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What is sundowning and when does it start? A guide for caregivers

5 min read

According to the Alzheimer's Association, up to 20% of people with Alzheimer's will experience sundowning, a state of increased confusion and anxiety that can occur in the late afternoon or early evening. Understanding what is sundowning and when does it start is a critical first step for caregivers seeking to manage this challenging behavior.

Quick Summary

Sundowning is a behavioral pattern in dementia where confusion, agitation, and anxiety worsen late in the day. It is often linked to disruptions in the internal body clock and fatigue. The phenomenon typically begins in the late afternoon and can persist into the evening, affecting sleep and daily routines.

Key Points

  • Definition: Sundowning is a behavioral pattern in people with dementia, marked by increased confusion and agitation in the late afternoon and evening.

  • Onset: Symptoms typically begin as daylight fades, commonly between 4:30 p.m. and 11:00 p.m., and usually subside by morning.

  • Causes: Disrupted circadian rhythms (the body's internal clock), fatigue, and environmental factors like low light are believed to be contributing factors.

  • Symptoms: Common signs include restlessness, wandering, aggression, emotional outbursts, and confusion.

  • Management: Establishing a consistent daily routine, maximizing daytime light exposure, and controlling the evening environment are key non-pharmacological strategies.

  • Caregiver Support: The phenomenon is emotionally draining for caregivers, who should seek support to avoid burnout.

In This Article

What is Sundowning?

Sundowning is a term used to describe a phenomenon in which a person with Alzheimer's disease or another form of dementia experiences increased confusion, anxiety, agitation, and other behavioral changes in the late afternoon and evening hours. It is not a disease itself but rather a group of symptoms that occur at a predictable time of day. These behavioral changes can be distressing for both the individual and their caregivers. While the exact reason for sundowning is not fully understood, research points to several potential causes, including a disruption of the body's natural circadian rhythms.

The severity and nature of sundowning can vary widely among individuals. Some may exhibit restlessness and wandering, while others may become irritable, aggressive, or experience hallucinations and delusions. These symptoms typically subside by the morning, allowing the person to return to their more typical baseline behavior.

When Does Sundowning Typically Begin?

For most individuals who experience this phenomenon, sundowning symptoms begin in the late afternoon or early evening, as the sun begins to set. The window during which symptoms appear can vary, but common reports suggest it occurs between 4:30 p.m. and 11:00 p.m.. The duration of an episode can last for several hours and may continue into the night.

It's important to note that the timing can also be influenced by other factors, such as the changing of seasons. Some studies have suggested that sundowning can be more pronounced during the fall and winter months, when daylight hours are shorter, reinforcing the link to light exposure and the body's internal clock.

Signs and Symptoms of Sundowning

Caregivers often report a variety of behavioral and psychological symptoms associated with sundowning. These can be subtle at first but may become more pronounced as dementia progresses. Common signs include:

  • Increased confusion and disorientation: The person may forget where they are or what they are doing.
  • Anxiety and agitation: They may appear nervous, restless, or irritable.
  • Emotional outbursts: This can include crying, lashing out, or becoming verbally or physically aggressive.
  • Pacing or wandering: The person may be unable to settle down and may walk restlessly.
  • Suspiciousness or paranoia: They might develop false beliefs, such as a fear that someone is trying to harm them.
  • Shadowing: The individual may follow their caregiver closely, mimicking their movements and fearing being alone.
  • Hallucinations or delusions: Seeing or hearing things that are not there can occur, especially in more advanced stages.

What Causes and Triggers Sundowning?

While no single cause is definitive, experts believe that a combination of factors contributes to sundowning. The underlying neurodegeneration of dementia affects the part of the brain that regulates the body's sleep-wake cycle, known as the circadian rhythm. As dementia progresses, this internal clock can become disrupted, leading to daytime fatigue and nighttime wakefulness.

Triggers are environmental or physiological factors that can exacerbate or bring on an episode. Common triggers include:

  • Fatigue: Exhaustion from a long day can heighten confusion and restlessness.
  • Low lighting and increased shadows: As daylight fades, low light can create confusing or frightening shadows, leading to increased anxiety.
  • Overstimulation or boredom: An overly busy or chaotic day can be exhausting, but a lack of activity and stimulation can also trigger restlessness.
  • Disrupted routine: Changes to a predictable daily schedule can be disorienting for someone with dementia.
  • Physiological needs: Unmet needs such as hunger, thirst, or pain can contribute to discomfort and agitation.
  • Medication side effects: The timing or effects of certain medications can influence behavior.
  • Caregiver stress: The anxiety or frustration of a caregiver can sometimes be sensed and reflected by the person with dementia.

