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Why do people leave assisted living? Uncovering the common reasons for moving on

5 min read

According to a study by the American Health Care Association, the average length of stay in an assisted living community is about 28 months, with many residents eventually transitioning to another level of care. So, why do people leave assisted living and what factors contribute to this significant change?

Quick Summary

Several key factors drive the decision to leave assisted living, including an increased need for a higher level of medical or memory care, financial constraints due to rising costs, dissatisfaction with services or a particular facility's culture, and a desire to be closer to family or return home.

Key Points

  • Health Decline: When a senior's medical or cognitive needs increase, they may need to move to a higher level of care, such as memory care or a skilled nursing facility.

  • Financial Stress: Rising costs and a fixed income can make assisted living unaffordable, forcing a move due to budget constraints.

  • Poor Quality of Care: Dissatisfaction with staffing levels, poor service, or perceived neglect can lead to residents and families seeking alternative care options.

  • Mismatched Community Fit: A senior may feel socially isolated or that the community's culture or activities are not a good match for their personality or lifestyle.

  • Desire for Independence: Some residents may feel a loss of autonomy and wish to return to a more familiar, private setting, with the help of in-home care.

  • Family Circumstances: A move may be initiated to be closer to family or to allow a family member to take on a more direct caregiving role.

In This Article

Evolving Health Needs Require Higher Care

For many residents, a move from assisted living is not a choice but a necessity, driven by changing health needs that exceed the services provided. Assisted living communities are designed for residents who need some assistance with daily activities but are still relatively independent. When a resident's health declines significantly, their needs may surpass the facility's capabilities.

The Shift to Memory Care

One of the most common reasons for leaving assisted living is the progression of cognitive decline, such as Alzheimer's disease or other forms of dementia. Signs that a loved one needs to transition to a specialized memory care unit include:

  • Wandering or elopement: The resident may attempt to leave the facility unsupervised.
  • Increased confusion and disorientation: They may become lost in familiar areas of the community.
  • Behavioral changes: Increased aggression, combativeness, or inappropriate behaviors that a standard assisted living environment isn't equipped to handle.
  • Inability to perform activities of daily living (ADLs): As memory and cognitive function decline, tasks like bathing, dressing, and eating become more challenging.

The Need for Skilled Nursing

For other residents, physical health deteriorates to a point where a nursing home is required. A nursing home offers 24/7 medical supervision and a higher level of skilled nursing care. Reasons for this transition include:

  • The need for more intensive medical equipment or procedures that assisted living staff are not trained to provide.
  • Significant mobility issues, such as becoming non-weight-bearing, requiring more staff assistance than the facility can offer.
  • Frequent falls or injuries that suggest a higher-risk environment in assisted living.

Financial Pressures and Rising Costs

The financial aspect of assisted living can be a major stressor for residents and their families. While the initial costs might be manageable, unexpected increases can force a move.

Inflation and Unexpected Rate Hikes

The cost of assisted living can fluctuate over time, and rising operational costs are often passed on to residents. This can be particularly difficult for seniors on a fixed income. Unexpected rate hikes can make a previously affordable community suddenly out of reach.

Uncovered Costs

Many people are surprised to learn what is and isn't covered by Medicare or standard health insurance. For instance, while Medicare Part A and B can cover some skilled nursing or rehabilitation stays, it generally does not cover long-term assisted living expenses. This financial burden can become unsustainable over time.

Dissatisfaction with the Community and Care

Sometimes, the decision to leave is not based on external factors but on the resident's or family's dissatisfaction with the quality of care or the living environment. This is a highly personal but critical reason for seeking a new home.

Staffing and Care Concerns

Understaffing is a common complaint in many long-term care facilities, which can lead to residents feeling neglected or receiving a lower quality of care than promised. Other issues may include:

  • Slow response times to requests for assistance.
  • A lack of properly trained, compassionate, or caring staff.
  • Failure to meet the specific needs of a resident, such as managing medications correctly or providing proper hygiene care.

