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What should you not do when communicating with someone who has dementia?

4 min read

According to the Alzheimer's Association, more than 6 million Americans are living with Alzheimer’s, the most common form of dementia, making effective communication a crucial skill for caregivers and family members. This guide details what should you not do when communicating with someone who has dementia? to foster respectful and successful interactions.

Quick Summary

When communicating with someone who has dementia, avoid arguing, correcting factual inaccuracies, asking memory-testing questions, or using complex sentences and patronizing language. Instead, focus on validating their feelings and creating a calm, supportive environment to foster respectful and positive interactions.

Key Points

  • Do Not Argue or Correct: Reasoning with a person with dementia about factual inaccuracies is counterproductive and can increase their agitation. It is more effective to validate their feelings and gently redirect the conversation.

  • Avoid Memory Tests: Refrain from asking questions that rely on recent memory, such as 'Do you remember?' or 'I just told you that.' This can cause embarrassment and frustration.

  • Simplify Your Communication: Use short, simple sentences and one-step instructions. Avoid complex language and overwhelming the person with too many choices at once.

  • Be Patient and Calm: Allow plenty of time for them to process information and respond. Do not rush them or interrupt, as this can increase their stress and anxiety.

  • Respect Their Dignity: Do not use patronizing or infantilizing language (elderspeak). Speak directly to them, include them in conversations, and treat them as an adult with feelings and a need for respect.

In This Article

Avoiding Argument and Confrontation

One of the most counterproductive actions when communicating with someone with dementia is engaging in arguments or confrontations. Their reality is different, and correcting factual errors will only lead to frustration, agitation, and distrust.

The futility of reasoning and correction

As dementia progresses, the ability to reason logically diminishes significantly. Attempting to use logic to win an argument is not only ineffective but can be emotionally damaging. For example, if a loved one insists that their deceased spouse is still alive and at work, telling them they are wrong can cause renewed grief and confusion. Instead, acknowledging their feeling—"You must miss them very much"—can be a more compassionate and soothing approach.

Prioritize emotion over fact

The underlying emotion is what is real for the person with dementia. Their feelings of anxiety, sadness, or confusion should be the focus, not the accuracy of their statement. Validating their feelings shows respect and empathy. If they are insistent on a story that is not true, gently redirect the conversation rather than insisting on the facts.

The Problem with Memory-Testing Questions and Reminders

Asking questions that rely on recent memory or reminding them they have forgotten something is a primary pitfall for caregivers. This can lead to embarrassment, anxiety, and a sense of failure.

Common mistakes that trigger distress

  • Asking, "Do you remember?": This can feel like a pop quiz, highlighting their memory loss. It can provoke feelings of shame and inadequacy.
  • Stating, "I just told you that": This comment adds insult to injury by pointing out their cognitive deficit. The repetition is not their fault, and they likely do not remember the previous conversation.
  • Asking questions with too many options: Open-ended questions like, "What do you want for dinner?" can be overwhelming. Instead, offer a simple choice, such as, "Would you like chicken or fish?".

What to do instead

Focus on present-moment engagement. Instead of quizzing, share your own memories or guide them with visual cues. If you want to talk about a past event, frame it positively: "I was just thinking about that wonderful trip we took to the mountains."

Avoiding Complex Language and Rushing the Conversation

Dementia affects the ability to process information quickly. Using long, complicated sentences or rushing the person can hinder communication and increase stress.

Simplify, slow down, and be patient

  • Avoid complex sentences: Break down instructions into single, easy-to-follow steps. Instead of, "Let's go get your coat, then we'll find your keys and leave for the store," try: "Let's get your coat".
  • Give them time to respond: A pause in conversation can feel awkward, but it is necessary for someone with dementia to process what was said. Do not interrupt or finish their sentences.
  • Repeat yourself calmly: If they don't understand, repeat the same words and tone rather than rephrasing, which can cause more confusion.

Refraining from Patronizing Language and Behavior

Talking down to someone with dementia is both disrespectful and isolating. "Elderspeak," or baby talk, strips them of their dignity and can be picked up on even if the words are not fully processed.

The dangers of infantilization

  • Using pet names: Terms like "honey" or "sweetie" when you normally wouldn't use them can be demeaning. Use their preferred name or title instead.
  • Excluding them from conversations: Do not talk about the person as if they are not there, even if you believe they can't understand. Always include them and speak directly to them.
  • Ignoring their feelings: Assuming they don't have emotions or can't be hurt is a grave error. They are still people with feelings that should be respected and acknowledged.

Comparison of Effective vs. Ineffective Communication

Ineffective Approach Effective Approach
Arguing facts Validating emotions and redirecting
Testing memory with questions Engaging in the present and past with cues
Using complex language or commands Using simple, one-step instructions
Being impatient or rushing them Allowing plenty of time for processing
Using patronizing language Speaking with respect, at eye level
Excluding them from a conversation Including them** in interactions

The Takeaway: Connect, Don't Correct

The most important principle is to shift your focus from correction to connection. The person with dementia is still a human being with a history, feelings, and a need for respect. While their cognitive abilities may be changing, their emotional capacity and desire for human connection often remain. By avoiding these common communication pitfalls, you can reduce their frustration and create a more compassionate and supportive environment.

Communicating with someone who has dementia requires patience, empathy, and a willingness to adapt your approach. As a loved one or caregiver, your presence and your calm demeanor are often more important than the words you say. You can find further resources and support for caregivers from the Alzheimer's Association. By remembering what not to do, you can build a more meaningful and positive relationship with the person you care for, navigating the challenges of dementia with greater understanding and warmth.

Frequently Asked Questions

When a person with dementia repeats themselves, avoid saying, "You already told me that." Instead, respond as if it's the first time you've heard it, or acknowledge their feelings. For instance, you can say, "That sounds lovely, tell me more about it."

It is not helpful to correct or argue with a person with dementia. Their reality is different, and correcting them can cause distress and frustration. It's better to validate the feelings behind their words and focus on emotional connection over factual accuracy.

Asking "Do you remember?" puts pressure on the person with dementia to recall recent events, which can be impossible for them. This can lead to embarrassment, anxiety, and a painful reminder of their memory loss. Focus on present-moment engagement instead.

A person with dementia has difficulty processing complex information. Using short, simple sentences with one idea at a time makes it easier for them to understand and respond, reducing confusion and frustration.

Elderspeak is a patronizing form of communication, similar to baby talk, that uses overly simplified language or a condescending tone. It should be avoided because it is disrespectful and can be hurtful, undermining the person's dignity even if they can't fully process the words.

If a person with dementia becomes angry, remain calm and avoid escalating the situation. Don't argue. Use a soothing tone, acknowledge their feelings, and try to redirect their attention to a pleasant topic or activity. If needed, step away for a moment to let them and yourself calm down.

No, you should never talk about a person with dementia as if they are not there, even if you believe they don't understand. This is disrespectful. Always speak directly to them and include them in conversations to show respect for their presence and dignity.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.