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What should I do if I suspect my parent has dementia?

4 min read

According to the Alzheimer's Association, more than 6.9 million Americans are living with Alzheimer's, the most common form of dementia. If you suspect your parent has dementia, understanding the steps to take can provide clarity and empower you to act decisively and compassionately.

Quick Summary

Observing changes in a parent's cognitive abilities can be profoundly unsettling. Begin by carefully documenting specific symptoms, consulting with other trusted family members, and scheduling an appointment with their doctor for a comprehensive medical evaluation to rule out other possible conditions.

Key Points

  • Document Symptoms: Keep a detailed log of behavioral and cognitive changes to share with a doctor.

  • Initiate Conversation Gently: Approach your parent with empathy and concern, focusing on observations rather than accusations.

  • Seek a Medical Evaluation: Consult your parent's primary care doctor for a comprehensive assessment to get an accurate diagnosis.

  • Plan for the Future: Work with your parent and an elder law attorney to establish legal and financial protections early on.

  • Prioritize Caregiver Support: Find support groups and respite care to help manage the emotional and physical demands of caregiving.

  • Distinguish from Normal Aging: Understand the key differences between typical age-related forgetfulness and persistent, disruptive dementia symptoms.

In This Article

Recognizing and Documenting Potential Warning Signs

Recognizing the difference between normal age-related memory changes and potential dementia is the first step. Normal aging might involve occasionally misplacing items or forgetting a word, but dementia symptoms are more persistent and disruptive. Keeping a detailed log of observed changes can be invaluable when you meet with a doctor. Note specific examples, such as when your parent gets lost in a familiar neighborhood, struggles with routine tasks like paying bills, or has uncharacteristic mood swings.

  • Memory loss that disrupts daily life
  • Challenges in planning or solving problems
  • Difficulty completing familiar tasks
  • Confusion with time or place
  • Trouble understanding visual images and spatial relationships
  • New problems with words in speaking or writing
  • Misplacing things and losing the ability to retrace steps
  • Decreased or poor judgment
  • Withdrawal from social activities
  • Changes in mood and personality

How to Initiate a Difficult Conversation

Approaching your parent about your concerns requires sensitivity and care. Choose a calm, comfortable, and private setting where both of you are relaxed. Instead of accusing or making a diagnosis, frame the conversation around your love and concern. You might say, "I've noticed you seem frustrated when you can't remember certain things, and I'm worried about you. Could we talk about how you're feeling?" Avoid using words like "dementia" initially, as this can cause fear and defensiveness. Instead, focus on specific examples and listen to their perspective. Be prepared for resistance or denial, and remember that you may need to have this conversation more than once.

Involving Other Family Members

It can be helpful to speak with siblings or other close relatives who also interact with your parent. They may have noticed similar changes or have a different perspective. Presenting a united front can strengthen your case for a medical evaluation and provide a solid support network for all involved.

Seeking a Comprehensive Medical Evaluation

An accurate diagnosis is critical, and only a qualified medical professional can provide one. The first step is to schedule an appointment with your parent's primary care physician. If your parent is reluctant, you can suggest a general check-up. Before the appointment, write down the documented symptoms and observations to share with the doctor. A comprehensive evaluation may involve:

  1. Medical History: A review of past and current health conditions and medications.
  2. Physical Exam: To rule out other conditions that can cause dementia-like symptoms, such as thyroid problems, vitamin deficiencies, or infections.
  3. Cognitive and Neurological Tests: Assessments of memory, problem-solving, language, and other mental functions.
  4. Brain Scans (MRI or CT): To check for strokes, tumors, or other brain abnormalities.

Comparison: Normal Aging vs. Potential Dementia

Feature Normal Aging Potential Dementia
Forgetting Information Occasionally forgets names or appointments, but recalls them later. Forgets recently learned information and never recalls it.
Problem-Solving Makes an occasional poor decision, like forgetting to balance a checkbook. Has persistent difficulty with complex tasks and planning.
Familiar Tasks Needs help with new technology, like setting up a new smartphone. Struggles to complete familiar daily tasks, like driving a regular route.
Time/Place Confusion Forgets what day it is but figures it out later. Often loses track of dates, seasons, and time's passage; can get lost.
Misplacing Items Temporarily misplaces keys or wallet. Puts objects in unusual places (e.g., car keys in the freezer) and cannot retrace steps.

Navigating Life After a Diagnosis

If your parent receives a dementia diagnosis, it's important to shift from identifying the problem to creating a supportive plan. This early stage is the best time for your parent to be actively involved in decision-making.

  • Legal and Financial Planning: Consult with an elder law attorney to establish documents such as a durable power of attorney for finances and health care. This ensures their wishes are legally protected as the disease progresses.
  • Creating a Care Plan: Consider your parent's current needs and anticipate future ones. This includes discussing potential in-home care options, support services, and eventually, long-term care facilities if needed.
  • Safety Proofing the Home: Adapt the home environment to minimize risks. This can include installing safety latches on cabinets, removing tripping hazards, and ensuring clear pathways.

Compassionate Caregiving and Finding Support

Caring for a parent with dementia is a long and challenging journey. It's vital to prioritize self-care and seek support. Online forums, local support groups, and respite care services can provide a much-needed outlet. Remember that you are not alone in this. Resources from organizations like the Alzheimer's Association offer a wealth of information and support for both the individual with dementia and their caregivers. Learn more about the 10 warning signs of Alzheimer's.

Conclusion: Moving Forward with Empathy

Suspecting a parent has dementia is a deeply emotional experience. However, taking proactive steps to seek a diagnosis is one of the most loving and responsible things you can do. By approaching the situation with compassion, gathering information, and building a strong support system, you can help your parent maintain their dignity and quality of life while ensuring you have the resources you need to navigate this journey together.

Frequently Asked Questions

The very first step is to start documenting specific examples of behavioral and cognitive changes you observe. Keep a running list of what happened, when, and any patterns you notice. This will be critical information for the doctor.

Choose a quiet, low-stress time for the conversation. Use "I" statements to express your concern, such as, "I've noticed you seem to be having trouble with your checkbook, and I'm a bit worried." Avoid clinical terms and focus on specific, observable behaviors.

You can suggest a general check-up for another reason, like blood pressure monitoring or a medication review. You can also contact their doctor's office ahead of time to share your concerns. The doctor can then approach the topic with a greater understanding during the appointment.

Yes, several reversible conditions can mimic dementia, including vitamin deficiencies (like B12), thyroid issues, depression, medication side effects, or a urinary tract infection (UTI). A medical evaluation is essential to rule these out.

While a primary care doctor can conduct initial screenings, you may be referred to a specialist such as a neurologist, geriatrician, or geriatric psychiatrist for a definitive diagnosis.

It's wise to consult an elder law attorney to establish a durable power of attorney for finances and health care. This ensures your parent's wishes are respected and that their affairs can be managed if they become unable to do so.

Many organizations, including the Alzheimer's Association, offer caregiver support groups, both in-person and online. Connecting with others facing similar challenges can provide emotional relief and practical advice.

While there is no cure, some treatments and lifestyle changes can help manage symptoms and slow progression. These include certain medications, a healthy diet, regular exercise, cognitive stimulation, and a structured routine.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice. Always consult a qualified healthcare provider regarding personal health decisions.