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A Caregiver's Guide: How to stop someone with dementia from getting up in the night?

5 min read

According to the Alzheimer's Association, up to 20% of dementia patients experience “sundowning,” a state of increased confusion and agitation in the evening, which can cause them to get up in the night. Understanding this behavior is the first step in learning how to stop someone with dementia from getting up in the night?

Quick Summary

Effective management of nighttime restlessness in dementia involves establishing a consistent daily routine, managing sundowning triggers, optimizing the sleep environment for safety and comfort, and using calm, non-confrontational redirection techniques if they wake up.

Key Points

  • Create a Routine: Establishing and maintaining a consistent daily schedule helps regulate the body's internal clock and reduce nighttime confusion.

  • Manage Sundowning: Dim the lights and engage in calming, low-stimulation activities during the evening hours to prevent increased agitation.

  • Optimize the Environment: Ensure the home is safe with nightlights, a decluttered space, and secure exits to prevent dangerous wandering.

  • Respond with Calmness: If they wake, use a soothing voice and gentle redirection to guide them back to bed, rather than arguing or confronting them.

  • Encourage Daytime Activity: Gentle physical exercise and mental engagement during the day promote natural fatigue and better sleep at night.

  • Consult a Doctor: Speak with a healthcare provider to rule out or treat underlying medical issues, such as pain, sleep apnea, or medication side effects, that may be causing restlessness.

In This Article

Understanding Nighttime Restlessness and Wandering

Nighttime awakenings are a common and stressful challenge for caregivers of individuals with dementia. The reasons behind this behavior are complex, often rooted in the neurological changes caused by the disease. These issues can disrupt the body's internal clock and cause a phenomenon known as 'sundowning'.

What is Sundowning?

Sundowning is a state of increased confusion, agitation, and anxiety that often begins or worsens as daylight fades. While not exclusive to dementia, it is prevalent among those with cognitive impairment. The behavioral changes can include restlessness, disorientation, wandering, and an urgent desire to go “home” or to work, even if they are already in a familiar place.

The Disrupted Circadian Rhythm

Brain changes caused by dementia can directly affect the circadian rhythm, the body's natural sleep-wake cycle. This disruption means the person may sleep more during the day and be awake and alert at night. Their perception of day and night can become confused, leading to anxiety and restlessness in the dark. Other factors contributing to sleep disturbances can include medication side effects, pain, and other underlying health conditions like sleep apnea or restless legs syndrome.

Proactive Strategies for Better Sleep Hygiene

Managing nighttime wandering starts long before bedtime. By implementing consistent daytime routines and good sleep hygiene, you can help regulate their internal clock and reduce evening agitation.

Establish and Maintain a Predictable Daily Routine

A regular, predictable schedule provides comfort and security, minimizing confusion. This routine should include consistent times for meals, waking up, and going to bed. Try to stick to this schedule, even on weekends.

  1. Morning Exposure to Light: Maximize natural sunlight exposure during the day, especially in the morning. This helps set the body's internal clock and promotes wakefulness during the day.
  2. Encourage Regular Daytime Activity: Engaging in appropriate physical and mental activities, such as walks, gardening, or simple household tasks, can help tire them out naturally. Avoid strenuous activity close to bedtime.
  3. Monitor Napping: While a short nap after lunch can be beneficial, long or frequent daytime naps can disrupt nighttime sleep. Limit naps to 30-60 minutes and keep them to the early afternoon.
  4. Limit Stimulants: Avoid caffeine, nicotine, and alcohol, particularly in the afternoon and evening, as these can interfere with sleep.

Optimize the Sleeping Environment

The bedroom and home environment can play a crucial role in promoting sleep and ensuring safety.

  • Create a Calming Atmosphere: Dim the lights in the evening to signal that it is time to wind down. Try a warm bath, gentle music, or a familiar activity before bed.
  • Use Nightlights: Place nightlights in the bedroom, hallway, and bathroom to prevent disorientation and reduce the risk of falls if they do get up.
  • Minimize Noise: Use a white noise machine or fan to block out disruptive sounds. Keep the room at a comfortable temperature.
  • Reduce Clutter: Clear the floors of tripping hazards. Ensure the path to the bathroom is clear and well-lit.

Responding When They Wake: Calm and Safe Techniques

If your loved one wakes up and becomes restless, your response is key to de-escalating the situation without causing further agitation.

Stay Calm and Reassuring

Your own stress or frustration can be sensed by someone with dementia and can escalate their anxiety. Remain calm, use a soft, soothing voice, and avoid arguing or correcting them.

