Skip to content

How to tell if someone has early onset dementia?

4 min read

Early onset dementia, affecting individuals under age 65, is rare and often misunderstood. Recognizing the subtle signs is crucial for early diagnosis and intervention, but it can be challenging as symptoms are often mistaken for stress or midlife changes.
This guide will help you understand how to tell if someone has early onset dementia by detailing the warning signs, differentiating them from normal aging, and explaining what steps to take next.

Quick Summary

Detecting early onset dementia involves observing persistent changes in memory, language, problem-solving, and mood that affect daily functioning. The signs differ from typical age-related forgetfulness, often presenting in younger individuals as issues with complex tasks or personality shifts rather than just memory lapses.

Key Points

  • Look for persistent patterns: A one-time lapse is not as concerning as a recurring pattern of forgetfulness or confusion affecting daily life.

  • Note a variety of symptoms: Early onset dementia can manifest beyond memory issues, affecting language, mood, and visual-spatial skills.

  • Understand the core difference: Unlike normal aging, which is gradual and less severe, dementia significantly impairs a person's ability to function independently.

  • Gather specific evidence: Documenting clear examples of concerning behavior before a doctor's appointment provides crucial information for an accurate diagnosis.

  • Approach the conversation with care: Talk to your loved one with compassion, focusing on seeking medical advice rather than jumping to conclusions.

  • Seek professional evaluation: A diagnosis requires thorough testing by a specialist, such as a neurologist, to rule out other treatable conditions.

  • Connect with support groups: Resources like the Alzheimer's Association offer valuable information, support, and a community for those affected.

In This Article

Recognizing the key warning signs of early onset dementia

Unlike age-related dementia, which often presents with more typical memory loss, early onset dementia can manifest with a variety of symptoms that may seem unrelated. Families and loved ones must look for a combination of these signs that represent a notable change in a person's behavior and abilities. A persistent pattern of these changes, rather than a one-time instance, is a critical indicator.

Memory and cognitive function changes

While it's normal to forget a name or misplace keys occasionally, the cognitive changes associated with early onset dementia are more severe and disruptive.

  • Significant memory loss: Forgetting recently learned information, important dates, or recurring events. Asking the same questions repeatedly.
  • Difficulty with problem-solving and planning: Having trouble following a familiar recipe, managing monthly bills, or organizing a complex project at work.
  • Trouble completing familiar tasks: Forgetting the rules of a favorite game or the route to a frequently visited location.
  • Visual-spatial challenges: Difficulty judging distances, reading, or determining colors and contrast, which can affect driving.

Communication and language difficulties

Observing a person's struggle with language is another way to spot potential early onset dementia.

  • Trouble with words: Difficulty finding the right word, calling things by the wrong name, or repeating themselves within a single conversation.
  • Disruptions in conversation: Stopping abruptly in the middle of a thought and being unable to continue, or not being able to follow a conversation.
  • Challenges with written language: Having difficulty writing and organizing thoughts into text.

Mood and personality shifts

Early onset dementia can have a profound effect on a person's mood, disposition, and overall personality.

  • Personality changes: Becoming unusually suspicious, confused, fearful, or anxious.
  • Social withdrawal: Pulling away from hobbies, social activities, or family gatherings they once enjoyed.
  • Apathy or depression: Showing a lack of motivation, interest, or initiative in activities.
  • Inappropriate behavior: Exhibiting a lack of judgment in social settings or acting out of character.

Comparison: Early onset dementia vs. normal aging

Understanding the subtle but critical differences between signs of normal aging and early onset dementia is essential. This table provides a quick guide to distinguish between common changes.

Area of Concern Normal Aging Early Onset Dementia
Memory Forgetting names or appointments occasionally, but recalling them later. Forgetting recently learned information, repeating questions, and not recalling later.
Problem-Solving Making an occasional error when balancing a checkbook. Significant difficulty with complex tasks, finances, or following plans.
Language Sometimes having trouble finding the right word. Frequently stopping mid-sentence, repeating words, or having trouble following conversations.
Mood Becoming occasionally irritable with routine changes. Experiencing significant personality shifts, anxiety, depression, or suspicion.
Daily Living Needing help with new technology. Forgetting how to perform familiar, routine tasks like driving a known route.

What to do if you suspect early onset dementia

If you observe several of the signs above in a loved one, taking the following steps is crucial.

1. Have an honest conversation.
Approach your loved one with compassion and discuss your concerns. Frame the conversation around seeking a medical evaluation for the changes you've noticed, rather than accusing them of having dementia.

2. Prepare for a doctor's visit.
Document specific examples of concerning behaviors and when they occurred. This information will help the doctor immensely in their assessment. A neurological exam, cognitive testing, and brain scans may be necessary.

3. Seek a diagnosis from a specialist.
A primary care physician may refer you to a neurologist or a memory disorder specialist. A formal diagnosis is essential to rule out other conditions that can cause similar symptoms, such as vitamin deficiencies or medication side effects.

4. Look into support resources.
The Alzheimer's Association is an excellent resource for information, support groups, and guidance for families dealing with a dementia diagnosis. You can find more information here: https://www.alz.org.

Coping with a diagnosis and looking ahead

Receiving a diagnosis of early onset dementia can be devastating, but it is not the end of the road. With proactive planning, individuals can still live meaningful lives. Treatment often focuses on managing symptoms and improving quality of life. This can involve medication, therapy, and support for both the individual and their family. Planning for the future, including legal and financial matters, is also vital. Educating yourself and your family about the condition will help you navigate this journey together with dignity and strength.

Conclusion

Identifying the subtle, often misleading, signs of early onset dementia requires careful observation and a willingness to confront a difficult possibility. While not a definitive diagnosis, recognizing persistent changes in cognition, language, and behavior is the first step toward getting the help needed. Early intervention provides the best opportunity to manage symptoms, plan for the future, and maximize quality of life for the individual and their family.

Frequently Asked Questions

Early onset dementia refers to a diagnosis made before the age of 65. The symptoms are similar to those in older adults, but are often overlooked due to the person's age. It can sometimes progress differently or be caused by rarer forms of dementia.

Diagnosing early onset dementia involves a comprehensive evaluation. This includes interviews with the patient and family members, cognitive tests, neurological and psychiatric exams, and sometimes brain imaging (MRI or PET scan) and lab tests to rule out other conditions.

While most cases are not directly inherited, a family history of dementia can increase risk. Certain rare forms of early onset dementia are caused by a specific gene mutation passed down through families. Genetic counseling may be an option for those with strong family histories.

The first signs can vary but commonly include memory problems (especially with short-term memory), difficulty with problem-solving or complex tasks, language issues, and notable changes in mood or personality. These symptoms are often more pronounced and disruptive than typical age-related changes.

Yes, some level of forgetfulness is a normal part of aging. This might include taking longer to remember a name or misplacing items occasionally. The key distinction from dementia is that these instances do not significantly interfere with daily life or functional abilities.

Approaching the topic gently and with compassion is key. Frame the issue around seeing a doctor to figure out what's causing the changes, focusing on getting answers rather than labeling the condition. Suggesting a medical check-up for general health concerns can also be a less confrontational first step.

There is currently no cure for early onset dementia, but various treatments can help manage symptoms and improve quality of life. These can include medications, cognitive therapies, and lifestyle adjustments. Early diagnosis allows for more time to develop effective coping strategies.

Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.