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What to do about wandering with Alzheimer's patients?

5 min read

According to the Alzheimer's Association, 60% of individuals with dementia will wander at least once, making it one of the most stressful challenges for caregivers. Understanding what to do about wandering with Alzheimer's patients is crucial for their safety and your peace of mind. This guide provides comprehensive strategies for prevention and management.

Quick Summary

Address Alzheimer's-related wandering by creating a structured routine, modifying the home environment, using tracking technology, and responding calmly with redirection and validation to ensure patient safety.

Key Points

  • Understand Triggers: Identify underlying causes like anxiety, boredom, or confusion to address the root of wandering.

  • Secure the Home: Implement safety features like high/low locks, door alarms, and camouflaged exits to prevent unauthorized departures.

  • Establish Routine: Create a consistent daily schedule with engaging activities to reduce restlessness and confusion.

  • Utilize Technology: Employ GPS tracking devices and medical ID bracelets for an extra layer of protection and quicker location in an emergency.

  • Act Calmly: When a wandering episode occurs, respond with redirection and reassurance instead of confrontation to de-escalate the situation.

  • Have an Emergency Plan: Prepare a safety kit with a recent photo and an unwashed clothing item, and pre-register with local law enforcement and wandering response programs.

In This Article

Understanding the Causes of Wandering

To effectively manage wandering, it's essential to first understand its root causes. Wandering is often not a random act, but a purposeful behavior driven by confusion, anxiety, or unmet needs. Some common triggers include:

  • Reliving the past: A patient may be looking for a past home, a loved one, or a former workplace, driven by a deeply ingrained memory.
  • Anxiety and stress: Overstimulation, changes in routine, or a confusing environment can lead to agitation and the urge to flee or pace.
  • Searching for something: They may be looking for a lost item or searching for food, the bathroom, or even fresh air, but lack the cognitive ability to communicate their needs.
  • Boredom and restlessness: A lack of physical or mental stimulation can cause restlessness, leading to aimless pacing or an attempt to go outside.
  • Physical discomfort: Hunger, thirst, pain, or a need to use the restroom can prompt wandering behavior.

Immediate Strategies for Responding to Wandering

If you find your loved one is attempting to wander or has already left, your response is critical. Staying calm can prevent further agitation. Here are the steps to take:

  1. Approach calmly: Avoid sudden movements or a confrontational tone. Approach from the front and maintain eye contact while using a soft, reassuring voice.
  2. Redirect and distract: Instead of arguing or correcting them, redirect their attention. If they say, “I need to go home,” respond with, “How about we have a cup of tea first?” or “Let's look at your photo album.”
  3. Validate their feelings: Acknowledge their emotions. If they seem anxious, say, “I can see you're upset. Tell me about it.” This validates their feelings and can de-escalate the situation.
  4. Assess their needs: Check if they are hungry, thirsty, or need to use the bathroom. A simple need can often be the trigger.
  5. Engage in a simple activity: Once they are calmer, suggest a familiar activity like folding laundry, watering plants, or listening to music to help settle their restlessness.

Proactive Prevention and Home Safety

Prevention is the most powerful tool in managing wandering. By creating a secure and predictable environment, you can significantly reduce the risk. Here’s how to make your home safer:

Environmental and Physical Modifications

  • Secure doors and windows: Install locks that are placed either high or low, out of the patient's typical line of sight. Consider key-operated deadbolts or door alarms that chime when opened.
  • Camouflage exits: Make doors blend in with the surrounding wall by painting them the same color or hanging curtains or posters over them. A black floor mat in front of an exit can also act as a visual barrier, as it may look like a hole.
  • Remove triggers: Keep coats, hats, purses, car keys, and other items that suggest leaving out of sight. Store them in a locked closet or a less accessible location.
  • Create safe wandering paths: Fence in a yard or garden with a locked gate, providing a safe, enclosed space for your loved one to walk freely and burn off restless energy.

