstone of prevention is often non-pharmacological intervention. This involves creating a safe, stimulating, and predictable environment. Addressing boredom and restlessness with meaningful activities can significantly reduce the urge to wander. Establishing and maintaining a consistent daily routine can also provide a sense of security and reduce confusion.

Securing the Environment

Securing the home or care facility is a critical step. This can involve installing specialized locks that are difficult for the individual to manipulate, placing alarms on exit doors, or hanging signs that deter the individual from leaving. Hiding car keys and securing dangerous objects are also necessary precautions. For outdoor spaces, fences and secure gates can prevent elopement.

Identification and Location Technology

For situations where a person might still get out, identification and location technology can be a lifesaver. This includes medical alert jewelry, which can provide vital information to first responders, or GPS trackers embedded in shoes, watches, or clothing. Companies like Elli offer resources for understanding and reducing wandering risks through such technologies. Some communities also have programs like the Medic Alert + Safe Return program, which works with local law enforcement to help find missing individuals.

Conclusion

The repercussions of improperly handled wandering are severe, spanning physical, emotional, and financial domains for both the individual and their support system. By understanding the gravity of the risks and implementing proactive, comprehensive management strategies, caregivers can significantly improve the safety and quality of life for those in their care. The focus should be on creating a secure, engaging environment, utilizing modern technology, and educating the community to prevent catastrophic outcomes. Ignoring the signs of wandering is a gamble with a person's health, safety, and well-being, and it is a gamble that no one should take.

Frequently Asked Questions

Early signs often include restlessness, pacing, an increased urge to go 'home' even when they are already there, or expressing a desire to leave. They may also start having trouble recognizing familiar places and people.

While wandering is a common symptom of dementia, it can also be associated with other cognitive impairments, developmental disorders like autism, confusion from medications, or unmet needs such as boredom or anxiety. A proper medical evaluation can help determine the cause.

Caregivers can help by maintaining a consistent daily routine, providing engaging activities, ensuring basic needs like hunger and thirst are met, and minimizing confusing or overstimulating environments. Regular physical exercise can also help reduce restlessness.

Various technologies can assist, including GPS trackers in footwear or jewelry, motion sensors on doors and windows, and simple door alarms. These tools provide an extra layer of protection and can alert caregivers if a person tries to leave.

If a loved one wanders off, caregivers should immediately begin a search of the immediate area and call 911. Having a recent photo and a list of common places the person might go will be helpful for first responders. Consider enrolling in local alert programs beforehand.

To secure a home, install high-placed or complex locks on exit doors and windows. You can also use door chimes or motion detectors that alert you when a door is opened. Hiding car keys and securing potentially dangerous items or areas is also important.

While there is no specific medication to stop wandering, some medications used to treat related symptoms like anxiety or agitation might indirectly help. However, non-pharmacological interventions are the primary and preferred approach for managing this behavior.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.