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How to get an elderly person diagnosed with dementia?

4 min read

According to the CDC, around 4% of adults aged 65 and older had a diagnosed dementia in 2022, but many more cases remain undiagnosed. If you suspect an elderly loved one is experiencing significant cognitive changes, knowing how to get an elderly person diagnosed with dementia is the critical first step toward clarity and appropriate care.

Quick Summary

The process involves observing symptoms, compiling a medical history, scheduling an appointment with a primary care physician, and potentially consulting specialists like neurologists for comprehensive cognitive, neurological, and diagnostic testing to confirm a dementia diagnosis and rule out other conditions.

Key Points

  • Start with the PCP: The first step to a dementia diagnosis is a visit to the primary care physician for an initial assessment and screening, as well as blood tests to rule out other medical issues.

  • Involve multiple specialists: A definitive diagnosis often requires referrals to specialists like neurologists, geriatricians, or neuropsychologists for in-depth cognitive and neurological exams.

  • Utilize multiple tests: Diagnosis is not based on one test but a combination of medical history, neurological exams, cognitive assessments, and brain imaging (MRI, CT, PET) to pinpoint the problem.

  • Document symptoms diligently: Family members and caregivers play a crucial role by observing and documenting specific changes in memory, behavior, and daily function to share with medical professionals.

  • Seek support for refusal: If an elderly person denies or refuses testing, use gentle, empathetic communication and consider seeking guidance from a memory care coach or other professional.

  • Early diagnosis offers benefits: Confirming a diagnosis early allows access to potential treatments, provides more time for future planning, and helps families connect with vital support resources.

  • Dementia is not a normal part of aging: While some forgetfulness is normal with age, progressive cognitive decline that affects daily life is not. Seeking a diagnosis can determine if there is an underlying condition.

In This Article

Recognizing the Signs and Starting the Conversation

Recognizing the early signs of dementia is crucial for a timely diagnosis, which allows for better management and future planning. Symptoms can vary depending on the type of dementia, but common indicators include:

  • Frequent memory loss, especially of recent events.
  • Difficulty communicating or finding the right words.
  • Confusion about time or place.
  • Problems with problem-solving or complex tasks, like managing finances.
  • Sudden personality or mood changes, such as anxiety, depression, or paranoia.
  • Poor judgment or decision-making.

Communicating with Your Loved One

Approaching the subject can be sensitive, as your loved one may be in denial or feel frightened. A compassionate and gentle approach is best:

  • Choose the right time and place: Find a calm, private setting free from distractions.
  • Use “I” statements: Instead of accusing, express your own concerns. For example, “I’ve noticed you’ve been repeating questions, and I’m concerned.”
  • Focus on specifics: Mention concrete examples of behaviors you’ve observed rather than vague accusations of memory loss.
  • Empower them: Frame the medical appointment as a way to understand what's happening and find solutions, rather than focusing on a dreaded diagnosis.

The Diagnostic Journey: From PCP to Specialist

Once the decision to seek medical advice is made, the diagnostic process involves several steps to rule out other causes and determine the specific type of dementia.

  1. Schedule a primary care physician (PCP) appointment: Your PCP is the first point of contact. Before the appointment, gather all relevant information, including a detailed list of symptoms, the timeline of changes, and a list of all medications the person is taking.
  2. Provide detailed information: At the appointment, your observations will be critical. The doctor will perform a physical exam and conduct initial screenings, such as the Mini-Mental State Exam (MMSE) or Saint Louis University Mental Status (SLUMS) exam.
  3. Blood and lab tests: The PCP will order blood work to check for reversible causes of cognitive issues, such as thyroid problems, vitamin B12 deficiency, or infections.
  4. Referral to specialists: If the PCP suspects dementia, they will refer the patient to a specialist, such as a neurologist, geriatrician, or neuropsychologist, for a more comprehensive evaluation.

Comprehensive Specialist Evaluation

At the specialist's office, the evaluation becomes more detailed and may involve several types of tests to determine the cause and type of cognitive decline.

Cognitive and Neuropsychological Tests

These assessments are more in-depth than the initial screening and evaluate various cognitive functions.

