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What to do if you suspect a loved one has dementia?

4 min read

According to the CDC, millions of adults experience dementia, and distinguishing normal aging from genuine concern can be difficult. If you find yourself asking what to do if you suspect a loved one has dementia, taking the right steps now can lead to better outcomes and help you both prepare for the future.

Quick Summary

If a loved one is showing signs of dementia, the best course of action is to compassionately gather specific examples of concerning behavior and arrange a medical evaluation to determine the cause. An early and accurate diagnosis is critical for accessing treatment and future planning.

Key Points

  • Document Everything: Keep a journal of specific behavioral and memory changes, noting details and frequency to share with a doctor.

  • Have a Compassionate Conversation: Initiate the discussion in a calm, non-confrontational manner, focusing on your specific concerns rather than broad accusations.

  • Schedule a Medical Evaluation: Book an appointment with a primary care physician, who can rule out other conditions and refer to a specialist if needed.

  • Address Legal and Financial Matters Early: Establish a durable power of attorney while your loved one is still competent to make their own decisions.

  • Assemble a Support Network: Reach out to family, friends, and local organizations like the Alzheimer’s Association for practical and emotional support.

  • Prioritize Safety at Home: As cognitive function declines, implement safety measures like removing tripping hazards and securing medications.

In This Article

Recognizing the Early Signs of Dementia

Early detection is one of the most powerful tools in managing dementia. It's important to recognize that not all memory lapses are dementia; sometimes, it's a normal part of aging. However, persistent and escalating patterns that affect daily life should not be ignored. Pay attention to more than just memory loss. Look for changes in judgment, communication, and personality.

Common symptoms to look for:

  • Memory Loss: Forgetting recently learned information, not just misplacing keys.
  • Difficulty with Daily Tasks: Struggling to complete familiar tasks, like managing finances or driving to a known location.
  • Language Problems: Trouble finding the right word or repeating questions multiple times within a short period.
  • Poor Judgment: Displaying poor judgment, such as overpaying for items or neglecting personal hygiene.
  • Personality Changes: Becoming anxious, fearful, or confused more often than usual.
  • Disorientation: Getting lost in familiar places or losing track of dates and seasons.

How to Have the Conversation

Talking to a loved one about your concerns can be one of the most challenging steps. It is important to approach the conversation with empathy and without judgment. Choose a calm, familiar setting where you won't be interrupted and where your loved one feels safe.

Here are some strategies for a successful conversation:

  1. Plan your words carefully. Focus on specific examples you've noticed recently, rather than making broad accusations like, “You've been so forgetful.” Use “I” statements, such as “I’ve noticed you seem to have trouble remembering appointments lately, and I’m concerned.”
  2. Highlight a different health concern. If they are resistant to the idea of memory issues, frame the doctor's visit around something less threatening, such as a routine check-up for blood pressure or cholesterol.
  3. Encourage participation. Position the visit as a team effort. You can offer to go with them to the appointment for support, which also allows you to help recall and communicate important information to the doctor.
  4. Listen to their feelings. Your loved one may feel scared, angry, or in denial. Acknowledge their feelings and reassure them that seeking a diagnosis is about understanding the problem and finding ways to help, not scolding them.

What to Expect at the Doctor's Appointment

After the conversation, the next crucial step is the medical evaluation. The primary care physician may conduct initial screenings and rule out other reversible causes of memory loss, such as medication side effects, thyroid problems, or vitamin deficiencies.

Preparing for the visit:

  1. Create a detailed log. Document specific changes in memory, behavior, and judgment, noting when they started and how often they occur.
  2. Bring a list of all medications. Include both prescription drugs and over-the-counter supplements.
  3. Prepare a list of questions. This ensures you cover all your concerns, especially since appointment times are often limited.

If the primary doctor suspects dementia, they will likely refer your loved one to a specialist, such as a neurologist, geriatrician, or neuropsychologist, for a more comprehensive assessment. This may include neurological exams, cognitive tests, and brain imaging.

Navigating a Diagnosis

Receiving a dementia diagnosis can be overwhelming and emotional. However, an early diagnosis provides many benefits, including the ability to begin treatment, explore clinical trials, and proactively plan for the future. The diagnosis also helps shift the focus from correcting your loved one to understanding their reality and providing support.

Life after diagnosis: The difference between different stages

Aspect Early-Stage Dementia Middle-Stage Dementia Late-Stage Dementia
Memory Minor lapses in short-term memory; may forget recent events. Significant and noticeable short-term memory loss; may forget names of loved ones. Extensive memory loss; may not recognize close family members.
Independence Largely independent, but may need reminders for appointments or finances. Needs daily assistance with tasks like bathing, dressing, and managing money. Requires full-time care for all activities of daily living (ADLs).
Communication Can still hold meaningful conversations, though may struggle for words. Difficulty finding words, repeating stories; struggles to follow complex thoughts. Very limited verbal communication; may rely on gestures or sounds.
Behavior Possible mood swings, anxiety, or depression. Personality changes, agitation, and possible wandering. Severe behavioral changes, including significant agitation and impaired judgment.
Safety Still capable of driving, though judgment should be monitored. High risk for wandering; driving is no longer safe. Requires constant supervision to ensure safety from hazards.

Planning for the Future

Having legal and financial plans in place is essential for protecting your loved one's interests as the disease progresses. Discussions should happen in the early stages while they are still mentally competent to participate in decisions.

  • Power of Attorney (POA): A durable POA for both health care and finances is crucial. This legally appoints a trusted individual to make decisions if your loved one is no longer able.
  • Living Will/Advance Directives: These documents outline your loved one's wishes regarding medical treatment, especially end-of-life care.

Finding Resources and Support

Caring for someone with dementia is a demanding and emotional journey. You don't have to do it alone. Support groups, educational programs, and respite care can all provide vital help. Organizations like the Alzheimer’s Association offer a wealth of information and support for both caregivers and those with dementia.

For more in-depth resources and guidance on dementia caregiving, visit the National Institute on Aging website.

Frequently Asked Questions

Normal aging might include occasionally forgetting where your keys are or struggling to find a word. Dementia, however, involves persistent and escalating cognitive issues that disrupt daily life, such as getting lost in a familiar neighborhood, misplacing items in unusual places, or having difficulty completing familiar tasks.

Denial is common and can be a symptom of the disease itself. Instead of arguing, validate their feelings and gently express your concern from a place of love. Consider framing the medical visit around a different health issue, like a routine checkup, or enlisting the help of a trusted friend or another family member they respect.

Before the appointment, compile a detailed list of the specific cognitive and behavioral changes you've observed, including when they started and how frequently they occur. Also, bring a complete list of their medications, and prepare a list of questions to ask the doctor.

It is best to set up a durable power of attorney as early as possible after you suspect a loved one has dementia. A person must be deemed mentally competent to execute this legal document, which ensures their wishes are legally protected as the disease progresses.

Yes, there are many resources. Organizations like the Alzheimer's Association provide support groups, educational materials, and a 24/7 helpline. Local agencies on aging and specialized elder care attorneys can also offer guidance on care options, financial planning, and legal issues.

Refusal can stem from fear of losing independence or not understanding the need for help. Approach the situation with a calm demeanor and focus on reassuring your loved one of their safety and dignity. Offer limited, acceptable choices to give them a sense of control, and involve their healthcare provider for professional guidance.

After a diagnosis, focus on educating yourself about the specific type of dementia, developing a flexible care plan, and addressing legal and financial documents. Connect with support networks to help manage the emotional demands and ensure you take care of your own well-being.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.