Sundowning vs. Delirium

It is crucial for caregivers to distinguish between sundowning and delirium, as the causes and treatments differ significantly.

Feature Sundowning Delirium
Onset Gradual and predictable, occurring in the late afternoon/evening. Acute and sudden, often developing over hours or days.
Timing Confined to the late-day and nighttime hours. Can occur at any time, though symptoms may fluctuate.
Duration Episodes are temporary, resolving by morning. Can last for days or weeks if the underlying cause is not treated.
Causes Linked to dementia progression, circadian rhythm disruption, and fatigue. Caused by an underlying medical condition, such as infection, dehydration, or a medication reaction.
Key Characteristic Increased confusion and agitation tied to the evening hours. Severe mental confusion and reduced awareness of surroundings.

How to Manage Sundowning

Effective management of sundowning involves a combination of behavioral strategies and environmental adjustments. A personalized approach tailored to the individual's needs is often most successful.

Create a Predictable Routine

A consistent daily schedule can provide a sense of security and reduce anxiety. Regular times for meals, waking, sleeping, and activities can help stabilize the body's internal clock.

Increase Daytime Activity and Light Exposure

Engage the person in stimulating and physical activities during the day. Outdoor time, even just sitting by a window, can help regulate circadian rhythms. This also helps ensure the person is tired enough for sleep at night.

Control the Environment

Minimize background noise, turn on lights to reduce shadows as evening approaches, and draw curtains to lessen outdoor distractions. Create a calm, soothing atmosphere with quiet music or familiar items. For more helpful resources on dementia behaviors, refer to the Alzheimer's Association.

Adapt End-of-Day Activities

Shift stimulating activities like bathing or doctor's appointments to earlier in the day when the person is typically more alert. In the evening, offer a light snack and calming activities like listening to music or looking through a photo album.

Identify and Address Triggers

Keep a log of when sundowning occurs and what may have triggered it. This can help you identify patterns related to medication times, fatigue, or other factors. Address any potential pain, hunger, or thirst that may be causing discomfort.

The Emotional Toll on Caregivers

Caring for someone with sundowning can be emotionally and physically taxing. The nighttime agitation can disrupt a caregiver's sleep, leading to exhaustion and burnout. It is essential for caregivers to prioritize their own well-being by seeking support from family, friends, or professional services. Connecting with local chapters of the Alzheimer's Association or attending support groups can provide valuable strategies and a much-needed emotional outlet.

Conclusion

Sundowning is a common and challenging behavioral pattern in dementia that typically begins in the late afternoon and evening, bringing increased confusion and agitation. While the exact cause remains unknown, it is strongly linked to disruptions in the body's circadian rhythm. By creating and maintaining a structured routine, managing the environment, and identifying individual triggers, caregivers can effectively mitigate symptoms. Distinguishing sundowning from delirium is a crucial first step toward proper management. The emotional strain on caregivers is significant, and seeking support is vital for coping with this demanding aspect of dementia care.

Frequently Asked Questions

While the exact cause is unknown, experts believe sundowning is linked to a disruption of the body's internal biological clock, or circadian rhythm, due to the brain changes caused by dementia.

Not necessarily. People with sundowning may experience good days with few symptoms and difficult days with more severe symptoms. The frequency and intensity can vary, but the timing is often predictable for each individual.

The key difference is the onset. Sundowning is predictable and tied to the time of day, while delirium is a sudden, acute state of severe confusion caused by an underlying medical issue like an infection.

While symptoms typically begin in the late afternoon, they can persist throughout the night and affect a person's sleep, causing them to wake up and wander.

While some medications may be used in severe cases, non-drug measures are generally preferred. A doctor might prescribe medication to address underlying issues like anxiety or depression, but this is often a last resort due to potential side effects.

As dementia progresses, sundowning symptoms can become more frequent and intense, typically peaking in the middle and later stages. However, they may lessen in the final stages of the disease.

Yes, maintaining regular physical activity, especially outdoors in natural light, can improve sleep patterns and reduce daytime fatigue. Limiting caffeine and heavy meals in the evening can also be beneficial.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.