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Why do dementia patients lose control of their bowels?

4 min read

According to the Alzheimer's Association, bowel incontinence commonly occurs in the middle to late stages of dementia. The reasons why do dementia patients lose control of their bowels are complex, involving both the cognitive deterioration of the disease and other underlying medical factors. Understanding these causes is the first step toward effective management and maintaining the dignity of the person in your care.

Quick Summary

Cognitive decline affects a person's ability to recognize and respond to the need for a bowel movement. This can be compounded by physical factors such as constipation, medication side effects, or other medical conditions. Environmental obstacles and mobility issues can also make reaching the toilet in time a challenge.

Key Points

  • Cognitive Decline Causes Incontinence: Brain changes in mid-to-late stage dementia impair the ability to recognize bodily urges, find the bathroom, or remember the steps for toileting.

  • Constipation is a Common Cause: A frequent physical trigger for bowel incontinence is severe constipation, where liquid stool leaks around a blockage.

  • Medical Issues Can Be a Factor: Underlying conditions such as infections (UTIs), medication side effects, or other neurological disorders can cause or worsen incontinence and should be medically assessed.

  • Environmental Changes Improve Access: Simple modifications like improved lighting, clear paths, and portable commodes can help a person with dementia reach the toilet in time.

  • Caregiving Requires Patience and Dignity: A calm, respectful approach to accidents helps preserve the person's dignity and reduces their embarrassment.

  • Establish a Consistent Toileting Routine: Scheduled bathroom breaks based on the person's patterns can prevent many accidents.

  • Adaptive Clothing Simplifies Toileting: Choosing clothes with elastic waistbands or Velcro makes it easier for individuals with limited dexterity to undress quickly.

In This Article

Cognitive Reasons Behind Bowel Incontinence

As dementia progresses, the brain's ability to process and act on signals diminishes. This can directly lead to a loss of bowel control, especially in the middle and late stages of the disease. These cognitive impairments affect several key functions necessary for maintaining continence.

Reduced awareness of bodily urges

Damage to the brain affects an individual's awareness of their own body. Someone with dementia may not recognize the sensation of needing to use the toilet or may misinterpret it. As a result, the urge might not register until it is too late.

Disorientation and memory loss

Dementia causes memory loss and disorientation, which can make a familiar home environment feel foreign. A person might forget where the bathroom is, even in their own home, leading to accidents. They may also mistake a wastepaper basket or plant pot for a toilet.

Forgetting toileting steps

Using the toilet is a multi-step process that involves recognizing the need, finding the bathroom, removing clothing, and performing hygiene. With advanced dementia, a person can forget how to complete these sequences, causing accidents.

Difficulty communicating needs

A person's ability to communicate their needs often declines with dementia. They may be unable to tell a caregiver they need to use the bathroom, or they might use a trigger word or gesture that a caregiver doesn't understand. This miscommunication can lead to frustration for both parties and contribute to incontinence.

Physical and Environmental Factors

While the dementia itself is a primary driver of incontinence, other medical and environmental factors can exacerbate or cause the problem independently. A comprehensive assessment by a doctor is always the first step to rule out treatable causes.

Common medical conditions

  • Constipation: This is one of the most common causes of bowel incontinence in the elderly, with or without dementia. A buildup of hard stool in the rectum can cause a blockage. Loose, watery stool can then leak around the blockage, which is often mistaken for diarrhea.
  • Medication side effects: Many medications prescribed for older adults, including certain anxiety medications, sleeping pills, and some cholinesterase inhibitors used for Alzheimer's, can affect bowel function. A new medication or dosage change might trigger incontinence.
  • Infections: Infections, such as a urinary tract infection (UTI), can cause sudden incontinence. Though a UTI primarily affects the bladder, it can cause confusion and other symptoms that disrupt normal toileting routines.
  • Other diseases: Underlying conditions like diabetes, Parkinson's disease, inflammatory bowel disease, or a stroke can affect nerve signals and muscle control, contributing to incontinence.

Environmental barriers

  • Distance to the bathroom: The physical distance to the toilet might be too far for someone with limited mobility to reach in time.
  • Poor lighting: Inadequate lighting, especially at night, can make finding the bathroom difficult and disorienting. Nightlights or keeping bathroom doors open can help.
  • Inaccessible clothing: Clothes with complex buttons, zippers, and clasps can be hard for a person with dexterity issues to remove quickly. Adaptive clothing with Velcro or elastic waistbands can simplify this process.