  • Memory: Testing short-term and long-term memory recall.
  • Reasoning and judgment: Evaluating problem-solving abilities.
  • Language skills: Checking for difficulty with speech, writing, and comprehension.
  • Executive function: Assessing the ability to plan, organize, and manage tasks.

Neurological and Brain Imaging

A neurologist will perform a thorough neurological exam to check reflexes, coordination, balance, and other sensory functions. Additionally, brain imaging is often used to visualize the brain's structure and function.

Type of Scan What It Looks For Primary Use in Diagnosis
MRI (Magnetic Resonance Imaging) Detailed images of brain structures. Rules out strokes, tumors, or fluid buildup.
CT (Computed Tomography) Scan Cross-sectional X-ray images of the brain. Rules out structural brain damage from strokes or injury.
PET (Positron Emission Tomography) Scan Patterns of brain activity and metabolism. Helps identify protein buildup (amyloid plaques and tau tangles) associated with Alzheimer's.

Cerebrospinal Fluid and Genetic Tests

In some cases, the specialist may recommend more advanced testing.

  • Cerebrospinal Fluid (CSF) tests: A lumbar puncture (spinal tap) can measure levels of proteins like beta-amyloid and tau, which are biomarkers for Alzheimer's.
  • Genetic testing: While rare, some forms of dementia are caused by specific gene mutations. Genetic testing may be used in certain circumstances to confirm a diagnosis.

Important Considerations and Next Steps

If Your Loved One Refuses Diagnosis

If the individual is resistant to the evaluation, it is important to proceed with patience and empathy. Enlisting the support of other family members or a neutral third-party, like a memory care coach, may help. Focus on smaller, concrete steps, such as a regular health check-up, rather than framing it as a specific dementia test.

The Importance of Early Diagnosis

An early and accurate diagnosis provides significant benefits for both the individual and their family.

  • Access to treatment options: Some medications can temporarily lessen symptoms or slow cognitive decline.
  • Opportunity for clinical trials: Early diagnosis increases eligibility for clinical trials exploring new treatments.
  • Future planning: Allows the person with dementia to participate in legal and financial decisions while they are still able.
  • Care and support planning: Gives families and caregivers time to research resources and build a support system.

Conclusion: Seeking Clarity and Compassion

Navigating the process of diagnosing dementia in an elderly loved one is a challenging but necessary undertaking. By understanding the signs, preparing for appointments, and working with a team of healthcare professionals, families can gain clarity and take proactive steps toward managing the condition. An early diagnosis is a powerful tool, not an endpoint, offering a roadmap for providing compassionate, effective care and ensuring the best possible quality of life for your loved one. For additional support and resources, consider visiting the Alzheimer's Association.

Frequently Asked Questions

Early signs often include forgetting recent events, repeating questions, misplacing items frequently, and having trouble with familiar tasks like managing bills. Significant changes in mood and personality can also be an early indicator.

The diagnostic process often starts with a primary care physician. If dementia is suspected, a referral is made to a specialist, such as a neurologist, geriatrician, or neuropsychologist, who specializes in cognitive disorders.

The timeline can vary significantly. It may take several appointments, with initial screenings from a PCP followed by more comprehensive testing by specialists. The entire process could take weeks or months to rule out other conditions and determine the specific type of dementia.

Doctors use a combination of tests, including physical and neurological exams, blood tests (to rule out other issues), cognitive assessments, and brain imaging scans like MRI, CT, or PET to make a diagnosis.

Yes. Symptoms that mimic dementia can be caused by conditions such as vitamin deficiencies (like B12), thyroid issues, side effects from medication, depression, or sleep problems. Testing is crucial to determine the true cause.

Approach the situation with empathy and patience. Express your concerns from a place of care, focus on specific examples, and consider using a neutral third party like a counselor or trusted family friend. It may take multiple conversations.

No. While memory loss is a hallmark symptom, it is not an automatic indicator of dementia. Some forgetfulness can be a normal part of aging, while progressive memory loss that interferes with daily life is more likely to indicate dementia.

Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.