  1. Don't Argue Reality: If they are agitated and want to go home, do not argue that they are already home. Instead, validate their feelings and gently redirect them. Try saying, “It sounds like you miss home. Why don’t we have a warm drink first?”
  2. Provide Comfort: A warm blanket, a soft touch, or a familiar item like a favorite photo album can be comforting. Avoid touch if it seems to increase their agitation.
  3. Redirect with an Activity: Suggest a simple, relaxing activity, like looking out the window at the moon or listening to soothing music. Avoid turning on the television, as the stimulation can be overwhelming.

Comparison Table: Wandering Prevention vs. Immediate Response

Strategy Proactive Prevention Immediate Nighttime Response
Focus Establishing healthy sleep habits and routines Calming and redirecting agitation
Timing Daytime and early evening During nighttime awakenings
Environment Maximizing daylight, minimizing evening stimuli Using nightlights, reducing clutter, ensuring safety
Interaction Engaging activities, predictable structure Gentle talk, familiar objects, non-confrontational
Safety Securing the home, removing hazards Monitoring movement, responding gently

Environmental Modifications for Safety

Safety is paramount, especially if wandering is a frequent issue. While you cannot physically restrain someone, you can make the environment safer.

  • Secure Exits: Install locks on exterior doors that are difficult for them to open, such as a slide lock placed high up or a cover on the doorknob. Never use locks that would prevent emergency personnel from entering. Consider door alarms that notify you when an exit is opened.
  • Use Camouflage: Covering exit doors with curtains or a large poster can disguise them, making them less obvious. Placing a black mat in front of a door can also act as a visual barrier, as some people with dementia perceive it as a hole.
  • Consider Technology: Motion sensors can alert you if they get out of bed. GPS tracking devices, worn as a bracelet or in a shoe, can be invaluable for safety if they manage to leave the home.

Addressing Underlying Medical Issues

Sometimes, the issue isn't just dementia but an underlying health problem. Pain, discomfort from constipation or a full bladder, or side effects from medication can all cause restlessness.

Consult with a healthcare provider to review medications, especially if they are taking cholinesterase inhibitors or other drugs that can affect sleep. The doctor may suggest adjusting the timing of medication or adding a low-dose melatonin supplement, though this should only be done under medical guidance. For additional resources and support, refer to the Alzheimer's Association website.

Conclusion

Managing nighttime restlessness and wandering in dementia is a process that requires patience, observation, and a multi-faceted approach. By combining proactive strategies like consistent routines and optimizing the environment with gentle, reactive techniques, caregivers can significantly improve the quality of sleep for their loved one and themselves. Remember that ensuring safety is the top priority and seeking professional guidance is crucial when problems persist. While challenging, compassionate and informed care can make a meaningful difference for everyone involved.

Frequently Asked Questions

People with dementia often experience disruptions to their circadian rhythm, or internal body clock, due to brain changes. This can lead to confusion between day and night, excessive daytime napping, and a hormonal imbalance (e.g., less melatonin), causing them to be awake and restless at night.

Sundowning is a syndrome in which people with dementia experience increased confusion, anxiety, and agitation during the late afternoon or evening. This agitation can often manifest as a need to wander or get up and go somewhere, particularly as it gets dark, leading to nighttime wandering.

Caregivers should be very cautious with sleep medication. Many traditional sleeping pills can increase confusion, cause dizziness, and heighten the risk of falls in older adults with dementia. Always consult a healthcare provider before administering any medication or supplement, including melatonin.

Key safety measures include installing high locks on exterior doors, using door alarms to alert you, and covering doors with curtains or decals to disguise them. Inside, ensure hallways and bedrooms are well-lit with nightlights and remove any trip hazards like loose rugs or clutter.

If they express a desire to leave, do not argue. Validate their feelings gently by acknowledging their need. Redirect their attention with a calming activity, a snack, or by pointing out a familiar object. Therapeutic fibbing, such as saying it's too late to go now, can sometimes be effective.

Melatonin is a hormone that helps regulate sleep, and its production can decrease with dementia. Some studies suggest it may help, especially when combined with light therapy. However, the dosage and effectiveness vary, so it is essential to discuss this with a doctor before use.

Caring for someone who is restless at night is exhausting. Prioritize your own rest by napping when they do, seeking help from family or friends, or exploring respite care options. Support groups and professional counseling can also provide vital emotional support.

No, physical restraint is not recommended and can be very dangerous. It can increase agitation, lead to injury for both the caregiver and the person with dementia, and may not be legal in all situations. Focus on environmental safety and gentle redirection instead.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.