Creating and Maintaining a Routine

  • Daily schedule: Establish a consistent daily routine for meals, activities, and sleep. Predictability can reduce anxiety and confusion.
  • Physical activity: Incorporate regular, supervised physical activity, such as walks or simple exercises, to reduce restlessness and promote better sleep.
  • Meaningful engagement: Provide engaging activities that utilize your loved one's remaining skills. This could include sorting objects, looking at old photographs, or listening to favorite music.

Technology and Identification for Safety

Modern technology offers valuable tools for tracking and emergency response. In addition to home modifications, incorporating these devices can provide an extra layer of security.

Technology Type Best For Pros Cons
GPS Trackers Active and mobile individuals Real-time location tracking, alerts for designated zones Can be lost or removed by the patient, requires charging
Medical ID Bracelet Memory loss identification Non-electronic, always-on ID, clear medical info Relies on others to notice and call, not a tracker
Wearable Alarms In-home monitoring Detects if a door opens or if the patient leaves a bed Not for tracking outside the home, limited range
Smart Doorbell Monitoring exits Alerts caregiver via smartphone when door is opened Can be triggered by anyone, no tracking

The Emergency Plan: When Wandering Happens

Even with the best preventative measures, wandering can still occur. A solid emergency plan is critical for a rapid and safe response.

  1. Enroll in a Safe Return program: Consider enrolling your loved one in the Alzheimer's Association's MedicAlert® + Alzheimer's Association Safe Return® program. It provides an ID bracelet and a 24/7 emergency hotline.
  2. Notify local authorities and neighbors: Inform your local police department that your loved one has Alzheimer's and tends to wander. Provide them with a recent photo and their potential destinations. Also, inform trusted neighbors and provide your contact information.
  3. Prepare an emergency kit: Keep a recent, close-up photo of your loved one readily available. Additionally, save a bag with an unwashed item of their clothing in a sealed plastic bag. The scent can aid search dogs if necessary.
  4. Initial search efforts: If your loved one is missing, act immediately. Check all potential hiding spots inside the house, including closets and the garage. Search the immediate vicinity, including your yard and neighboring properties. A person who wanders is often found within a 1.5-mile radius.
  5. Call 911: If the person is not found within 15 minutes, call 911. Be sure to inform them that the missing person has Alzheimer's or dementia, as this may trigger a wider community alert, like a Silver Alert.

Conclusion: Prioritizing Safety and Dignity

Managing wandering with an Alzheimer's patient is a significant challenge, but one that can be navigated with patience, preparation, and the right strategies. By understanding the reasons behind the behavior, implementing proactive safety measures at home, and having a clear emergency plan, caregivers can significantly reduce the risks associated with wandering. The ultimate goal is to balance the individual's need for activity and independence with the crucial need for their safety and well-being, ensuring they can age with dignity in a secure environment. Remember, you are not alone, and resources like the Alzheimer's Association exist to offer support.

Frequently Asked Questions

Wandering is often caused by confusion, anxiety, restlessness, or a search for something familiar. A patient might be trying to 'go home' or fulfill a past routine, unaware of their current reality.

Yes, many patients experience 'sundowning,' a phenomenon where confusion and agitation increase in the late afternoon or early evening. Planning stimulating activities during these hours can help.

To prevent wandering, you can secure doors with locks placed out of sight, install door alarms, camouflage exits, and remove trigger items like keys and coats from plain view. A securely fenced yard also provides a safe area for walking.

Stay calm and use a gentle, non-confrontational approach. Use redirection to a different activity and validate their feelings instead of arguing. For example, if they want to go home, say, 'I know you want to go home, but let's have a snack first.'

Yes, GPS trackers are a safe and effective tool for monitoring your loved one's location. Devices are available as watches, shoe inserts, and pendants, and can send alerts if they leave a predetermined 'safe zone'.

Begin searching immediately in the immediate area and home. If they are not found within 15 minutes, call 911 immediately. Inform authorities that the missing person has Alzheimer's, which can expedite the search process.

When reporting a missing person with Alzheimer's, provide a recent photo, a description of what they were wearing, known destinations they might go, and any medical information that could assist in their search and safe return.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.