Management Strategies and Tools

Managing bowel incontinence requires a compassionate, multi-faceted approach. A combination of lifestyle adjustments, environmental modifications, and products can significantly improve comfort and quality of life.

Comparison Table: Incontinence Management Approaches

Strategy Description Benefits Considerations
Scheduled Toileting Establish a regular bathroom schedule based on observed patterns. Often scheduled every two hours, after meals, and before bed. Proactive, reduces surprise accidents, and maintains routine. Requires careful tracking of patterns and consistency.
Dietary Adjustments Increase fiber and fluid intake to combat constipation. Focus on whole grains, fruits, and vegetables. Addresses a common physical cause of incontinence. May require working with a doctor or dietitian.
Environmental Modifications Improve access to the bathroom with grab bars, contrasting toilet seats, clear paths, and nightlights. Boosts independence and reduces falls, especially at night. May require initial investment in equipment.
Adaptive Clothing Choose clothes with elastic waistbands or Velcro closures instead of buttons and zippers. Simplifies the toileting process, reducing frustration and delays. Requires purchasing specific clothing types.
Protective Products Use absorbent pads, briefs, or bed covers to manage accidents and protect bedding. Ensures cleanliness, prevents skin irritation, and manages leaks. May feel undignified; needs to be managed with sensitivity.

The Role of the Caregiver

Caregivers play a vital role in managing bowel incontinence, requiring immense patience and empathy. Your response can directly impact the person's dignity and emotional well-being.

  • Maintain Dignity: When an accident occurs, remain calm and reassuring. Avoid shaming language and treat the cleanup process with respect and privacy. Phrases like, "It's okay, these things happen," can make a big difference.
  • Monitor for Cues: Since verbal communication may be limited, caregivers should look for non-verbal signs that indicate a need to use the toilet. These can include restlessness, agitation, pulling at clothes, or pacing.
  • Holistic Assessment: Before assuming dementia is the sole cause, consult a doctor to rule out other medical issues like a UTI or medication side effects.

Conclusion

The loss of bowel control in dementia patients is a complex issue stemming from the disease's cognitive effects, compounded by other medical and physical factors. It is not an inevitable outcome to simply be endured, but a treatable and manageable symptom. Understanding the various causes, from memory loss and disorientation to constipation and medication side effects, is crucial for effective care. By implementing strategies such as scheduled toileting, dietary changes, and environmental modifications, caregivers can significantly improve the quality of life for their loved ones. Above all, approaching the situation with patience, dignity, and a problem-solving mindset is key to navigating this challenging aspect of dementia care.

Authoritative Outbound Link

For more in-depth information on managing continence issues in dementia, refer to the official Alzheimer's Society guide on toilet problems and continence.

Frequently Asked Questions

Not necessarily. While it is more common in the middle and late stages of dementia, incontinence can be caused by other treatable conditions, such as constipation, medication side effects, or a urinary tract infection. It is important to consult a doctor to determine the specific cause.

Constipation is a very common physical cause. A severe case can lead to a blockage, causing watery stool to leak around the hard stool, which is often mistaken for diarrhea. This can trigger bowel incontinence.

You can look for non-verbal cues or behavioral changes. Signs include restlessness, agitation, facial expressions, tugging at clothing, or sudden silence. A consistent toileting schedule can also help you anticipate their needs.

Opt for clothing that is easy to remove and has simple closures. Elastic waistbands or Velcro fastenings are better than buttons, zippers, or complicated belts, which can be difficult for someone with dexterity issues.

It is crucial to remain calm, gentle, and reassuring. Avoid scolding or showing frustration, as this can cause embarrassment and distress. Handle the cleanup discreetly and with dignity, reassuring them that accidents can happen.

Yes, diet can be very helpful, especially for managing constipation. A high-fiber diet rich in fruits, vegetables, and whole grains, combined with adequate fluid intake, can help regulate bowel movements.

You should always consult a doctor if a person with dementia suddenly develops incontinence. It's important to rule out treatable medical conditions like infections or medication side effects before assuming it is solely due to the dementia's progression.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.