Poor Fit and Social Isolation

A community's culture is crucial for a resident's well-being. A poor fit can lead to social isolation and unhappiness. Reasons for this mismatch can include:

  • Personality Mismatch: An extroverted senior might feel isolated in a quieter community, while an introvert might be overwhelmed by constant social pressure.
  • Social Isolation: A senior may feel disconnected from other residents, leading to loneliness and depression, especially if the facility's activities do not align with their interests.
  • Lifestyle Mismatch: Preferences for dining options, activities, or the general pace of life can lead to dissatisfaction if the community doesn't cater to them.

Comparison of Reasons for Leaving Assisted Living

Reason Resident-Initiated Move Facility-Initiated Move Driving Factor
Increased Care Needs Often, families initiate a move to a higher level of care, such as memory care or skilled nursing, as cognitive or physical health declines. A facility may request a move if a resident's medical needs exceed its licensure or staffing capabilities. Health/Safety
Financial Constraints Family or resident decides they can no longer afford the rising costs. Facility may request a move due to non-payment of fees. Financial
Dissatisfaction with Care Resident or family seeks a better quality of care or a more suitable environment. N/A Quality of Life
Desire to Return Home Resident prefers to live in their own home, often with the support of in-home care services. N/A Independence/Preference
Family Relocation Resident moves to be closer to family members who live in a different area. N/A Social/Support

The Desire to Return Home

For some seniors, the ultimate goal is to return home, even if it requires additional support. The feeling of losing independence can be overwhelming, and the longing for a familiar environment can be a powerful motivator to leave assisted living. With the rise of in-home care services, many families can create a safe and supportive plan for a senior to live at home again. This can provide a renewed sense of purpose and comfort, especially for those who feel disconnected from their assisted living community.

Family Dynamics and Location

Family decisions can heavily influence whether a resident stays in an assisted living community. A senior might move to be closer to a caregiver or adult child who has relocated. Conversely, if a family decides to move a parent back home to provide direct care, it can lead to a shift in living arrangements. These decisions are often driven by a desire for more frequent family connection and involvement in the senior's daily life.

Conclusion: Making the Best Decision for the Senior's Well-being

Deciding to leave assisted living is a complex decision, often stemming from a mix of health, financial, and emotional factors. Understanding the primary motivations, whether it's a necessary progression of care or a dissatisfaction with the current environment, is key for families. Open and honest conversations with the senior, coupled with thorough research and professional guidance, can help ensure the next living situation is a better fit for their evolving needs and overall well-being. The priority should always be the senior's safety, happiness, and dignity, whether they transition to memory care, skilled nursing, or back to the comfort of their own home.

For more detailed guidance on navigating senior care decisions, a helpful resource is the National Center for Assisted Living (NCAL) at www.ncal.org.

Frequently Asked Questions

Yes, assisted living facilities can ask a resident to leave under specific circumstances, such as when their care needs exceed the facility's capabilities, for non-payment of fees, or if their behavior poses a safety concern to themselves or others.

Assisted living supports individuals who need help with daily activities but are mostly independent. Memory care is a specialized environment for those with cognitive impairments, offering a secure setting and tailored programming to support residents with dementia.

Families can explore several options, including applying for veterans' benefits, long-term care insurance, or state-based Medicaid waivers. It is also important to have open communication with the facility about financial options and to research more affordable communities.

First, have a compassionate conversation to understand their reasons. Evaluate if in-home care services, increased family visits, or other modifications can make living at home safe and sustainable. Sometimes, addressing the root cause of their unhappiness, rather than the location, is the solution.

Warning signs include a senior's increased agitation, weight loss, poor hygiene, unexplained injuries, or a noticeable decline in staff responsiveness. It's crucial to document these concerns and communicate them with the facility's management.

In many states, yes. Residents often have the right to appeal an involuntary discharge and should receive written notice beforehand. Families should consult the resident agreement and state regulations for the proper appeals process.

You can work with the community's staff to find a better social fit. This might involve exploring different activities, finding a more compatible roommate, or even seeking a community that caters to a different lifestyle or cultural background.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.